Wiki-Based Clinical Practice Guidelines for the Management of Adult Onset Sarcoma: A New Paradigm in Sarcoma Evidence

Neuhaus, Susan J.; Thomas, David M.; Desai, Jayesh; Vuletich, Christine; Dincklage, Jutta von; Olver, Ian

doi:10.1155/2015/614179

Cited by 15 publications

(21 citation statements)

References 13 publications

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“…Sarcomas represent a rare, heterogeneous group of malignancies that form from mesenchymal tissue, including tumours of the bone and soft tissue . Annually, approximately 850 new cases of sarcoma are diagnosed in Australia, representing 1% of cancer diagnoses . Sarcomas have a burden disproportionate to their incidence, due to their bimodal distribution of incidence, treatment‐related morbidity, and lethality .…”

Section: Introductionmentioning

confidence: 99%

“…6 Annually, approximately 850 new cases of sarcoma are diagnosed in Australia, representing 1% of cancer diagnoses. 6,7 Sarcomas have a burden disproportionate to their incidence, due to their bimodal distribution of incidence, treatment-related morbidity, and lethality. [8][9][10] On average, 17 life years are lost per patient, with rates of mortality estimated at 50%.…”

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confidence: 99%

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Health‐related quality of life, psychosocial functioning, and unmet health needs in patients with sarcoma: A systematic review

et al. 2019

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Objective Health‐related quality of life (HRQoL), psychosocial distress, and unmet health needs are important patient‐reported outcomes (PROs) for patients with sarcoma treated with curative intent. Syntheses of data on these PROs in patients with sarcoma are limited. Methods A systematic review of peer‐reviewed literature published between 2007 and 2017 was conducted using five databases, guided by the PRISMA and Cochrane reporting guidelines. Results Of 7240 articles identified, 31 were included in this review. Compared with healthy individuals, patients with sarcoma frequently scored lower in physical and psychological HRQoL domains and experienced higher rates of self‐image issues, depression, and suicide. However, outcomes for patients with sarcoma were relatively comparable to those with other malignancies. Anxiety symptoms were more common in the diagnosis phase, while depressive symptoms were more common in the treatment phase. Patients who are older, female, and socially isolated often reported lower HRQoL. As a sarcoma‐specific HRQoL instrument is not available, and all studies have used generic instruments, key issues may have been omitted. Conclusion There are few studies reporting data for HRQoL, psychosocial issues, or unmet health needs in this population. A sarcoma‐specific HRQoL instrument is needed to accurately describe outcomes in this population. There is a need for further qualitative research to conceptualise the HRQoL issues relevant to this population, against which to map existing HRQoL instruments and guide adaptation or creation of a new instrument.

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Section: Introductionmentioning

confidence: 99%

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confidence: 99%

Health‐related quality of life, psychosocial functioning, and unmet health needs in patients with sarcoma: A systematic review

et al. 2019

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“…9,10 Traditional printed guidelines are resource intensive and become quickly outdated, while Web-based guidelines have the potential for improved accessibility and credibility if they are continuously reviewed, updated, and widely disseminated. 1,2,11 Implementation of ICT and guidelines in healthcare is influenced by various factors. [3][4][5][6]12 From an organizational perspective, key components for successful adoption in healthcare include management engagement and support, structural and electronic resources, and a supportive culture and environment with implementation facilitators.…”

Section: Implementation Of Web-based Guidelinesmentioning

confidence: 99%

“…nformation and communication technology (ICT) has the potential to improve access to national guidelines, 1 even if the effectiveness is not entirely clear. 2 The Web is a form of ICT often used for guidelines in healthcare.…”

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confidence: 99%

Nurses' Use and Ways of Understanding Web-Based National Guidelines for Child Healthcare

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Olander

Anderberg

et al. 2019

CIN: Computers, Informatics, Nursing

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The national Rikshandboken for child healthcare is both a Web-based guideline containing knowledge and methodological guidance and a national child healthcare program in the process of being implemented in Sweden. The aim of this study was to examine child healthcare nurses' use and ways of understanding the national Web-based Rikshandboken. A mixed-methods study with sequential explanatory design in two phases was used; a Web survey with descriptive statistics was followed with telephone interviews with phenomenographic analysis. The study showed variations in use and contributed deeper knowledge of child healthcare nurses' ways of understanding the unit Rikshandboken whose varied parts interact with each other. To be reliable, useful, and relevant for nurses in their specific contexts, Rikshandboken must be kept updated and involve the end users in the development process. With access to technical devices and optimal use of the possibilities of information and communication technology, Rikshandboken can be a resource for continuing learning, a tool in everyday work, and a possible determinant to equality in child healthcare. The study contributes valuable knowledge for the design of Web-based national guidelines for healthcare, making them useful and relevant for the end users.

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“…ICTs have the potential to improve accessibility to CPGs. For example, digital CPGs can be continuously reviewed and updated with new evidence, while having the potential to be widely disseminated [6]. Furthermore, these Web-based tools provide both clinicians and consumers with a convenient method to access evidence-based CPGs [6].…”

Section: Introductionmentioning

confidence: 99%

Information and Communication Technologies for the Dissemination of Clinical Practice Guidelines to Health Professionals: A Systematic Review

Angelis¹,

Davies²,

King³

et al. 2016

JMIR Med Educ

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BackgroundThe transfer of research knowledge into clinical practice can be a continuous challenge for researchers. Information and communication technologies, such as websites and email, have emerged as popular tools for the dissemination of evidence to health professionals.ObjectiveThe objective of this systematic review was to identify research on health professionals’ perceived usability and practice behavior change of information and communication technologies for the dissemination of clinical practice guidelines.MethodsWe used a systematic approach to retrieve and extract data about relevant studies. We identified 2248 citations, of which 21 studies met criteria for inclusion; 20 studies were randomized controlled trials, and 1 was a controlled clinical trial. The following information and communication technologies were evaluated: websites (5 studies), computer software (3 studies), Web-based workshops (2 studies), computerized decision support systems (2 studies), electronic educational game (1 study), email (2 studies), and multifaceted interventions that consisted of at least one information and communication technology component (6 studies).ResultsWebsite studies demonstrated significant improvements in perceived usefulness and perceived ease of use, but not for knowledge, reducing barriers, and intention to use clinical practice guidelines. Computer software studies demonstrated significant improvements in perceived usefulness, but not for knowledge and skills. Web-based workshop and email studies demonstrated significant improvements in knowledge, perceived usefulness, and skills. An electronic educational game intervention demonstrated a significant improvement from baseline in knowledge after 12 and 24 weeks. Computerized decision support system studies demonstrated variable findings for improvement in skills. Multifaceted interventions demonstrated significant improvements in beliefs about capabilities, perceived usefulness, and intention to use clinical practice guidelines, but variable findings for improvements in skills. Most multifaceted studies demonstrated significant improvements in knowledge.ConclusionsThe findings suggest that health professionals’ perceived usability and practice behavior change vary by type of information and communication technology. Heterogeneity and the paucity of properly conducted studies did not allow for a clear comparison between studies and a conclusion on the effectiveness of information and communication technologies as a knowledge translation strategy for the dissemination of clinical practice guidelines.

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Wiki-Based Clinical Practice Guidelines for the Management of Adult Onset Sarcoma: A New Paradigm in Sarcoma Evidence

Cited by 15 publications

References 13 publications

Health‐related quality of life, psychosocial functioning, and unmet health needs in patients with sarcoma: A systematic review

Health‐related quality of life, psychosocial functioning, and unmet health needs in patients with sarcoma: A systematic review

Nurses' Use and Ways of Understanding Web-Based National Guidelines for Child Healthcare

Information and Communication Technologies for the Dissemination of Clinical Practice Guidelines to Health Professionals: A Systematic Review

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