Young adults experiences of living with congenital heart disease

Berghammer, Malin; Dellborg, Mikael; Ekman, Inger

doi:10.1016/j.ijcard.2005.08.006

Cited by 46 publications

(44 citation statements)

References 17 publications

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“…Congenital heart diseases have several morphological abnormalities [1][2][3][4][5][6][7][8][9][10][11]and it is very important to recognize the spatial relationship of abnormal structures accurately before deciding on a surgical strategy [12][13][14][15][16][17]. Conventional angiogram has been considered a gold standard to evaluate the abnormal structures but the images are two-dimensional and sometimes it is difficult to recognize the complex spatial relationship of abnormalities three-dimensionally.…”

Section: Discussionmentioning

confidence: 99%

Coarctation of the descending aorta, patent ductus arteriosus, deficiency of right superior vena cava, and persistent left superior vena cava in a five-month infant demonstrated by multislice computed tomography

Uehara

Funabashi

Yasukawa

et al. 2007

International Journal of Cardiology

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Section: Discussionmentioning

confidence: 99%

Coarctation of the descending aorta, patent ductus arteriosus, deficiency of right superior vena cava, and persistent left superior vena cava in a five-month infant demonstrated by multislice computed tomography

Uehara

Funabashi

Yasukawa

et al. 2007

International Journal of Cardiology

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“…Rating of each PedQol domain is reported as mean, standard deviation, median, minimum, maximum and the interquartile area. Rating levels in each domain (never, rarely, often, always) were allocated to increasing negativity (1)(2)(3)(4) and were related to a specifi c percentage range ( Comparison between patients and controls was done by a matched pair analysis.…”

Section: Statisticsmentioning

confidence: 99%

Health Related Quality of life after Corrective Surgery for Congenital Heart Disease

Heusch

Calaminus²,

Kahl

et al. 2014

Klin Padiatr

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“…The family of the patient is also affected by this crisis (9). The patient may recover more slowly or have trouble resuming the activities of daily living (ADL) (40) and, in this process, family vulnerability is not unexpected. Participants in Dabirian et al's study reported having encountered family problems for a few months after surgery (41).…”

Section: Taking Medications Multiple Timesmentioning

confidence: 99%

“…In Rakhshan et al's qualitative study, "Hesitation in accepting life with a pacemaker" was one of the subthemes identified (20). Berghammer et al have claimed that patients had to strike a balance between being different and not being different; being sick and being healthy (40). These patients faced delays in their recovery, and they need emotional and practical advice from expert health care professionals (7).…”

Section: Taking Medications Multiple Timesmentioning

confidence: 99%

Living Within Limits: Unpleasant Experiences From the Perspective of Patients After Cardiac Surgery, a Content Analysis Study

Pourghane

Hosseini

Mohammadi

et al. 2014

Jundishapur J Chronic Dis Care

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Background: Cardio vascular diseases (CVDs) are the main cause of death around the world and coronary artery bypass grafting (CABG) has proven to be the most effective treatment for ischemic coronary heart diseases when other treatments are ineffective. Despite the perceived improvement in the health of patients undergoing CABG, there are problems that result from operations after they are discharged from hospital. Provision of information is an integral part of most psychological interventions. Having a clearer understanding of patients' experiences will be helpful to healthcare workers with respect to patients' care and education planning. Caring science places more attention on the patient's everyday life from his/her perspective. Most of the studies conducted in Iran used a quantitative method or measured care needs according to pre-defined criteria. Objectives: The aim of this study was to explore the lived experiences of patients who have undergone cardiac surgery, in order to obtain a deeper understanding of what they experienced and what those who provide care for these patients experienced. Patients and Methods: A qualitative design, using a content analysis approach, was adapted to collect the data and analyze the experiences of 18 patients after cardiac surgery through a purposive sampling strategy. After the selection of the participants, semi structured interviews were held in order to collect the data. Scientific accuracy, and rigor of the data and research ethics were respected. Results: The data analysis revealed three main themes and 11 subthemes, categorized as conceptual and abstract, based on their nature: concern of going out therapeutic framework (Fear of the recurrence of heart attack, Fear of performing more activities than permitted, Fear of taking journeys, Fear of mass communication)/Tired of living within the confines of the therapeutic framework (Need to take various medications, Dietary restrictions, Limitations in function, Family fatigue)/Living between boundaries (Feeling caught between wanting to accept or reject treatment, Feeling caught between the sadness of having the disease and the joy of it not getting worse, Feeling caught between knowing and not knowing). Conclusions: Patients' experiences after cardiac surgery indicated the need for the consideration of holistic care and supportive intervention programs after surgery to promote recovery and a better quality of life following cardiac surgery.

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Young adults experiences of living with congenital heart disease

Cited by 46 publications

References 17 publications

Coarctation of the descending aorta, patent ductus arteriosus, deficiency of right superior vena cava, and persistent left superior vena cava in a five-month infant demonstrated by multislice computed tomography

Coarctation of the descending aorta, patent ductus arteriosus, deficiency of right superior vena cava, and persistent left superior vena cava in a five-month infant demonstrated by multislice computed tomography

Health Related Quality of life after Corrective Surgery for Congenital Heart Disease

Living Within Limits: Unpleasant Experiences From the Perspective of Patients After Cardiac Surgery, a Content Analysis Study

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