Working with children with cortical visual impairment who use augmentative and alternative communication: implications for improving current practice

Luo, Fei; Blackstone, Sarah W.; Canchola, Jesse; Roman-Lantzy, Christine

doi:10.1080/07434618.2022.2085622

Cited by 7 publications

(4 citation statements)

References 40 publications

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“…After the experience of the COVID-19 pandemic, it seems to make sense to complement the intervention with digital communication channels. Furthermore, it might be useful to integrate models of interprofessional education (IPE) and interprofessional collaborative practice (IPCP) into future interventions, as also recommended in the publication by Lou et al 9 Since this study focuses on intermediate outcomes, namely the impact of the intervention on collaboration, future studies should expand on the impact of the intervention and hence improved collaboration on patient outcomes such as pragmatic communication skills, quality of life, and participation.…”

Section: Discussionmentioning

confidence: 99%

“…As one exemplary area of care for persons with complex health needs, AAC requires the integration of a variety of heterogeneous stakeholders to be able to meet the complex care needs of many people who rely on AAC. [7][8][9] People who -due to either congenital conditions, such as Down syndrome and autism spectrum disorder, or acquired disabilities, such as stroke and traumatic brain injury -have complex care and communication needs often rely on AAC. [10][11][12] A variety of AAC systems exist and can be broadly divided into unaided AAC systems (eg, gestures) and aided AAC systems (eg, electronic devices with voice output).…”

Section: Collaboration In Augmentative and Alternative Communication ...mentioning

confidence: 99%

“…22 Results from other studies confirm the relevance of collaboration in AAC care. 9,21,[24][25][26][27][28]…”

mentioning

confidence: 99%

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“Finding Common Ground” – Impact of a Complex Intervention on Collaboration in Augmentative and Alternative Communication Care of People without Natural Speech

Uthoff¹,

Zinkevich²,

Boenisch³

et al. 2022

JMDH

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Purpose Many care settings are characterized by collaboration between a variety of stakeholders. People without natural speech who rely on augmentative and alternative communication (AAC) are often strongly dependent on the involved stakeholders and collaboration among them. Since collaboration can be challenged by many barriers, this study examines the impact of a complex intervention on collaboration in AAC care. Methods In a quasi-experimental mixed methods intervention study which include AAC training, AAC therapy and case management, caregivers of AAC users were surveyed at 3 time points to assess collaboration and case management in the intervention versus comparison group. In addition, semi-structured focus group interviews were conducted with caregivers in the intervention group. Quantitative data were analyzed descriptively and by comparison of means. Qualitative data were analyzed using qualitative content analysis. Results The Mann–Whitney U -test showed significantly better collaboration in the intervention group with stakeholders that are more actively involved in AAC care, such as schools (p=0.026) and residential or social facilities (p=0.010), but not with passive stakeholders such as health insurance companies. Most aspects of case management were rated significantly better in the intervention group (p<0.001). The focus group results show mainly positive changes in collaboration with the active stakeholders, such as more commitment and openness toward AAC. Conclusion The results show a positive impact of the intervention on the collaboration between stakeholders involved in AAC care – especially with active stakeholders. In particular, the organization of care and the accompanying case management by the AAC consultation centers seem to positively affect collaboration.

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Section: Discussionmentioning

confidence: 99%

Section: Collaboration In Augmentative and Alternative Communication ...mentioning

confidence: 99%

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“Finding Common Ground” – Impact of a Complex Intervention on Collaboration in Augmentative and Alternative Communication Care of People without Natural Speech

Uthoff¹,

Zinkevich²,

Boenisch³

et al. 2022

JMDH

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“…Speech therapists, teachers, and occupational therapists were included in this study. Results concluded that professionals lack adequate knowledge and experience about the use of AAC devices with children with visual impairment [17].…”

Section: Introductionmentioning

confidence: 99%

The role of speech therapists for children with visual impairment: A thematic analysis

Gul,

Ijaz,

Kiyani

2024

T Rehabili. J.

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Background: Visual impairment creates adverse effects on the affected individual and on his family. Speech therapists played an essential role in the development of children who had communication problems. Objective: To explore the perceptions of special education teachers and speech pathologists about role of speech therapists in children with visual impairment. Methodology: A qualitative study on exploring the role of speech pathologists in visual impairment was conducted in Rawalpindi and Islamabad region in 2022. Purposive sampling was used to include 8 speech therapists and 7 special education teachers. Speech pathologists having minimum qualification of MS/SLP or PGD and Special education teachers with minimum qualification of master’s in special education with a minimum two years of experience were included. Open-ended questions were developed, and data was gathered by using semi-structured interviews. Recordings were done after informed consent. Thematic analysis was done to generate the themes. Results: Four major themes were identified by both professionals. These include 1) the need for guidance for professionals 2) auditory and tactile orientations for the development of language 3) scarce resources in therapy, 4) the need for training for professionals who are working with visually impaired children. Conclusion: Speech therapists had a vital role in developing communication of children with visual impairment. Professionals suggested that speech therapists should work with children with VI as they work with sighted children. Keywords: Speech therapistsspecial education teachersvisual impairment

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Profiles of Children With Cortical Visual Impairment Who Use Augmentative and Alternative Communication: A Retrospective Examination

Blackstone

Luo

Barker

et al. 2022

Am J Speech Lang Pathol

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Purpose: Cortical visual impairment (CVI) is the most common cause of visual impairment in children today and can impact the outcomes of children who rely on augmentative and alternative communication (AAC). This study provides baseline data of 13 children with CVI who used AAC during their first year of participation in an integrated CVI program. One purpose was to describe similarities and differences in the student's demographic, functional vision, communication, and educational profiles. A second purpose was to examine differences in students described with different communicator profiles. Method: Archived student records were de-identified and reviewed using a systematic coding scheme. Two researchers independently reviewed and coded all student records. Reliability was established. Measures included CVI Range scores; supports for positioning, mobility, vision, and writing; AAC systems, including modes, access methods, and language representation; communicative competence; self-determination; literacy; and mathematics. Results: The study yielded a rich description of similarities and differences among students at baseline and led to careful consideration of differences among the participants with emergent communicator and context-dependent communicator profiles. Conclusions: Currently, limited evidence exists that informs practice regarding AAC assessment and intervention for children with CVI. This article describes a small sample of children with CVI who use AAC. Results underscore the need for educators and practitioners to ensure that vision functioning in students with CVI is evaluated carefully and regularly when conducting AAC assessment and intervention and formulating communication or education goals. Supplemental Material: https://doi.org/10.23641/asha.213576840

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Working with children with cortical visual impairment who use augmentative and alternative communication: implications for improving current practice

Cited by 7 publications

References 40 publications

“Finding Common Ground” – Impact of a Complex Intervention on Collaboration in Augmentative and Alternative Communication Care of People without Natural Speech

“Finding Common Ground” – Impact of a Complex Intervention on Collaboration in Augmentative and Alternative Communication Care of People without Natural Speech

The role of speech therapists for children with visual impairment: A thematic analysis

Profiles of Children With Cortical Visual Impairment Who Use Augmentative and Alternative Communication: A Retrospective Examination

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