Wohlbefinden und gesundheitsbezogene Lebensqualität aus einer bevölkerungsbezogenen Perspektive

Ravens‐Sieberer, Ulrike; Wille, Nora; Nickel, Jennifer; Ottová, Veronika; Erhart, Michael

doi:10.1026/0943-8149.17.2.56

Cited by 8 publications

(4 citation statements)

References 32 publications

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“…When children are non-verbal or pre-verbal, parents, caregivers, or healthcare providers may be an acceptable proxy for deriving paediatric outcomes. However, self-assessment of HRQOL should be encouraged where possible, given evidence that proxy ratings are systematically different from the child's selfrated HRQOL [22][23][24][25]. Considerable discordance between children's and parents' ratings of HRQOL, psychological functioning, and physical functioning have been reported in children with chronic diseases [22][23][24][25].…”

Section: Discussionmentioning

confidence: 99%

“…However, self-assessment of HRQOL should be encouraged where possible, given evidence that proxy ratings are systematically different from the child's selfrated HRQOL [22][23][24][25]. Considerable discordance between children's and parents' ratings of HRQOL, psychological functioning, and physical functioning have been reported in children with chronic diseases [22][23][24][25]. The P-MYMOP is simple and designed to support self-rating of HRQOL in children aged 7-11 years old.…”

Section: Discussionmentioning

confidence: 99%

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Adaptation and content validation of measure yourself medical outcomes profile (MYMOP) for 7–11 year-old children

Ishaque,

Roberts,

Karnon

et al. 2024

Qual Life Res

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Background The Measure Yourself Medical Outcome Profile (MYMOP) is an individualised tool designed for adults but used with children without any evidence of validation in this population. Individualised instruments are patient-specific rather than disease-specific and therefore can be applied across various health conditions. This study sought to adapt, and content validate the MYMOP for application in 7–11 year old children. Methods There were two main phases of the four iterations: expert consultation (three rounds) and interviews with child-parent pairs at the Outpatient clinics of a Children’s Hospital. Thematic analysis was undertaken using an inductive, interpretative approach. Results Four paediatricians completed the first survey, five paediatricians participated in the focus group, and four paediatric health-related quality of life (HRQOL) research experts completed the second survey. Several changes were recommended to the MYMOP by the expert groups. Twenty-five children (17 general medicine, and 8 diabetes/endocrine clinic) aged 7–11 years completed the draft paediatric MYMOP (P-MYMOP) and were interviewed. Results demonstrated that the majority of participants were able to identify their own problems and activity limitations, and all participants understood the 7-point faces scale. Most parents and children perceived that the P-MYMOP would be useful to complete before clinic appointments. Conclusions The P-MYMOP is the first content-validated generic individualised HRQOL measure for children 7–11 years old. Given that validation is an iterative process, further research to assess its feasibility, reliability, and construct validity is required.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Adaptation and content validation of measure yourself medical outcomes profile (MYMOP) for 7–11 year-old children

Ishaque,

Roberts,

Karnon

et al. 2024

Qual Life Res

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“…Therefore, in contrast to deficit-oriented approaches, this study examined the overall subjective well-being of RM. Thereby well-being was operationalized by health-related quality of life, which is understood as a multidimensional construct including physical, emotional, mental, social, spiritual, and behavioral components of well-being and functioning from a subjective perspective (Ravens-Sieberer et al, 2009).…”

Section: Comparison Of Well-beingmentioning

confidence: 99%

Well-Being and Resources of Minors With Refugee Background in Comparison to Minors With Migration or Native Background

Schmees

Braig

Nilles

et al. 2022

European Journal of Health Psychology

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Abstract. Background: Studies on the health of minors with refugee background (RM) often focus on symptoms and risks. In contrast to these deficit-oriented approaches, the present study examined well-being and resources of RM. Aims: The aim was to get an overview of the extent to which RM differ from both minors with migration (MM) as well as native (NM) background regarding well-being and resources. In addition, the study sought to identify resources of RM that are significant for well-being. General personal and social resources, religious identity and practice as well as multicultural resources (bilingualism, ethnic identity) were examined. Method: The study was conducted in Germany with minors aged 8–16 years. RM ( n = 209), MM ( n = 535) and NM ( n = 858) completed questionnaires. Comparative analyses and multiple regression analyses were computed. Results: RM showed lower well-being and fewer social resources than MM and NM. For personal resources, the group differences were less consistent. Personal and social resources predicted the well-being of minors. While multicultural resources were not significant, especially the resources sense of coherence, integration into peer group, and religious identity positively predicted the well-being of RM. Limitations: The group of MM is very heterogeneous. Further studies should differentiate the group of MM more precisely. Conclusion: The differences in well-being among RM, MM and NM can largely be explained by differences in resources. Religious identity is an important available resource for RM. Sense of coherence and integration into peer groups should be given special attention in health promotion for RM.

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“…Seite enthielt ein Testinstrument zur Einschätzung der globalen gesundheitsbezogenen Lebensqualität ("KIDSCREEN ® -10-Index"; [ 2 ] ). Hierbei handelt es sich um ein international entwickeltes und etabliertes Kurzinstrument -mit Anwendung zum Beispiel in der europaweiten Health Behaviour in School-aged Children-(HBSC-) Studie [ 3 ] und anderen Studien [ 4 ] . Zum 1.…”

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Allergie und Schule – Was juckt mich das?Ein Grundschulprojekt in Bielefeld zur Gesundheitsförderung bei allergischen Krankheiten

Bornemann

Hagemeister

2012

Gesundheitswesen

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Wohlbefinden und gesundheitsbezogene Lebensqualität aus einer bevölkerungsbezogenen Perspektive

Cited by 8 publications

References 32 publications

Adaptation and content validation of measure yourself medical outcomes profile (MYMOP) for 7–11 year-old children

Adaptation and content validation of measure yourself medical outcomes profile (MYMOP) for 7–11 year-old children

Well-Being and Resources of Minors With Refugee Background in Comparison to Minors With Migration or Native Background

Allergie und Schule – Was juckt mich das?Ein Grundschulprojekt in Bielefeld zur Gesundheitsförderung bei allergischen Krankheiten

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