Women's experience of care at a specialised miscarriage unit: an interpretative phenomenological study

Tsartsara, Eirini; Johnson, Martin P.

doi:10.1016/s1361-9004(02)00028-6

Cited by 21 publications

(6 citation statements)

References 36 publications

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“…Overall, positive experiences with the healthcare system led to both increased support group participation and improved grief [67], whereas insensitive treatment led to psychological distress and worsened grief [74]. These findings have also been reported in studies on women's experiences of pregnancy/neonatal loss, where social support and experiences with the healthcare system have consistently been found to be key factors in determining both immediate grief and long-term psychological health [1,[114][115][116][117]. This review also identified the 'supporter role' as a consistent and important aspect of men's grief.…”

Section: Main Findings and Implicationsmentioning

confidence: 79%

Men’s grief following pregnancy loss and neonatal loss: A systematic review and emerging theoretical model

Obst

Due

Oxlad

et al. 2019

Preprint

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Background Emotional distress following pregnancy loss and neonatal loss is common, with enduring grief occurring for many parents. However, little is known about men’s grief, since the majority of existing literature and subsequent bereavement care guidelines have focused on women. To develop a comprehensive understanding of men’s grief, this systematic review sought to summarise and appraise the literature focusing on men’s experiences of grief following pregnancy loss and neonatal loss.Methods Systematic searches were completed across four databases (PsycINFO, PubMed, Embase and CINAHL), guided by two research questions: 1) what are men’s experiences of grief following pregnancy/neonatal loss; and 2) what are the predictors of men’s grief following pregnancy/neonatal loss? Eligible articles were qualitative, quantitative or mixed methods empirical studies including primary data on men’s grief, published between 1998 and October 2018. Eligibility for loss type included any definition of miscarriage or stillbirth, and neonatal death up to 28 days after a live birth.Results A final sample of 46 articles were identified, of which 26 were qualitative, 19 quantitative, and one mixed methods. Findings indicate that men’s grief experiences are highly varied, and current grief measures may not capture all of the complexities of grief for men. Qualitative studies identified that in comparison to women, men may face different challenges including expectations to support female partners, and a lack of social recognition for their grief and subsequent support needs. Men may face double-disenfranchised grief in relation to the pregnancy/neonatal loss experience.Conclusion To refine an emerging socio-ecological model of men’s grief, cohort studies are needed among varied groups of bereaved men to confirm grief-predictor relationships. There remains a need to promote genuine and consistent involvement of fathers as equal partners throughout pregnancy and childbirth. Likewise, engaging men early in the grief process is essential to providing recognition and validation to their experience, and improving awareness of available support services.

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Section: Main Findings and Implicationsmentioning

confidence: 79%

Men’s grief following pregnancy loss and neonatal loss: A systematic review and emerging theoretical model

Obst

Due

Oxlad

et al. 2019

Preprint

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show abstract

“…However, while the impact of cultural diversity is yet to be explored in men, cross-cultural studies with women highlight a range of culturally-specific understandings and practices relating to the loss of a baby that can impact upon grief [105][106][107][108][109]. Finally, social support and experiences with the healthcare system have been linked to both immediate grief and long-term psychological health for women [1,[110][111][112][113].…”

Section: Predictors Of Griefmentioning

confidence: 99%

Men’s grief following pregnancy loss and neonatal loss: a systematic review and emerging theoretical model

Obst

Due

Oxlad

et al. 2020

BMC Pregnancy Childbirth

113

104

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Background: Emotional distress following pregnancy loss and neonatal loss is common, with enduring grief occurring for many parents. However, little is known about men's grief, since the majority of existing literature and subsequent bereavement care guidelines have focused on women. To develop a comprehensive understanding of men's grief, this systematic review sought to summarise and appraise the literature focusing on men's grief following pregnancy loss and neonatal loss. Methods: A systematic review was undertaken with searches completed across four databases (PubMed, PsycINFO, Embase, and CINAHL). These were guided by two research questions: 1) what are men's experiences of grief following pregnancy/neonatal loss; and 2) what are the predictors of men's grief following pregnancy/neonatal loss? Eligible articles were qualitative, quantitative or mixed methods empirical studies including primary data on men's grief, published between 1998 and October 2018. Eligibility for loss type included miscarriage or stillbirth (by any definition), termination of pregnancy for nonviable foetal anomaly, and neonatal death up to 28 days after a live birth. Results: A final sample of 46 articles were identified, including 26 qualitative, 19 quantitative, and one mixed methods paper. Findings indicate that men's grief experiences are highly varied, and current grief measures may not capture all of the complexities of grief for men. Qualitative studies identified that in comparison to women, men may face different challenges including expectations to support female partners, and a lack of social recognition for their grief and subsequent needs. Men may face double-disenfranchised grief in relation to the pregnancy/neonatal loss experience. Conclusion: There is a need to increase the accessibility of support services for men following pregnancy/neonatal loss, and to provide recognition and validation of their experiences of grief. Cohort studies are required among varied groups of bereaved men to confirm grief-predictor relationships, and to refine an emerging socio-ecological model of men's grief.

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“…These aspects included having to wait long periods for scans and surgery (Moulder 1998, Sehdev & Wilson 2000) and poor information giving and advice (Moohan et al. 1994, Corbet‐Owen & Kruger 2001, Tsartsara & Johnson 2002). Additionally, some women felt that their miscarriage was not regarded as important by hospital staff and felt abandoned (Malacrida 1998, Adolfsson et al.…”

Section: Introductionmentioning

confidence: 99%

Negotiating the transition: caring for women through the experience of early miscarriage

Murphy

Merrell

2009

Journal of Clinical Nursing

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Women's experience of care at a specialised miscarriage unit: an interpretative phenomenological study

Cited by 21 publications

References 36 publications

Men’s grief following pregnancy loss and neonatal loss: A systematic review and emerging theoretical model

Men’s grief following pregnancy loss and neonatal loss: A systematic review and emerging theoretical model

Men’s grief following pregnancy loss and neonatal loss: a systematic review and emerging theoretical model

Negotiating the transition: caring for women through the experience of early miscarriage

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