Work Barriers and Job Adjustments of People with Multiple Sclerosis: A Systematic Review

Vitturi, Bruno Kusznir; Rahmani, Alborz; Dini, Guglielmo; Montecucco, Alfredo; Debarbieri, Nicoletta; Bandiera, Paolo; Ponzio, Michela; Battaglia, Mario Alberto; Brichetto, Giampaolo; Inglese, Matilde; Persechino, Benedetta; Durando, Paolo

doi:10.1007/s10926-022-10084-1

Cited by 13 publications

(8 citation statements)

References 59 publications

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“…Kusznir Vitturi et al [ 12 ] provides a detailed systematic review of the work barriers and job adjustments experienced by people with Multiple Sclerosis (MS), highlighting the diverse challenges faced by individuals with MS in the workplace, including job characteristics, work environment factors, social relationships, negative work events, and emphasizes the importance of tailored job adjustments, such as workload management, flexible work schedules, workplace adaptations, and vocational rehabilitation services, to promote better work outcomes. Also in another review Kusznir Vitturi et al [ 13 ] conducted a comprehensive analysis of the potential impact of various factors, including demographic variables, disease severity, and types of work barriers, on the occupational outcomes of people with MS. It discusses the importance of identifying and addressing specific work barriers, utilizing appropriate job adjustments, and promoting supportive workplace environments to enhance the employment prospects and job retention of individuals with MS.…”

Section: Resultsmentioning

confidence: 99%

Determinants of social participation in people with disability

Pasin,

Dogruoz Karatekin

2024

PLoS ONE

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Purpose In this study, it is aimed to determine personal wellbeing and social participation levels across different physical disability types and levels of mobility. Methods A sample of 85 individuals with physical disabilities, excluding those with mental disabilities were included. Sociodemographics, mobility of the participants, cause, duration of disability were recorded. Personal Wellbeing Index-Adult (PWI-A) scale was used for the assessment of wellbeing and Keele Assessment of Participation (KAP) for social participation. Results Female, single, unemployed subjects and individuals with neurologic disability showed significantly higher median KAP-scores(p = 0.009, p = 0.050, p<0.001, p = 0.050, respectively).The median KAP-score of the independently mobile group was significantly lower compared to the other two groups (p = 0.001). The factors affecting KAP were determined as employment, mobility level and personal wellbeing (p = 0.002, p = 0.024, p = 0.050, respectively). Conclusion Mobility level, employment and personal wellbeing are the determinants of social participation in people with disabilities. Neurological disability, female gender, being single, unemployment and mobility limitations are factors that reduce social participation.

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Section: Resultsmentioning

confidence: 99%

Determinants of social participation in people with disability

Pasin,

Dogruoz Karatekin

2024

PLoS ONE

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“…Furthermore, another limitation is that this study does not provide data on the type of job activity which would show the distribution of PwMS in different areas of work in relation to disease course and treatment. In addition, specific conditions at work such as possibilities for adaptation 35 and work barriers 36 could be important for an individual’s possibilities to continue working. While the use of sequence analysis provided an illustrative approach to describe DMT use trends, its inability to accommodate the impact of time-varying variable on clusters is a notable limitation.…”

Section: Discussionmentioning

confidence: 99%

Recent trends in disease-modifying therapy use and associated sickness absence and disability pension among people with multiple sclerosis in Sweden

Teni,

Machado,

Fink

et al. 2024

Mult Scler

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Background: Disease-modifying therapies (DMTs) have led to improved health and work productivity among people with multiple sclerosis (PwMS). Objectives: To describe trajectories of recent DMT use and their association with sickness absence and/or disability pension (SADP) among PwMS in Sweden. Methods: A longitudinal register–based study was conducted among 1395 PwMS with treatment start in 2014/2015. While DMT use over 5 years was assessed using sequence analysis resulting in four clusters, a 7-year (Y−2 toY4) trend of SADP was analyzed using zero-inflated negative binomial regression. Results: Four clusters of DMT use trajectories were identified: long-term non-high-efficacy (483, 34.6%), long-term high-efficacy (572, 41%), escalation (221, 15.8%), and discontinuation (119, 8.5%). Progressive MS and higher expanded disability status scale scores were associated with the escalation, long-term high-efficacy, or discontinuation clusters. PwMS in the long-term high-efficacy and escalation clusters had higher likelihood of being on SADP. However, PwMS initiating high-efficacy DMTs demonstrated steeper decline in SADP than others. Conclusion: Using sequence analysis, this study showed recent DMT use trajectories among PwMS where initiation of high-efficacy DMTs has become more common. The trend of SADP was stable and lower in those using non-high-efficacy DMTs and larger improvements were shown in those initiating high-efficacy DMTs.

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“…This observation may be explained by the implementation and effectiveness of reasonable job accommodations for PwMS. The scientific literature has already described the variety of possibilities of job accommodations that can be applied to the reality of workers with MS to avoid adverse occupational outcomes ( 10 ). Moreover, laws, public policies, and collective agreements stimulated by the authorities may have contributed to preventing the definitive withdrawal of disabled workers from the labor force during this period ( 75 , 76 ).…”

Section: Discussionmentioning

confidence: 99%

“…Moreover, difficulties inherent to any job position that may be easily endured by workers, in general, can be unsustainable for PwMS and may play a crucial role in the risk of unemployment. Similarly, PwMS usually require several types of reasonable accommodations to promote the maximum integration of the worker into the workplace ( 10 ). PwMS have higher rates of unemployment and early retirement ( 11 ).…”

Section: Introductionmentioning

confidence: 99%

Occupational outcomes of people with multiple sclerosis during the COVID-19 pandemic: a systematic review with meta-analysis

Vitturi,

Rahmani,

Montecucco

et al. 2023

Front. Public Health

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BackgroundPeople with Multiple Sclerosis (PwMS) are vulnerable to unfavorable occupational outcomes and the COVID-19 pandemic brought major consequences on people’s professional lives. In this view, we decided to investigate the occupational outcomes of PwMS during the COVID-19 pandemic.MethodsWe performed a systematic review with meta-analysis searching key terms in four databases. We initially included any peer-reviewed original article that enrolled adult patients with the diagnosis of MS and assessed any occupational variable during the COVID-19 pandemic. There were no time limits and no language restrictions. The primary outcomes were the prevalence of unemployment, retirement and employment status change among people with MS during the COVID-19 pandemic. Other outcomes included the modality and characteristics of work: type of work, full-time work, part-time work and remote work. We also searched for data from studies that addressed any change in the work status due to the COVID-19 outbreak.ResultsWe identified 49 eligible articles comprising a total sample size of 17,364 individuals with MS. The pooled prevalence of unemployment and retirement was 0.47 (95% CI = 0.42–0.53). The pooled prevalence of PwMS who were unemployed or retired was positively associated with the progressive phenotype of the disease (p = 0.017) and the use of glatiramer acetate (p = 0.004), but negatively associated with hospitalization due to COVID-19 (p = 0.008) and the use of immunosuppressants (p = 0.032), siponimod (p < 0.001), and cladribine (p = 0.021). The pooled proportion of PwMS that reported any change of the employment status during the COVID-19 pandemic was 0.43 (95% CI = 0.36–0.50) while the pooled prevalence of PwMS who worked remotely during this period was 0.37 (95% CI = 0.15–0.58). The change in employment status was negatively associated with the duration of MS (p = 0.03) but positively associated with the progressive phenotype of the disease (p < 0.001).ConclusionOur seminal review may serve as an example of how patients with neurological diseases or disabilities in general may have their jobs impacted in a pandemic and foster the context of global socio-economic crisis.

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Work Barriers and Job Adjustments of People with Multiple Sclerosis: A Systematic Review

Cited by 13 publications

References 59 publications

Determinants of social participation in people with disability

Determinants of social participation in people with disability

Recent trends in disease-modifying therapy use and associated sickness absence and disability pension among people with multiple sclerosis in Sweden

Occupational outcomes of people with multiple sclerosis during the COVID-19 pandemic: a systematic review with meta-analysis

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