Worries about Alzheimer’s Disease and Subjective Cognitive Decline in Proxies of AD Patients and Controls

Philipps, Annika; Müller, Silke M.; Preische, Oliver; Laske, Christoph

doi:10.4172/2161-0460.1000302

Cited by 2 publications

(1 citation statement)

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“…First published online 13 Oct 2020 fear of perceiving normal cognitive changes as indications of dementia. Since then, the terms "dementia fear" (Cantegreil-Kallen and Pin, 2011;Ebert et al, 2019;Norman et al, 2019;Page et al, 2019), "dementia worry" (Fresson et al, 2017;Kessler et al, 2012;Kinzer and Suhr, 2016;Molden and Maxfield, 2016;Phillips et al, 2017;Ryu and Park, 2019;Wong et al, 2019), and "concerns about dementia" (Tang et al, 2017;Werner et al, 2013) have been used interchangeably, and almost exclusively to examine concerns about developing AD. Kessler and colleagues (2012) were the first to provide a clearer conceptualization of the construct by defining dementia fear as a multidimensional concept composed of cognitive (i.e.…”

Section: Literature Reviewmentioning

confidence: 99%

Fear about Alzheimer’s disease among Israeli and German laypersons, persons with Mild Neurocognitive Disorder and their relatives: a qualitative study

Werner

Ulitsa

Shephet

et al. 2020

Int. Psychogeriatr.

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Objectives: Alzheimer’s disease (AD), the most common type of dementia, is one of the most feared diseases, obstructing help-seeking, and leading to discrimination. While research interest in fear of developing AD is increasing, little is known about its characterization, triggers, and consequences, especially among different cultures. In this study, we aimed at exploring and characterizing AD fear as experienced by laypersons (LP), persons with Mild Neurocognitive Disorder (MND), and their relatives, in Israel and Germany. Design: A qualitative study using focus groups (FGs) and semi-structured interviews was used. Thematic content analysis was conducted to extract key themes. Setting: Israeli and German not yet diagnosed people. Participants: The study included a total of 130 participants (63 Israeli and 67 German participants) representing 3 groups: LP (n = 82), persons with MND (n = 28), and relatives of persons with MND (n = 20). Results: Two overarching themes were identified across groups and countries: fear of developing AD and fear of stigmatization. Other types of fear, such as fear of a person with AD, fear about the impact of a diagnosis of AD on family members, fear of becoming a caregiver, and fear of losing one’s self-determination because of developing AD, were specific to a group type or country. Different types of fear were awakened by different triggers, and were dealt with different coping strategies.

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