“You Don't Want to Burden Them”

Cahill, Eileen; Lewis, Lena A.; Barg, Frances K.; Bogner, Hillary R.

doi:10.1177/1074840709337247

Cited by 104 publications

(31 citation statements)

References 61 publications

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“…When questioned, informal care recipients often report feeling guilty for needing assistance with daily living tasks or worrying about being a burden on their relatives (Barken, 2017;Cahill, Lewis, Barg, & Bogner, 2009;Lee, Barken, & Gonzales, 2018). When questioned, informal care recipients often report feeling guilty for needing assistance with daily living tasks or worrying about being a burden on their relatives (Barken, 2017;Cahill, Lewis, Barg, & Bogner, 2009;Lee, Barken, & Gonzales, 2018).…”

Section: Discussionmentioning

confidence: 99%

“…A different explanation for the negative effect of receiving informal care on life satisfaction could be the increasing dependence on one's relatives and friends who provide the informal care. When questioned, informal care recipients often report feeling guilty for needing assistance with daily living tasks or worrying about being a burden on their relatives (Barken, 2017;Cahill, Lewis, Barg, & Bogner, 2009;Lee, Barken, & Gonzales, 2018). Care recipients have also reported to prefer not to combine supportive family relationships with caregiving (Barken, 2017).…”

Section: Discussionmentioning

confidence: 99%

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Life satisfaction of informal care recipients: Findings from the German Ageing Survey

Zwar

König

Hajek

2019

British J Health Psychol

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Objectives. Global judgements of life satisfaction are a core aspect of subjective wellbeing, and of central relevance to understanding how those in need of care view their lives. Therefore, this study aimed to investigate the association between the receipt of informal care and life satisfaction in a longitudinal setting.Design. Longitudinal analysis of a population-based data set of community-dwelling individuals aged 40 years and older.Methods. Data from the German Ageing Survey were used (Waves 2002(Waves , 2008(Waves , 2011(Waves , 2014. Fixed effects regression analysis was implemented to investigate the longitudinal association between receipt of informal care (no/yes) and life satisfaction (Satisfaction with Life Scale), while controlling for sociodemographic data (e.g., age) and health-related factors (e.g., physical and mental health).Results. Results from fixed effects longitudinal models revealed that transitioning from not receiving informal care to receiving informal care predicted a decrease in life satisfaction. This result remained stable when specific types of receipt of informal care were used as predictors. Conclusions.Receiving informal care is associated with a decrease in life satisfaction, irrespective of the type of informal care received. These results highlight the necessity of taking the care recipient's perception into consideration, and indicate the imminent need for the care situation to be improved, if the life satisfaction of care recipients is to be maintained. Statement of contributionWhat is already known on the topic? In general, few studies investigate the care recipients' perspective regarding outcomes associated with the receipt of informal care. Particularly, studies on the association between receipt of informal care and life satisfaction, and especially longitudinal population-based studies, are rare. What does this study add?Evidence of a population-based longitudinal study in a sparsely investigated field of research Our longitudinal study found recipients of informal care to report reduced life satisfaction This negative association remained stable when investigating different tasks of informal careIn Germany, like in many other industrial countries, a demographic change is currently taking place. Due to this, the proportion of the population that is older is growing, while

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Life satisfaction of informal care recipients: Findings from the German Ageing Survey

Zwar

König

Hajek

2019

British J Health Psychol

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“…Not only did participants lose access to sources of support and assistance, but some also lost important roles in networks of exchange. Research suggests that for older adults, the ability to give, as well as receive support, is centrally important to well-being (Cahill, Lewis et al 2009). …”

Section: Discussionmentioning

confidence: 99%

“Everyone called me grandma”: Public housing demolition and relocation among older adults in Atlanta

Keene

Ruel

2013

Cities

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Over the last few decades public and political dissatisfaction with public housing projects and an increasing emphasis on poverty deconcentration has led to the demolition of public housing in cities across the country. A significant body of literature has examined experiences of relocation from public housing and their implications for the well-being of individuals and communities. While much of this literature has focused on young or middle-aged adults and children, older adults have also been affected by demolition and relocation. The displacement of older adults raises a new set of age and life-course specific concerns for the well-being of this population. In this paper, we analyze the relocation narratives of 25 former public housing residents in Atlanta, Georgia. Our analysis focuses on the loss of geographically rooted communities of kinship, support and belonging that many participants, particularly those who have aged in place, attribute to their former developments. Participants describe many material and psychosocial benefits associated with living in communities that were “like families” and where they often held important roles as respected elders. While some were satisfied with their moves, others describe the dispersal of these “families” as a deeply felt loss. While some were able to draw on support from children and grandchildren in their new homes, others describe experiences of profound isolation after relocation.

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“…This was also established in a study in the United States which showed that older adults do not want to bother relatives or other people in their social network. Older adults feel that these people are already busy with their jobs and their own lives, and taking care of an older relative may be a severe burden on them(Cahill, Lewis, Barg, & Bogner, 2009). This reluctance may prohibit the realisation of informal care even though these frail older adults may be in need of more care, support and social contacts.…”

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confidence: 99%

Care and support for older adults in The Netherlands living independently

Verver¹,

Merten²,

Robben

et al. 2018

Health Soc Care Community

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The growth in the numbers of older adults needing long-term care has resulted in rising costs which have forced the Dutch government to change its long-term care system. Now, the local authorities have greater responsibility for supporting older adults and in prolonging independent living with increased support provided by the social network. However, it is unclear whether these older adults have such a network to rely upon. The objective of this study was to gain insight into the providers of formal and informal care to older adults, and to assess possible differences between older adults who are frail and those who are not. In addition, we investigated their care and support needs. We used data from a quantitative survey using a cross-sectional design in different regions of the Netherlands from July until September 2014 (n = 181). Frailty was measured using the Tilburg Frailty indicator. To analyse the data chi-square tests, crosstabs and odds ratios were used for dichotomous data and the Mann-Whitney U-Test for nominal data. The number of formal care providers involved was significantly higher (median = 2) for those deemed frail than for those not deemed frail (median = 1), U = 2,130, p < .005. However, more than one-third of the respondents deemed frail did not get the care or support they needed (33.7%). There was a significant positive association between being frail and having an informal care provider (χ = 18.78, df = 1, p < .005). However, more than one-third of those deemed frail did not have an informal care provider (36.8%). One-third of older adults deemed to be frail did not have their needs sufficiently addressed by their care network. For a substantial part of this group of older adults, the informal network seems to be unable to support them sufficiently. Additional attention for their needs and wishes is required to implement the policy reforms successfully.

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“You Don't Want to Burden Them”

Cited by 104 publications

References 61 publications

Life satisfaction of informal care recipients: Findings from the German Ageing Survey

Life satisfaction of informal care recipients: Findings from the German Ageing Survey

“Everyone called me grandma”: Public housing demolition and relocation among older adults in Atlanta

Care and support for older adults in The Netherlands living independently

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