Women Family Members’ Experiences of Involvement in Adult Inpatient Traumatic Brain Injury Rehabilitation

Savage, Isabelle; Egan, Mary

doi:10.15453/2168-6408.1457

Cited by 2 publications

(4 citation statements)

References 17 publications

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“…The array of potential sequelae—cognitive, behavioral, physical, and psychiatric (O’Donoghue & Meixner, 2020)—from neurological damage places significant burden upon caregivers. Savage & Egan (2018) reported:The stressors often cause the family members to experience extreme fatigue, irritability, anger, depression, anxiety, isolation, and hostility. They are required to manage intense stress and emotions, to cope with loss and change, to problem-solve effectively, to focus on accomplishments, and to set reasonable goals, all while recognizing the importance of taking care of themselves.…”

Section: Resultsmentioning

confidence: 99%

“…The array of potential sequelae-cognitive, behavioral, physical, and psychiatric (O'Donoghue & Meixner, 2020)-from neurological damage places significant burden upon caregivers. Savage & Egan (2018) reported:…”

Section: Theme 2: Managing the Burden Of Caregivingmentioning

confidence: 99%

“…These measures, using checklists, scales, or surveys, tend to focus on factors related to burden of care, quality of life, emotional health (e.g., anxiety and stress), social supports, and professional resources (Chronister et al, 2016; Niemeier et al, 2019). While there is a small pool of recent qualitative studies on caregiving for persons following TBI (Savage & Egan, 2018; Whiffin et al, 2021), we were unable to identify a study focused solely on the community-based lived experiences of women as TBI caregivers.…”

Section: Introductionmentioning

confidence: 99%

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Community Caring for a Family Member With Brain Injury: Women’s Lived Experiences

O’Donoghue,

Meixner

2023

Qual Health Res

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Individuals with a brain injury often require a caregiver to live safely in a community-based setting. This role typically defaults to a woman family member. Under the auspices of a constructivist interpretive tradition that honors a desire-based approach, this study blended narrative inquiry and grounded theory to explore the lived experiences of women caring for loved ones with brain injury. Twenty women completed the semi-structured interview, electing to participate either via videoconferencing or telephone. Employing a constant comparative method, three consecutive rounds of interviews, coding, and analysis occurred. Findings revealed an overarching theme surrounding the intractable challenges and enduring triumphs of caregiving. This discovery further sub-divided into four themes. Two themes focused on traversing a fragmented system of care and managing the burden of caregiving. The remaining two entailed finding supports in family and friends and leveraging professional skillset(s) to optimize caregiving. The recommendations garnered from the women’s experiences included enhanced caregiver education with follow-up post-medical care, expanding services into the community to support caregivers and their family members appropriately, and building compassionate networks of women living the caregiving experience. Consistent with a desire-based paradigm, leveraging relationships to triumph over the challenges provided this group of women a voice to promote effective care for self, loved ones, and others.

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Section: Resultsmentioning

confidence: 99%

Section: Theme 2: Managing the Burden Of Caregivingmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Community Caring for a Family Member With Brain Injury: Women’s Lived Experiences

O’Donoghue,

Meixner

2023

Qual Health Res

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“…Patients with moderate to severe TBI initially need to be admitted to intensive care units (ICUs) (8), where they are exposed to complications such as bed falls, bedsores, deep vein thrombosis, and urinary infections, which persist even after discharge. One of the most common complications, making the patient seek help from family members, is urinary tract infection (UTI) (9)(10)(11), as the most common type of infection, accounting for about 40% of hospital-acquired infections in the United States. Odgaard et al showed that UTIs are among the most common complications in TBI patients (10), which are most commonly associated with the use of urinary catheters and lead to the death of approximately 13,000 patients per year, causing substantial costs for countries (12).…”

Section: Introductionmentioning

confidence: 99%

The Effect of Home-Based Education on the Occurrence of Urinary Tract Infections in Patients with Traumatic Brain Injury Discharged from the Hospital

et al. 2023

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Background: Urinary tract infections (UTIs) are common in patients with traumatic brain injury (TBI) due to their inability to take care of themselves. Thus, families have a main role in caring for these patients. Objectives: This study sought to examine the effects of home-based education on the incidence of UTIs and bedsores in patients with TBI discharged from the hospital. Methods: This quasi-experimental study was conducted on 50 patients with TBI admitted to Khatam Al-Anbia Hospital in Zahedan in 2022 and their caregivers. The participants were selected through convenience sampling among those meeting our inclusion criteria and randomly divided into the intervention and control groups. Caregivers in the intervention group received face-to-face home-based training on the second and fifth days after discharge (i.e., two 45-minute sessions). The participants in the intervention group also received educational pamphlets and videos in the patient’s living environment. The participants in the control group received routine care. After four weeks, urine samples from the patients in the two groups were cultured, and the growth of organisms and the number of colonies were determined. If the number of colonies was 105 per mL or more, the test was considered positive, confirming the presence of UTI. The data were analyzed by SPSS 21 software using appropriate statistical tests at a significance level of less than 0.05 (P < 0.05). Results: The results showed that 28% and 64% of the patients in the intervention and control groups were positive for UTIs, respectively. The result of the Chi-square test indicated a statistically significant difference between the two groups in terms of the incidence of UTIs (P = 0.01). Conclusions: Home-based education for traumatic brain injury patients and their caregivers can be effective in reducing the incidence of UTIs after discharge from the hospital and should be incorporated into nursing care programs at the time of the patient’s discharge.

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Women Family Members’ Experiences of Involvement in Adult Inpatient Traumatic Brain Injury Rehabilitation

Abstract: Background: Traumatic Brain Injury (TBI) rehabilitation is an intensive process aimed at reducing disability. The experience of care is lived not only by the patient with TBI, but by the family as well.

Cited by 2 publications

References 17 publications

Community Caring for a Family Member With Brain Injury: Women’s Lived Experiences

Community Caring for a Family Member With Brain Injury: Women’s Lived Experiences

The Effect of Home-Based Education on the Occurrence of Urinary Tract Infections in Patients with Traumatic Brain Injury Discharged from the Hospital

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