Young Adults and Parents’ Coping With Duchenne/Becker Muscular Dystrophy: A Focus Group Study
Siwar Makhoul Khoury,
Hadas Rosenne,
Netanya Mischel
et al.
Abstract:Duchenne and Becker muscular dystrophy (DBMD) are genetic disorders that are characterized by progressive muscle weakness. As such, individuals with DBMD may need constant assistance with medical and physical care, which is oftenE provided by their family members. An essential part of patients’ medical management and their parents’ care is to develop appropriate coping strategies. This study focuses on young adults in the developmental period of emerging adulthood and parents, aiming to obtain an in-depth unde… Show more
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