Young carers in England: Findings from the 2018 BBC survey on the prevalence and nature of caring among young people

Joseph, Stephen; Kendall, Claire; Toher, Deirdre; Sempik, Joe; Holland, Jennifer; Becker, Saul

doi:10.1111/cch.12674

Cited by 57 publications

(114 citation statements)

References 12 publications

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“…The mixed findings between studies may be a result of different recruitment strategies, samples and measurements. It has for example been found that females are more involved in some type of caring activities, such as domestic work, than others (Joseph et al, 2019). If the findings in the current study are replicated, we need to examine why the responsibility for care lay more heavily on young adult women.…”

Section: Prevalence and Gender Differencesmentioning

confidence: 73%

The Burden of Care: A National Survey on the Prevalence, Demographic Characteristics and Health Problems Among Young Adult Carers Attending Higher Education in Norway

2020

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The aim of the present study was to examine prevalence, characteristics and health outcomes among young adults (18 to 25 years) who provide informal care to family members or others with physical or mental illnesses, substance misuse or disabilities. Design: The sample was obtained from a national survey in Norway from 2018 among students in higher education (the SHoT2018-study). The current sample comprise 40,205 participants, 70.2% women, mean age 22 years (SD = 1.7). Outcome Measures: Participants answered questions on care responsibilities, mental health problems (The Hopkins Symptoms Checklist-25), insomnia (sleep questionnaire), somatic health (Somatic Symptom Scale-8), and life satisfaction (Satisfaction With Life Scale). Results: 5.5% of the respondents reported having care responsibilities. Caring was associated with being female, single, having divorced parents, being an immigrant, and having financial difficulties. More mental health problems, insomnia, somatic symptoms, and lower life satisfaction were found among respondents with care responsibilities. Number of hours of caring was associated with negative health outcomes in a doseresponse pattern. Conclusion: Professionals within health care, social services and the educational system should be sensitized to the needs of young adults with care responsibilities for family members or others with illness, substance misuse, or disabilities. The negative health problems among these young adult carers (YACs) should be acknowledged, and adequate support made available.

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Section: Prevalence and Gender Differencesmentioning

confidence: 73%

The Burden of Care: A National Survey on the Prevalence, Demographic Characteristics and Health Problems Among Young Adult Carers Attending Higher Education in Norway

2020

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“…Increasingly researchers are in need of tools that allow comparisons to be made between young carers and their peers. As such, a revised survey version of the MACA-YC18 (Joseph et al 2019) was developed to allow it to be used with all young people regardless of their caring role. The revised tool allows comparisons to be made between the everyday helping carried out by young people and those who are in a caring role.…”

Section: Ethics Of Developing the Quality Of Methodologymentioning

confidence: 99%

“…We have had personal experience of this in our own recent research in which we conducted a representative survey of 925 young carers in England (Joseph et al 2019). Our approach to this was in two stages.…”

Section: Definitional Issues That Set the Agenda For Researchmentioning

confidence: 99%

Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions

et al. 2019

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Many children, adolescents, teenagers, and young adults have caring responsibilities for parents and family members. These young carers and young adult carers are present in every country. Their responsibilities include domestic chores as well as intimate personal care and other forms of helping which are generally seen as the responsibility of adult professionals. First, this article provides an overview and critical perspective on young carers research. Research suggests that 2-8% of children and young people are carers and that the caring role has an impact on their education, health, wellbeing, social opportunities and employment prospects. Various countries have responded differently with regards to policy: some have well developed services and recognition in law whilst others are only just beginning to recognise the problem. Second, we discuss the issues and challenges for research and propose a new agenda for the development of policy, research rigour, more theoretical sophistication, and a greater awareness of the need for interdisciplinary and multiagency working. Furthermore, we call for participatory and action led research that can provide greater insights into the lived experiences of young people, their needs and how these can be met.

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“…The estimated prevalence of young carers in Europe ranges from 4.5% among Austrian children aged 10–14 years to 8% among UK children aged 11–18 years (Leu et al, ). A recent survey from England among children aged 11–12 and 14–15 years found that 7% of children were engaging in a high amount of caring activity and 3% were engaging in a very high amount (Joseph, Kendall, et al, ).…”

Section: Introductionmentioning

confidence: 99%

“It has been fun. Super‐duper fantastic”: Findings from a Danish respite programme to support young carers

Wind

Jørgensen

2019

Health Soc Care Community

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Awareness of young carers’ experiences and needs is low on governmental and societal levels in Denmark. This article presents findings from the first evaluation of a Danish respite programme, the Buddy Programme, which aims to provide support to young carers aged 5–15 years who experience serious, chronic or mental health problems and/or death of a parent or sibling. Over a four‐six month period, volunteer students from University College Copenhagen offer young carers the opportunity of respite through participating in ordinary activities such as play and sports. In 2017–2018, based on a child‐centred approach, we conducted a qualitative study with interviews focusing on how the Buddy programme affected the children. The interviews took place at programme start, halfway through, and after completion with 22 children and 21 parents, as well as single interviews with 20 Buddies assigned to families after completion. Three main themes were identified: (1) the Buddy programme as an activity, (2) how the Buddy Programme affected the children and (3) ending the Buddy programme and wanting to continue the friendship. Our findings emphasise the importance of fun and cosy activities that provide children with respite from the serious concerns that otherwise fill the lives of young carers. Being with a Buddy created a free space, allowing children to play undisturbed and to temporarily keep concerns and a guilty conscience at a distance. By offering friendship, Buddies provided opportunities for young carers to feel special, be seen, acknowledged and taken seriously as a child with valid and specific needs and interests. Our findings may help increase awareness of the needs and interests of young carers on governmental and societal levels.

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Young carers in England: Findings from the 2018 BBC survey on the prevalence and nature of caring among young people

Cited by 57 publications

References 12 publications

The Burden of Care: A National Survey on the Prevalence, Demographic Characteristics and Health Problems Among Young Adult Carers Attending Higher Education in Norway

The Burden of Care: A National Survey on the Prevalence, Demographic Characteristics and Health Problems Among Young Adult Carers Attending Higher Education in Norway

Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions

“It has been fun. Super‐duper fantastic”: Findings from a Danish respite programme to support young carers

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