Working with carers in the next decade: the challenges

Jarvis, Alison

doi:10.12968/bjcn.2010.15.3.46900

Cited by 3 publications

(3 citation statements)

References 17 publications

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“…Accepting outside help may mean facing up to the fact that the patient is seriously ill [26]. Therefore, working with, and recognising carers as equal partners early in the illness trajectory may help to alleviate some of these issues [47]. Anticipatory care planning involving carers could encourage them to think about the future and put strategies in place to manage competing demands.…”

Section: Discussionmentioning

confidence: 99%

Understanding the barriers to identifying carers of people with advanced illness in primary care: triangulating three data sources

et al. 2014

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BackgroundApproximately 10% of the UK population have an unpaid caring role for a family member or friend. Many of these carers make a significant contribution to supporting patients at the end of life. Carers can experience poor physical and psychosocial wellbeing, yet they remain largely unsupported by health and social care services. Despite initiatives for general practices to identify carers and their needs, many remain unidentified. Neither are carers self-identifying and requesting support. This study set out to explore the barriers to, and consider strategies for, identifying carers in primary care.MethodsWe integrated findings from three data sources – a review of the caregiving literature; a workshop with researchers who have undertaken research with those caring at the end of life, and focus groups with carers and health professionals.ResultsThree categories of barrier emerged. 1) Taking on the care of another person is often a gradual process, carers did not immediately identify with being a ‘carer’ – preferring to think of themselves in relational terms to the patient e.g. spouse, sibling, son or daughter. Often it was health and social care professionals who encouraged carers to consider themselves as an unpaid carer. 2) As the cared-for person’s condition deteriorated, the caring role often became all-encompassing so that carers were managing competing demands, and felt unable to look after their own needs as well as those of the cared-for person. 3) There was ambiguity about the legitimacy of carer needs and about the role of the primary health care team in supporting carers, from both the perspective of the carers and the health professionals. GPs were thought to be reactive rather than proactive which discouraged carers from asking for help.ConclusionsThe needs of carers have to be legitimised to ensure primary care staff are proactive in their approach and carers are empowered to utilise the support available. Strategies to identify carers have to be sensitive to the complex dynamics of a caring relationship as well as the primary care context. Identification is a key factor in improving support for carers themselves and to enable them to support the patient.

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Section: Discussionmentioning

confidence: 99%

Understanding the barriers to identifying carers of people with advanced illness in primary care: triangulating three data sources

et al. 2014

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“…This concurs with earlier work from Sweden (Hanson, Magnusson, & Nolan, 2008), promoting strengths-based and outcomes-focused planning. Work to embed outcomes-based support planning has been promoted for several years in Scotland, where there is an evidence of improved partnership between carers and services and stronger links between maintenance of carer identity and decision-making (Jarvis, 2009; Miller, 2012; Miller & Barrie, 2016; Tsegai & Gamiz, 2014). The exchange model of assessment, which promotes partnership between the person being cared for, the carer, practitioner, and organisation, has been critical to underpinning the principles of the approach (Miller, 2012).…”

Section: Personal Outcomes and Carersmentioning

confidence: 99%

“I Know Who I Am; the Real Me, and That Will Come Back”

MacBride

Miller

Dewar

2017

Illness, Crisis & Loss

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“…In the present climate of an increasing older population and service restrictions, it is important to find out the outcomes which unpaid carers value. This will assist services to deliver and target resources effectively (Jarvis, 2010). Community occupational therapists aim to promote the independence of individuals through the provision of equipment and adaptations.…”

Section: Bryden L Glasgow City Councilmentioning

confidence: 99%