Yolŋu with Machado–Joseph disease: Exploring communication strengths and needs

Amery, Rebecca; Wunungmurra, Julie Gungungbuy; Gondarra, Joanne; Gumbula, Farrah; Raghavendra, Parimala; Barker, Ruth; Theodoros, Deborah; Amery, Howard; Massey, Libby; Lowell, Anne

doi:10.1080/17549507.2019.1670863

Cited by 11 publications

(2 citation statements)

References 15 publications

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“…This proposed reform has not been taken up by Australia's National Disability Insurance Agency to date, however. It has also been reported elsewhere that individual care packages may not reflect Indigenous norms of collective decision‐making as they contain few opportunities for local decision‐making by Indigenous tribes, nations and communities (Amery et al, 2020 : 506; Gilroy et al, 2020 ).…”

Section: Discussionmentioning

confidence: 99%

Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature

Puszka

Walsh

Markham

et al. 2022

Health Social Care Comm

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Disability is experienced and understood by Indigenous people internationally in distinct ways from other populations, requiring different approaches in disability services. Furthermore, Indigenous populations access disability services at low rates. In response, policymakers, service providers and Indigenous organisations have developed specific models of care for Indigenous people with disability. Social care services, comprising personal care, transport and social activities, can support Indigenous people with disability to live with their families and in their communities. However, little is known about the range of social care models for Indigenous people with disability. To inform policy and practice, we conducted a scoping review of community‐based models of social care designed to meet the needs of Indigenous peoples in Australia, Aotearoa New Zealand, Canada and the United States. Our methods were informed by best practice scoping review principles and a collaborative approach that centred Indigenous voices within research appraisal and project governance processes. Literature searches (conducted March–April 2021) yielded 25 results reporting on 10 models of care. We identified two over‐arching themes (funding and governance arrangements; service delivery design) that encompass nine key characteristics of the included models. Our analysis shows promising practice in contextually relevant place‐based social activity programs, support and remuneration for family carers and workforce strategies that integrate Indigenous staff roles with kinship relationships and social roles. While more research and evaluation are needed, disability funding bodies and service systems that facilitate these areas of promising practice may improve the accessibility of social care for Indigenous peoples.

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Section: Discussionmentioning

confidence: 99%

Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature

Puszka

Walsh

Markham

et al. 2022

Health Social Care Comm

View full text Add to dashboard Cite

show abstract

“…There has been a growing realisation that merely translating AAC systems and resources such as vocabulary lists into other languages falls far short from ensuring contextual, cultural and linguistic relevance (Soto & Yu, 2014). Exploratory studies have therefore been conducted with persons with communication difficulties and their families from diverse linguistic and cultural groups in order to better understand their views and priorities regarding AAC (Amery et al, 2019;Kulkarni & Parmar, 2017;Tönsing, van Niekerk, Schlünz, & Wilken, 2019). Studies have been done on appropriate symbol and picture representations, as well as on text-to-speech and other human language technology that can be incorporated into speech generating devices, giving access to various spoken languages (Babic, Slivar, Car, & Podobnik, 2015;Baker & Chang, 2006;Bhattacharya & Basu, 2009;Schlünz et al, 2017).…”

Section: Introductionmentioning

confidence: 99%

Determining the core vocabulary used by Sepedi-speaking children during regular preschool activities

Mothapo

Tonsing

Morwane

2021

International Journal of Speech-Language Pathology

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Purpose: In order to provide equitable communication intervention and support services to clients from diverse cultural and linguistic backgrounds, the development of languagespecific resources for assessment and intervention is needed. The purpose of the study was to develop a core vocabulary list based on language samples from Sepedi-speaking children, in order to make it available as a resource to inform vocabulary selection for augmentative and alternative communication (AAC) systems for children in need of AAC from a Sepedi language background. Method: The speech of six typically developing Sepedi-speaking children aged 5 -6 years was recorded using small body-worn audio recording devices. Children were recorded during their regular preschool day. The recordings were transcribed, coded and analysed.

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Developing Augmentative and Alternative Communication Systems in Languages Other Than English: A Scoping Review

Amery

Thirumanickam

Barker

et al. 2022

Am J Speech Lang Pathol

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Introduction: Access to augmentative and alternative communication (AAC) systems in languages other than English and multilingual AAC systems remains limited for many people with complex communication needs, despite a growing interest in this field, and an acknowledged need for culturally responsive AAC practice. Purpose: The purpose of this scoping review was to identify published research that has reported on the development of components or whole AAC systems in languages other than English, and the linguistic and cultural factors that influenced research methods and AAC system development. Method: Nine databases were systematically searched for published research that presented development of components or whole AAC systems in languages other than English. The Mixed Methods Appraisal Tool was used to assess the quality of studies. Charted data from studies included journal and publication date, research team, language of AAC system, aims of the study, study methodologies, study participants, and type of AAC systems developed. An analytical framework was developed to identify the cultural and linguistic factors that influenced research methods and or AAC system outcomes. Results: A total of 22 studies were included (13 qualitative, one quantitative nonrandomized, six quantitative descriptive, and two mixed-methods studies). Overall quality of studies was high. Some qualitative studies were of lower quality due to limited analysis or interpretation of results. Linguistic factors were extensively reported in the existing literature, whereas cultural factors were rarely explicitly reported. Conclusion: Factors contributing to lack of reporting of cultural considerations are posited with suggestions for future research. Supplemental Material: https://doi.org/10.23641/asha.21482607

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Yolŋu with Machado–Joseph disease: Exploring communication strengths and needs

Cited by 11 publications

References 15 publications

Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature

Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature

Determining the core vocabulary used by Sepedi-speaking children during regular preschool activities

Developing Augmentative and Alternative Communication Systems in Languages Other Than English: A Scoping Review

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