Wie nehmen Lebenspartner depressiver Patienten die Krankheit wahr und welche Informationen brauchen sie?

Wittmund, Bettina; Bischkopf, Jeannette; Mc, Angermeyer

doi:10.1055/s-2001-16682

Cited by 11 publications

(10 citation statements)

References 9 publications

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“…Regarding emotional topics, excessive demands, helplessness, suicidality, feelings of guilt and shame as well as strains in the partnership are addressed most frequently. These contents are in accordance with findings about information needs [9,11] and burden of relatives [7,8]. From the PGIR-contact persons point of view, relatives’ most urgent need is dealing adequately with the patient.…”

Section: Discussionsupporting

confidence: 85%

“…Uncertainties about how to deal adequately with the patients and their illness-related behaviour [9] as well as negative emotions like guilt, anger or worries about the patients’ future are common [8]. A lack of illness-specific information and education, coupled with a high subjective need in this regard and a perceived lack of involvement in depression treatment, is also experienced as a burden [8,10,11]. Consequences are a diminished quality of life [12,13] and a significantly increased prevalence of depressive disorders in relatives themselves [14].…”

Section: Introductionmentioning

confidence: 99%

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Provision of group psychoeducation for relatives of persons in inpatient depression treatment – a cross-sectional survey of acute care hospitals in Germany

et al. 2014

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BackgroundDepressive disorders are often recurrent and place a high burden on patients and their relatives. Psychoeducational groups for relatives may reduce relatives’ burden, help prevent relapses in patients, and are recommended by the German “National Disease Management Guideline Unipolar Depression”. Since there is limited knowledge on the provision of psychoeducational groups for relatives of persons in inpatient depression treatment, we conducted a survey among acute care hospitals in Germany.MethodsWe conducted a two-step cross-sectional survey. Step I consisted of a questionnaire asking the heads of all psychiatric/psychosomatic acute care hospitals in Germany (N = 512) whether psychoeducational groups for relatives were provided within depression treatment, and if not, the reasons for not implementing them. In group offering hospitals the person responsible for conducting psychoeducational groups received a detailed questionnaire on intervention characteristics (step II). We performed descriptive data analysis.ResultsThe response rate was 50.2% (N = 257) in step I and 58.4% in step II (N = 45). 35.4% of the responding hospitals offered psychoeducational groups for relatives of patients with depressive disorders. According to the estimates of the respondents, relatives of about one in five patients took part in psychoeducational groups in 2011. Groups were mostly provided by two moderators (62.2%) as continuous groups (77.8%), without patients’ participation (77.8%), with up to ten participants (65.9%), consisting of four or fewer sessions (51.5%) which lasted between one and one and a half hours each (77.8%). The moderators in charge were mostly psychologists (43.9%) or physicians (26.8%). Approximately one third used published manuals. Reasons for not conducting such psychoeducational groups were lack of manpower (60.1%), time (44.9%) and financial constraints (24.1%). 25.3% mentioned adequate concepts of intervention as a required condition for initiating such groups.ConclusionsOnly a small proportion of relatives of patients with depressive disorders participated in psychoeducational groups in 2011 in Germany. Mostly short interventions were favoured and main implementation barriers were scarce resources. Brief interventions that fit with healthcare routine should be developed and tested within randomised controlled trials. This could promote the provision of psychoeducational groups for relatives as evidence-based practice in inpatient depression treatment in Germany.

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Section: Discussionsupporting

confidence: 85%

Section: Introductionmentioning

confidence: 99%

Provision of group psychoeducation for relatives of persons in inpatient depression treatment – a cross-sectional survey of acute care hospitals in Germany

et al. 2014

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“…However, the demand for information often remains unmet (Angermeyer, Diaz Ruiz de Zarate & Matschinger, 2000; Gantt, Goldstein & Pinsky, 1989; Gümüş, 2008; Mueser et al, 1992; Wancata et al, 2006; Wei et al, 2010). Frequently, relatives do not know the correct diagnosis, do not get adequate information on the current medication or are not able to recognize the symptoms (Gantt, Goldstein & Pinsky, 1989; Gaskill & Cooney, 1991; Wittmund, Bischkopf & Angermeyer, 2001). They report a lack of involvement in the treatment process and often feel alone as they do not know other people being in the same situation (Gaskill & Cooney, 1991).…”

Section: Introductionmentioning

confidence: 99%

Information and decision-making needs of psychiatric patients: the perspective of relatives

Liebherz

Tlach

Härter

et al. 2017

PeerJ

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Background. Mental illness may strongly affect relatives' lives. Therefore, it is important to empower relatives by providing health information according to their preferences.Methods. An online cross-sectional survey was conducted using a purpose-designed questionnaire on online health information and decision-support needs. Results. Prevalent reasons for online health information search of the 185 participating relatives were the need for general information and the insufficiency of the information given by the health care provider. The most difficult treatment decisions concerned the treatment setting (inpatient or outpatient) as well as the psychopharmacological treatment. Discussion. Since psychiatric patients' relatives report extensive information and decision-support needs, it is essential to address their needs in health information material. Assessment of relatives' needs when developing health information materials is recommended.

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“…Die Gruppe der Fachvertreter psychiatrischer, psychotherapeutischer und psychologischer Abteilungen und Ambulanzen bilden die Autoren: Bickel [78], Frick [79], Häßler [80], Kilian [81], Kluge [82], Melchinger [83], Schützwohl [84], Soyka [85] und Wittmund [86].…”

Section: Introductionunclassified

Die Forderung nach Internationalisierung der deutschen Forschung am Beispiel der Zeitschrift „Das Gesundheitswesen”. Ein Beitrag zur Qualitätssicherung anwendungsbezogener Forschung

Borkenhagen

J²,

Stößel³

et al. 2003

Gesundheitswesen

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Wie nehmen Lebenspartner depressiver Patienten die Krankheit wahr und welche Informationen brauchen sie?

Cited by 11 publications

References 9 publications

Provision of group psychoeducation for relatives of persons in inpatient depression treatment – a cross-sectional survey of acute care hospitals in Germany

Provision of group psychoeducation for relatives of persons in inpatient depression treatment – a cross-sectional survey of acute care hospitals in Germany

Information and decision-making needs of psychiatric patients: the perspective of relatives

Die Forderung nach Internationalisierung der deutschen Forschung am Beispiel der Zeitschrift „Das Gesundheitswesen”. Ein Beitrag zur Qualitätssicherung anwendungsbezogener Forschung

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