Young Adults Rehabilitation Needs and Experiences following Stroke (YARNS): A review of digital accounts to inform the development of age‐appropriate support and rehabilitation

Holloway, Aisha; Chandler, Colin; Reinso, Lissette Aviles; Clarissa, Catherine; Putri, Arcellia Farosyah; Choi, Hye Ri; Pan, Jo Fan; Mitra, Udita; Hewitt, Jonathan; Cluckie, Gillian; Smart, Alison; Noble, Helen; Harris, Ruth; Reid, Joanne; Kelly, Daniel

doi:10.1111/jan.15076

Cited by 15 publications

(13 citation statements)

References 44 publications

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“…As a whole, the research considered people of quite different ages who had suffered a stroke 1–5 years earlier. We are aware of the differences in impact related to the stroke event at various stages of life, particularly at a young age 57 . Future research could differentiate the analysis of placements according to age at the time of stroke and could focus attention on the various stages of the acceptance process and the psychological strategies best suited to facilitate it, including, among others, narrative.…”

Section: Discussionmentioning

confidence: 99%

(Re)constructing identity following acquired brain injury: The complex journey of recovery after stroke

Faccio,

Fonte,

Smania

et al. 2023

Health Expectations

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IntroductionPeople with poststroke acquired brain injury (ABI) face a complex and often troubled identity reconstruction journey. The literature is rich with studies related to the psychological and neuropsychological components involved in rehabilitation, but it is lacking with respect to the investigation of the existential dimensions and the challenges associated with finding new senses and meanings for one's identity and future perspectives, body and interpersonal relationships.MethodsThe aim of this study is to investigate the narrative processes of identity reconstruction after brain damage. Through a qualitative approach, 30 autobiographical narratives about self, body and the relationships with others were collected and analyzed. Semistructured interviews were used for the data collection. Narrative and positioning analysis were applied.ResultsFour main positionings emerged: sanctioning a radical break with one's previous life; assuming a sense of salvation and compulsory as well as irreversible adaptation to the limitations associated with one's condition; feeling different and disabled; and considering new possibilities and active constructions of self‐being in relationship with others. These results underline the narrative processes of construction of the injury and the identity and delineate possible resources and instruments to improve the clinical practice for health practitioners. They are also valuable for other professionals who deal with neurological services and rehabilitation, such as psychological counselling and support for persons who have experienced ABI and their families.Patient or Public ContributionThis work resulted from a close collaboration between two universities and a hospital neurological rehabilitation department in the Veneto Region (Northern Italy). Three associations of people with stroke and their families living in the same area contributed to designing the research on the basis of the needs expressed by their members with the aim to identify strategies and devices to be implemented in the public service to improve the care pathway. They also participated in the interpretation of the data.

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Section: Discussionmentioning

confidence: 99%

(Re)constructing identity following acquired brain injury: The complex journey of recovery after stroke

Faccio,

Fonte,

Smania

et al. 2023

Health Expectations

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“…The and Black checklist evaluates 27 relating to the reporting of ndings, external validity, internal validity(bias and confounding) and the statistical power. The scores range from 0-28 and the corresponding quality levels are graded as: excellent (26-28); good (20)(21)(22)(23)(24)(25); fair (15)(16)(17)(18)(19); and poor (≤ 14) [30]. The Oxford Centre for Evidence-based Medicine guidelines [31] will be used to evaluate the 'Levels of Evidence' (Ia-5) of the types of study designs included.…”

Section: Assessment Of the Methodological Quality Of Resourcesmentioning

confidence: 99%

Age-specific information resources to address the needs of young people with stroke: a scoping review protocol

Gopaul

Charalambous

Thilarajah

et al. 2022

Preprint

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Background and aims Young people with stroke (YPwS) persistently experience challenges with disability, social reintegration, employment and financial stability to provide for themselves and their families. The aims of this scoping review are to: 1) identify and collate information resources for YPwS and evidence-based self-managements programs and,2) identify gaps in age-specific resources available for YPwS after traditional rehabilitation services have ended and/or who are returning to live in the community. Methods We will include both qualitative and quantitative studies, including all study designs. Participants will be community-dwelling adults aged between 18–65 years with a clinical diagnosis of stroke. We will include information resources and evidence-based self-managements programs for YPwS. Search terms will include stroke, young people, community-dwelling. We will search electronic databases such as MEDLINE. The reference lists of included studies, systematic reviews and stroke guidelines and stroke specific websites will also be searched. We will also contact Stroke Support Organizations and international/national allied health professional organisations to gather information resources about YPwS. We will also conduct a comprehensive environmental scan of additional resources using the search engine Google. The titles, abstracts, full-text articles and contents of the resources identified by the search will be assessed against the inclusion and exclusion criteria to identify potentially relevant resources. Results and Conclusions Existing resources and self-management programs will be collated and categorized according to the type of needs addressed such as physical, emotions, activities of daily living, information, relationships and social needs as well as the key gaps identified.

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“…Resources or studies that include children aged less than 18 years, older adults aged more than 65 years, and individuals with neurological disorders other than stroke will be excluded. Personal resources such as testimonies and personal blogs will be excluded as these have been addressed in a recent study [ 23 ].…”

Section: Methodsmentioning

confidence: 99%

“…The Downs and Black checklist evaluates 27 items relating to the reporting of findings, external validity, internal validity (bias and confounding), and the statistical power. The scores range from 0 to 28, and the corresponding quality levels are graded as follows: excellent (26-28), good (20)(21)(22)(23)(24)(25), fair (15)(16)(17)(18)(19), and poor (≤ 14) [30]. The Oxford Centre for Evidence-Based Medicine guidelines [31] will be used to evaluate the "Levels of Evidence" (1a-5) of the types of study designs included.…”

Section: Assessment Of the Methodological Quality Of Resourcesmentioning

confidence: 99%

Age-specific information resources to address the needs of young people with stroke: a scoping review protocol

et al. 2022

View full text Add to dashboard Cite

Background and aims Young people with stroke (YPwS) persistently experience challenges with disability, social reintegration, employment, and financial stability to provide for themselves and their families. The aims of this scoping review are to (1) identify and collate information resources for YPwS and evidence-based self-managements programs and (2) identify gaps in age-specific resources available for YPwS after traditional rehabilitation services have ended and/or who are returning to live in the community. Methods We will include both qualitative and quantitative studies, including all study designs. Participants will be community-dwelling adults aged between 18 and 65 years with a clinical diagnosis of stroke. We will include information resources and evidence-based self-managements programs for YPwS. Search terms will include stroke, young people, and community dwelling. We will search electronic databases such as MEDLINE. The reference lists of included studies, systematic reviews, and stroke guidelines and stroke-specific websites will also be searched. We will also contact Stroke Support Organizations and international/national allied health professional organisations to gather information resources about YPwS. We will also conduct a comprehensive environmental scan of additional resources using the search engine Google. The titles, abstracts, full-text articles, and contents of the resources identified by the search will be assessed against the inclusion and exclusion criteria to identify potentially relevant resources. Results and conclusions Existing resources and self-management programs will be collated and categorized according to the type of needs addressed such as physical, emotions, activities of daily living, information, relationships, and social needs as well as the key gaps identified.

show abstract

Young Adults Rehabilitation Needs and Experiences following Stroke (YARNS): A review of digital accounts to inform the development of age‐appropriate support and rehabilitation

Cited by 15 publications

References 44 publications

(Re)constructing identity following acquired brain injury: The complex journey of recovery after stroke

(Re)constructing identity following acquired brain injury: The complex journey of recovery after stroke

Age-specific information resources to address the needs of young people with stroke: a scoping review protocol

Age-specific information resources to address the needs of young people with stroke: a scoping review protocol

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