'Working at Disability': A qualitative study of the meaning of health and disability for women with physical impairments

Tighe, C.

doi:10.1080/09687590120059513

Cited by 36 publications

(19 citation statements)

References 7 publications

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“…Qualitative examinations of the meaning of health and disability for women with disabilities revealed them to spend tremendous energy struggling and coping with negative disability stereotypes in society and negotiating the barriers and intolerant attitudes they encountered daily. 76 Other concerns reported, including in our previous study of women aging with longterm disabilities, include sexual and reproductive issues, attitudinal barriers and a health care system that is unaware and poorly equipped to deal with their needs. 1,69 ± 71,73 ± 75 In conclusion, our research suggests that women with spinal cord injury have unique concerns and experiences with life with a disability and facing aging.…”

Section: Discussionmentioning

confidence: 99%

Women with spinal cord injury and the impact of aging

et al. 2002

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Objectives: The objectives of this study were to describe what women with longstanding spinal cord injury (SCI) feel they are experiencing as they age, how they are coping and what they require in order to ensure their continued social and economic participation in society. Study design, methods and setting: A naturalistic approach was taken, incorporating three focus groups (n=10) and key informant interviews (n=19) of women with SCI ranging in age from 31 to 70 years and living in rural and urban communities in Ontario, Canada. Results: The women feel isolated and sense many of their key concerns are ignored or dismissed by health care and service providers. The common physical changes and concerns were gynecological/sexual and bowel and bladder issues. Socio-emotional changes with age included impact of their age-related changes on important relationships and re-evaluation of personal priorities. They articulated worries including declining health, increasing dependency and ®nancial stresses. Additional resources they need to age successfully include improved environmental accessibility, assistive devices, more¯exible and responsive attendant and household support, access to recreation and ®tness opportunities and peer and psychological support. Conclusions: Many of the issues raised by the women were consistent with the authors' previous examination of aging in men with SCI and women with disabilities. The most striking dierence was their profound sense of isolation and perceptions that health care and service providers were unprepared or unwilling to address the unique issues they face as women living and now aging with SCI. Sponsorship: This research was funded by the Ontario Neurotrauma Foundation.

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Section: Discussionmentioning

confidence: 99%

Women with spinal cord injury and the impact of aging

et al. 2002

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“…Regardless of whether one's disability was a defining or non-defining entity of the self, all eighteen women with a congenital disability shared one commonality, disability was part of their biography, part of their everyday experiences, a normal characteristic of the self, an entity that informed their assumptive world and life course. philosophy it suggests that there is no casual relationship between impairment and disability rather disability is conceptualised as a construct of society and such a construct is the result of multiple factors within society (Tighe 2001, McClimens 2005. Disability is not related to a variant of the human pathology or psychology but is manifested as an outcome of social barriers that are oppressive and discriminatory.…”

Section: Disability As a Defining Entity Of The Selfmentioning

confidence: 99%

“…25 Drawing on a realist philosophy the model suggests that there is no casual relationship between impairment and disability rather disability is conceptualised as a construct of society (Tighe 2001, McClimens 2005. It does not consider disability to be a variant of an individual's pathology or psychology; it conceives it to be an outcome of oppressive and discriminatory social obstacles.…”

Section: Biopsychosocial Construction Of Disabilitymentioning

confidence: 99%

(Re)constructing Myself: the process of transition to motherhood for women with a disability

Lawler

Begley

Lalor

2015

Journal of Advanced Nursing

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Aim This paper presents a substantive theory that explains the transition to motherhood for women with a disability. Background Over the last thirty years, interest in exploring women's experiences of motherhood has increased. Extant theories on transition to motherhood originate, primarily, from the perspective and experiences of non‐disabled women with few exploring the phenomenon from the perspective and experiences of women with a disability. Those that do tend to focus on issues of accessibility, profiling the challenges that women with a disability encounter while accessing maternity services, attaining a maternal role and fulfilling the requirements of that role. Little is known about the experiences of women with a disability and their transition to motherhood and even less about the relationship of this process on the self. Design The study was conducted using a Strauss and Corbin approach to grounded theory. Method Individual interviews (n = 22) were conducted over 4 years (2008–2012). Women were interviewed during pregnancy and in the postnatal period. All interviews were recorded, transcribed verbatim, imported into Nvivo 8 and analysed using the constant comparative method. Findings The substantive theory that emerged from the study provides a conceptual framework clinicians can reference when counselling, assisting and facilitating women with a disability during their preparation for and transition to motherhood. Conclusion The substantive theory presented in this paper will increase clinicians' understanding of the process involved in the transition to motherhood for women with a disability.

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“…The historical perception that people with MR are essentially unhealthy [Tighe, 2001] has resulted in a palliative rather than preventive approach to health care for these individuals. Other services for people with MR, such as housing and employment, have evolved significantly in the past two decades, with movement away from institutional, segregated settings toward integration as fully contributing members of society [Wehmeyer and Bolding, 2001].…”

mentioning

confidence: 99%

“…Central to these documents are two paradigm shifts: (1) from a medical model that disability is a biological abnormality requiring treatment to the concept that disability occurs primarily within the context of psychological, social, and environmental constraints that may interfere with functioning [Bickenbach et al, 1999] and (2) from the notion that health is defined as the absence of disability or disease to viewing health as a global state of social, emotional, and mental well being [Rimmer, 1999]. As such, people with MR are no longer considered inherently "sick" and the presence of a diagnosis does not singularly predispose an individual to poor health [Tighe, 2001].…”

mentioning

confidence: 99%