Wiisokotaatiwin: development and evaluation of a community-based palliative care program in Naotkamegwanning First Nation

Abstract

The Wiisokotaatiwin Program allowed community members to receive their palliative care at home, improved client experience and enhanced service integration. This article provides a First Nations specific model for a palliative care program that overcomes jurisdictional issues at the local level, and a methodology for developing and evaluating community-based palliative care programs in rural First Nations communities. The article demonstrates how local, federal and provincial healthcare providers and organizations collaborated to build capacity, fund and deliver community-based palliative care. The described process of developing the program has applicability in other First Nations (Indigenous) communities and for healthcare decisionmakers.

Evolution and Conceptual Foundations of Nonhospice Palliative Care

“…Based upon the assessment, additional health care providers can be added to the patient’s care team. Some of these new care team members may include providers of physical therapy, respite care, or medical equipment (Nadin, Crow, Prince, & Kelley, 2018; Zimmermann et al, 2014).…”

Developing palliative care programs in Indigenous communities using participatory action research: a Canadian application of the public health approach to palliative care

“…As a result, seriously ill community members had the choice to receive care in their community. While not all clients died at home, all received PC at home longer than before (47,49). (Table 8); those comparative insights can inform further application of the model.…”

“…Only two communities documented outcomes related to the number of clients and services provided, participant satisfaction and perceived benefits (47,49). The impact of the new program on quality of patient care is not known or how community care compared with usual care outside of the community.…”

“…The achievements of each community are summarized inTable 7. More detailed descriptions of the communities' experiences are available in separate publications(47,49). Examples of two community program descriptions and a table summarizing how one community implemented the five phases of the model are included as Supplementary files (Supplementary File 3, 4, and 5 respectively).…”

The Submissive Relationship of Public Health to Government, Politics, and Economics: How Global Health Diplomacy and Engaged Followership Compromise Humanitarian Relief

“…Addressing the first recommendation, our petition recommended the IADB's Operational Policy on Indigenous Peoples and Strategy for Indigenous Development be fully implemented [27]. To address the second recommendation, the petition to the ICIM calls for an inclusive economic development process that would devolve power to the level of local communities and enable Indigenous communities to act collectively to improve their own lives [33][34][35][36][37].…”