Written Education Materials for Stroke Patients and Their Carers: Perspectives and Practices of Health Professionals

Hoffmann, Tammy; McKenna, Kryss; Herd, Christopher; Wearing, Stewart

doi:10.1310/l251-wu34-6527-8037

Cited by 10 publications

(32 citation statements)

References 16 publications

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“…44 There is also evidence that stroke patients value receiving written health information. 30,45 Evidence, however, that people with aphasia post stroke value written media is lacking. People with aphasia have frequently been excluded from stroke education research 35,[45][46][47][48][49] ; in some cases researchers have not reported whether people with aphasia participated.…”

Section: Participantsmentioning

confidence: 99%

“…It was interesting to note that participants with more severe aphasia and/or reading diffi culties did not rate it signifi cantly more important for their signifi cant others to receive this written information compared to participants who had milder aphasia and/or reading difficulties. Researchers have previously identifi ed that stroke severity 30 and patients' communication skills 30,63 influenced health professionals' decisions to provide written information to stroke patients. The current fi ndings, however, indicate that health professionals should not make assumptions regarding who best to receive written stroke and aphasia information based on aphasia severity and/or reading ability.…”

Section: Did Participants Consider It Important For Their Signifi Canmentioning

confidence: 99%

“…The need for stroke information beyond the acute hospital setting is also well supported in the literature 20,30,31 ; researchers identify that the desire for information persists even several years post stroke. 19, 32 Hanger and colleagues 32 assert that "the nature of questions change with time but the need for information does not."…”

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confidence: 95%

“…30,[34][35][36] In the 2-year follow-up study by Hanger and colleagues, 32 nearly one fi fth of the participants requested similar information at the various interview times post onset (ie, at 2 weeks, 6 months, and 2 years post onset), highlighting the need for the same information to be repeated several times. Hanger and colleagues 32 also identifi ed that requests for basic information such as "What is a stroke?"…”

mentioning

confidence: 99%

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Do People With Aphasia Want Written Stroke and Aphasia Information? A Verbal Survey Exploring Preferences for When and How to Provide Stroke and Aphasia Information

Rose

Worrall

Hickson

et al. 2010

Topics in Stroke Rehabilitation

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A phasia can be defined as "the loss or impairment of language function." 1(p49) It is a multimodality disorder that manifests in difficulties with speaking, reading, and writing.1 Various studies have investigated the prevalence of aphasia resulting from stroke, estimating between 10% to 18% of stroke survivors will have aphasia long term.2-4 Given the language diffi culties encountered by people with aphasia, there is a growing recognition of the need to produce aphasia-friendly written health information.5-9 Aphasia-friendly information incorporates many of the recommendations for how best to format written information for stroke patients 10,11 but to an exaggerated degree. 12Preliminary research found that people with aphasia comprehended more health information when standard health information brochures and booklets were reformatted to contain simple words and short sentences, larger font, white space, and pictures. 6 Before further pursuing research in the area of aphasia-friendly text formatting, it is fundamental to determine whether people with aphasia wish to receive health information in written formats. "Virtually every variety of aphasia entails some diffi culty in oral reading or reading comprehension." 13(p60) Given this, and the wide variety of media available for patient education (eg, DVDs, Websites, verbal information), it should not be assumed that people with aphasia desire to receive health information in a written Purpose: Written health information can be better comprehended by people with aphasia if it is provided in an aphasiafriendly format. However, before pursuing research in the area of text-formatting for people with aphasia, it must be determined whether people with aphasia consider it helpful to receive health information in the written media. This study, therefore, aimed to determine the following: whether people with aphasia consider it important to receive written stroke and aphasia information; when people with aphasia prefer to receive this information; and what their preferences are for health information media. Method: Surveys were administered in a face-to-face interview with 40 adults with aphasia. Participants were purposefully selected using maximum variation sampling for a variety of variables including aphasia severity, reading ability, and time post stroke. Results: Participants thought it important to receive written information about both stroke and aphasia. They considered it helpful to receive written information at several stages post stroke, particularly from 1 month onwards. The largest proportion (97%) of participants identifi ed 6 months post stroke as the most helpful time to receive this information. Written information was the most preferred media at participants' present time post stroke (M = 39 months; range, 2-178 months). Videos/DVDs were the most preferred media during the 6 months immediately following the stroke. Conclusion: Despite reading and language diffi culties, participants considered written information to be important, hence people wi...

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Section: Participantsmentioning

confidence: 99%

Section: Did Participants Consider It Important For Their Signifi Canmentioning

confidence: 99%

mentioning

confidence: 95%

mentioning

confidence: 99%

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Do People With Aphasia Want Written Stroke and Aphasia Information? A Verbal Survey Exploring Preferences for When and How to Provide Stroke and Aphasia Information

Rose

Worrall

Hickson

et al. 2010

Topics in Stroke Rehabilitation

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“…Both they and their caregivers continue to need help obtaining self-care information many months and years after discharge [37,106]. According to several surveys, about 10% to 25% (depending on the category of SCAs) of patients recently discharged from a hospital [58], 75% of stroke patients at 6 months post discharge [59], 31% of cancer patients [141], and more than 60% of long-term cancer survivors [73] have unmet needs for self-care information.…”

Section: Overview Of Iphr's Sca Recommendation Functionmentioning

confidence: 99%

Open Issues in Intelligent Personal Health Record – An Updated Status Report for 2012

Luo

2013

J Med Syst

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To improve the capability and usability of the personal health record (PHR) as a tool to empower consumers in the management of their own health, we have proposed the concept of an intelligent PHR (iPHR) and built a prototype iPHR system with four functions. These four functions use various health knowledge and computer science techniques to automatically provide users with personalized healthcare information to facilitate their wellbeing. This paper discusses several open issues in iPHR, including two enhancements to an existing function and two potential new functions. The two enhancements are for automatically compiling relevant self-care activities for each health issue and automatically identifying contraindicated self-care activities, respectively. One potential new function is personalized search for individual healthcare providers. Another potential new function is personalized local search for health-related services to help maintain patients in their homes. We include some preliminary thoughts on how to address these open issues with the hope to stimulate future research work on iPHR.Keywords Personal health record  Self-care activity  Medical information extraction  Automatic contraindication identification  Personalized search for individual healthcare providers  Personalized local search for health-related services

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How to Choose and Develop Written Educational Materials

Pierce

2010

Rehabilitation Nursing

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Education is a key component of comprehensive rehabilitation care because it helps promote clients'healthy behaviors and recovery from diseases and injuries or adaptation to chronic conditions. Choosing to use written, organization-based, commercially generated, and Internet-based educational materials is dependent on credibility, readability, and availability. If these materials are unsuitable or no appropriate information on a topic is available, the decision to adapt existing material or design new materials must be made. Recommendations for developing readable materials center on having a clear purpose for writing about a topic; listening to patients; presenting accurate information that reflects accepted, common practice; and using a clear writing style. The strategies presented in this article are intended to help nurses and other healthcare professionals choose or develop educational materials for patients and their family members.

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Written Education Materials for Stroke Patients and Their Carers: Perspectives and Practices of Health Professionals

Cited by 10 publications

References 16 publications

Do People With Aphasia Want Written Stroke and Aphasia Information? A Verbal Survey Exploring Preferences for When and How to Provide Stroke and Aphasia Information

Do People With Aphasia Want Written Stroke and Aphasia Information? A Verbal Survey Exploring Preferences for When and How to Provide Stroke and Aphasia Information

Open Issues in Intelligent Personal Health Record – An Updated Status Report for 2012

How to Choose and Develop Written Educational Materials

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