Within moments of<i>becoming</i>—everyday citizenship in nursing homes

Sund, Marianne; Fjetland, Kirsten Jæger; Hanisch, Halvor

doi:10.1080/11038128.2022.2085621

Cited by 3 publications

(6 citation statements)

References 33 publications

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“…Of the 30 studies included in the review, 16 were qualitative descriptive studies,(13, 14, 15, 16, 17, 18, 19, 20, 21, 22, 23, 24, 25, 26, 27, 28) 11 were cross-sectional studies,(28, 29, 30, 31, 32, 33, 34, 35, 36, 37, 38) 2 were mixed methods studies,(39, 40) and 1 was a cohort study. (41) Participants included people living with dementia, relatives, staff working in nursing homes, experts in dementia care, administrators and lawyers.…”

Section: Resultsmentioning

confidence: 99%

“…Settings were described as nursing homes (n=20), residential care facilities (n=3), dementia care unit (n=3), care homes (n=2), assisted living facility (n=1) and hospital or nursing homes specialised in palliative care (n=1). Studies were conducted in Australia (n = 8),(15, 16, 17, 26, 28, 30, 40, 42) USA (n = 6),(14, 20, 24, 33, 37, 43) UK (n = 5),(19, 20, 21, 39, 42) Norway (n = 4),(18, 23, 27, 29) the Netherlands (n = 2),(31, 35) Denmark (n = 2),(22, 25) New Zealand (n=1)(42) Sweden (n = 2),(34, 36) Canada (n = 1),(32) Northern Ireland (n = 1),(31) Indonesia (n=1)(13), South Africa (n=1),(42) and Malaysia (n = 1). (41) Two of these studies were conducted in multiple jurisdictions.…”

Section: Resultsmentioning

confidence: 99%

“…This vignette provides examples of quality dementia care from a resident’s point of view. It covers the following themes: determinants of quality care (13, 15, 16, 30, 37, 38, 39), outcomes (18, 30, 39), person-centred care (14, 17, 18, 28, 32, 35, 41, 44), cultural impact (28, 42) care planning (17, 29, 39), meaningful engagement (19, 20), eating and meals (30, 32, 46), the role of family members (15, 17, 31), restrictive practices (26, 30, 38), activities (15, 18, 25, 27, 28, 34), materials (21), health care (14, 23, 31, 40), end of life care (31, 33, 36), staffing (16, 17, 24, 31, 33, 42, 45) and staff training (14, 16, 17, 20, 24, 31, 41, 42).…”

Section: Resultsmentioning

confidence: 99%

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Good practice in the provision of care for people living with dementia in nursing homes: a systematic review

Behan,

O’Brien,

Dunbar

et al. 2024

Preprint

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Background The number of people living with dementia across the world is rising, and there is a high and ever increasing proportion of people with dementia living in nursing homes. It is increasingly important that care provision in these services accounts for the specific needs of this cohort. Manifestations of dementia are modifiable with high quality dementia specific care, as such, we need to understand what good practice looks like specifically in these settings. Aim To synthesise empirical research to identify the characteristics of quality in the provision of care for people living with dementia in nursing homes. Methods Four electronic academic databases were searched: Business Complete, CINAHL, MEDLINE and APA PsychInfo. Qualitative, quantitative or mixed-methods studies published between the years of 2020-2023, that aimed to identify determinants of high quality care for people with dementia living in nursing homes, were included. Themes relating to good practices were identified and narratively summarised. Vignettes illustrating good practice were constructed from the perspective of a provider, a staff member, a resident and a family member. Results After screening of 3,356 records, 30 articles were included. This included 16 qualitative descriptive studies, 11 cross-sectional studies, 2 mixed methods studies, and 1 cohort study. Sixteen themes were identified: determinants of care quality, outcomes, person-centred care, cultural impact, care planning, meaningful engagement, eating and meals, the role of family members, restrictive practices, psychotropic medications, activities, materials, health care, end of life care, staffing and staff training. Conclusions The literature identifies what constitutes high quality care for residents with dementia in nursing homes. These findings will guide those delivering care in nursing homes in their daily work and in the implementation of quality improvement processes. It will also direct regulators, policymakers and researchers when conducting future work in this important area.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Good practice in the provision of care for people living with dementia in nursing homes: a systematic review

Behan,

O’Brien,

Dunbar

et al. 2024

Preprint

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“…If we are to bridge the gap between residents’ needs and capabilities as citizens, we need to recognise multiple knowledge perspectives (Sund et al, 2022a), including medical, care-based and citizenship theories. Sund et al (2022b) suggest that one way to do so is to recognise that residents’ growth as occupational beings and citizens in nursing homes can emerge in embodied and relational ways, shedding light on residents’ need to live in environments that support their natural and embodied desires to do . Our understanding of activistic citizenship links such conceptions with a more transformative ambition of change of both contextual as well as relational perspectives in professional practice, which connects directly with our interpretive practices.…”

Section: Discussionmentioning

confidence: 99%

“…However, Sund et al (2022a) conclude that further research is needed on how citizenship can be realised in a way that encompasses both residents’ needs and abilities as citizens in the nursing home. In a recent article, Sund et al (2022b) argue that citizenship in this context is not a stable condition, but emerges in fragile moments of becoming , in both embodied and relational ways. Such moments shed light on residents’ abilities for growth and for acting in line with their own occupational identity.…”

Section: Introductionmentioning

confidence: 99%

Activistic citizenship in nursing homes: co-ownership in the mundane

Sund

Hanisch²,

Fjetland

2023

Dementia

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The traditional narrative of dementia, focused on cognition as constructive of personhood, has been challenged by person-centred care as well as a rights-based citizenship lens. However, reports of everyday discrimination leading to occupational deprivation and pathologising interpretations of people living with dementia in nursing homes highlight the need for further investigation. The purpose of this study was to investigate the transformative power of mundane and relational enactments of citizenship in nursing homes, exploring the potential of adding an activistic lens of citizenship to our interpretive practices. Through an ethnographic study in Norwegian nursing homes, a narrative analysis of fieldnotes and interview transcripts was conducted. Narratives were interpreted using narrative theory, occupational perspectives and theories of citizenship. Findings reveal a phenomenon of shared ownership between residents and staff, and a vulnerable balance between silence and active social and occupational engagement in the nursing homes. Further, they shed light on how group-based assessments of residents’ abilities or occupational needs may constrain opportunities, and staffs’ options, to facilitate co-ownership. We suggest that a lens of activistic citizenship implies interpreting residents’ behaviours as mundane forms of subtle resistance. A professional and ethical responsibility building on such interpretive practices may turn attention towards structures that constrain residents’ expressions of citizenship.

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