Women as Health Care Decision-Makers: Implications for Health Care Coverage in the United States

Matoff-Stepp, Sabrina; Applebaum, Bethany; Pooler, Jennifer; Kavanagh, Erin

doi:10.1353/hpu.2014.0154

Cited by 85 publications

(44 citation statements)

References 7 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Of the more than 50% expressing interest in an online information sharing portal for CAM, women and younger participants expressed greater interest. The role of women in information-seeking and health care decision making for family members is well documented [ 14 , 15 ]. The phone interviews documented similar behaviors amongst women and men.…”

Section: Discussionmentioning

confidence: 99%

“…The main source for CAM information was anecdotal through family and friends, with female family members playing a major role in steering male family members toward CAM use. This is not surprising, as studies have shown that women make up to 80% of the health care decisions for their families in the United States [ 14 ]. A Canadian study suggested that in many cases, patients would prefer to receive CAM information from trusted resources, such as their oncologists, but physicians were often not equipped to provide the necessary information [ 15 ].…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Understanding cancer survivors’ information needs and information-seeking behaviors for complementary and alternative medicine from short- to long-term survival: a mixed-methods study

Scarton

Fiol

Oakley-Girvan

et al. 2018

jmla

View full text Add to dashboard Cite

ObjectiveThe research examined complementary and alternative medicine (CAM) information-seeking behaviors and preferences from short- to long-term cancer survival, including goals, motivations, and information sources.MethodsA mixed-methods approach was used with cancer survivors from the “Assessment of Patients’ Experience with Cancer Care” 2004 cohort. Data collection included a mail survey and phone interviews using the critical incident technique (CIT).ResultsSeventy survivors from the 2004 study responded to the survey, and eight participated in the CIT interviews. Quantitative results showed that CAM usage did not change significantly between 2004 and 2015. The following themes emerged from the CIT: families’ and friends’ provision of the initial introduction to a CAM, use of CAM to manage the emotional and psychological impact of cancer, utilization of trained CAM practitioners, and online resources as a prominent source for CAM information. The majority of participants expressed an interest in an online information-sharing portal for CAM.ConclusionPatients continue to use CAM well into long-term cancer survivorship. Finding trustworthy sources for information on CAM presents many challenges such as reliability of source, conflicting information on efficacy, and unknown interactions with conventional medications. Study participants expressed interest in an online portal to meet these needs through patient testimonials and linkage of claims to the scientific literature. Such a portal could also aid medical librarians and clinicians in locating and evaluating CAM information on behalf of patients.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Understanding cancer survivors’ information needs and information-seeking behaviors for complementary and alternative medicine from short- to long-term survival: a mixed-methods study

Scarton

Fiol

Oakley-Girvan

et al. 2018

jmla

View full text Add to dashboard Cite

show abstract

“…The LSP-MHL studies and other research with parents confirm that mothers remain the primary caregivers of children, and the primary managers of health and healthcare at home [15]. It is likely that fathers have MHL and perhaps other distinctly paternal health literacy skills; but available data on fathers is insufficient to assess those skills or their impacts.…”

Section: Health Disparities Begin Before Birth -Mothers In Povertymentioning

confidence: 98%

Data-driven maternal health literacy promotion and a postscript on its implications

Smith¹,

Carroll

2017

ISU

View full text Add to dashboard Cite

Abstract. Scientific discovery and global health policy are moving health literacy promotion and maternal-child health from the fringes of research and public health to the forefront of healthcare reform [Matern Child Health J. 18 (2014), 344-365]. In 2011 the United Nations General Assembly adopted the Shanghai Declaration [Lancet 378 (2011), 566-567]. The Declaration highlights new understanding of the origins of health and disease in early development. It calls on all nations to apply this knowledge to reduce the burdens of chronic disease and related disparities worldwide. The Declaration recommends a specific intervention strategy: promote health literacy across the life course, particularly in parents and children, and empower women.This article explores findings and implications of the Life Skills Progression Maternal Health Literacy studies. These LSP-MHL studies evaluated implementations of an intervention designed to promote health literacy in parents and empower women in the U.S. First, the article reports findings of the most recent of five published LSP-MHL studies with discussion of its implications for future work in this line of inquiry. A postscript highlights two of many implications of the LSP-MHL intervention studies for health literacy research in the third era of modern healthcare.

show abstract

“…Our recruitment efforts uncovered much more interest from women, and specifically from mothers. Since mothers are more often primary decision makers for children's health care, 37 we believe our results results reflect children's experience in the health care setting. In addition, our qualitative sample included more stakeholders from urban areas of the state.…”

Section: Discussionmentioning

confidence: 64%

Patient-Centered Research Priorities: A Mixed-Methods Approach from the Colorado Children's Outcomes Network (COCONet)

2019

View full text Add to dashboard Cite

Background: Practice-based research networks (PBRNs) perform clinically relevant research designed for immediate translation to patient care. Research questions developed with patients and parents are more likely to be relevant to stakeholders. This case study developed priority areas for patient-centered outcomes research in pediatric health within the context of the Colorado Children's Outcomes Network, a statewide pediatric PBRN, and in collaboration with stakeholders. Methods: We undertook a mixed-methods, community-engaged process to understand and develop a research agenda for our pediatric PBRN. With a stakeholder-engaged research team, we conducted 52 stakeholder interviews and 1 focus group (n ‫؍‬ 9) addressing topics including child health issues, personal health care experiences, community health, and the health care system. Transcripts were coded and analyzed by researchers and parent advisors. We conducted a Web-based survey of PBRN stakeholders (n ‫؍‬ 75) to rate priority issues identified in qualitative findings. Finally, we facilitated a communityengaged mixed-methods interpretation and issue selection process with our Network Advisory Board to identify issues of highest importance for Colorado Children's Outcomes Network. Results: Six topic areas of importance to pediatric health stakeholders emerged from qualitative work. Participating stakeholders used rating surveys to rank these 6 topics. Pediatric mental health coordination and communication/integration with primary care was ranked as the most important and highest research priority. The Network Advisory Board additionally identified immunization uptake and transition from pediatric to adult health care as research priority areas. Conclusions: This pediatric PBRN identified numerous research priorities in pediatric health and selected 3 for immediate research action. PBRNs can use community-engaged, mixed-methods research approaches to set research priorities and develop patient-centered pediatric research agendas. (J Am Board Fam Med 2019;32:674-684.

show abstract

Women as Health Care Decision-Makers: Implications for Health Care Coverage in the United States

Cited by 85 publications

References 7 publications

Understanding cancer survivors’ information needs and information-seeking behaviors for complementary and alternative medicine from short- to long-term survival: a mixed-methods study

Understanding cancer survivors’ information needs and information-seeking behaviors for complementary and alternative medicine from short- to long-term survival: a mixed-methods study

Data-driven maternal health literacy promotion and a postscript on its implications

Patient-Centered Research Priorities: A Mixed-Methods Approach from the Colorado Children's Outcomes Network (COCONet)

Contact Info

Product

Resources

About