Young people's evaluation of a nurse‐led bladder training service: working towards developing a patient reported experience and outcome measure

Abstract

The attainment of urinary continence is usually achieved in early childhood, however, many children and young people can experience challenges to their urinary continence during childhood and into adolescence. Urinary incontinence has been linked to physiological comorbidities such as constipation and urinary tract infections and can also affect the social confidence and quality of life for children and young people. The aim of this study was to develop an experience and outcome measure for children and young people who experience lower urinary tract symptoms. A questionnaire-based evaluation to directly consult with young people attending a nurse-led bladder training clinic was used, pre and post treatment session, to evaluate their experiences and reported outcomes. The findings demonstrated that many of the young people reported a good response to bladder training as a resolution or reduction in their urinary symptoms; however, some young people remained reluctant to discuss their continence problems in clinic. The questionnaires highlighted the value they placed on the psychosocial support from the nurses in the clinic and how this in turn influenced their reported self-confidence and ability to manage their condition. Exploring reported experiences and outcomes can be helpful in determining what is important to young people attending a bladder training clinic. This has also highlighted the specific contribution nurses make in the assessment, intervention and management of this group.

Teaching materials for indwelling urinary catheter management: a case study of one library in Tanzania

“…The need for early procurement of materials for IUC should also be This was mentioned by all seven of the earliest texts, but only one of the later texts and not in the NICE guidelines (2012). However, the use of bladder or habit training may be worth considering (Rosqvist et al, 2008;Sanders and Bray, 2013), particularly in settings such as Tanzania where equipment and hand washing facilities are not always available, and IUC use should be minimized (Ndomba et al, 2008). 4 Healthcare workers need to practice within their limits of competence and seek help when necessary (Dougherty and Lister, 2011).…”

Qualidade de vida em crianças e adolescentes com sintomas de disfunção vesical e intestinal : uma revisão sistemática de estudos mistos

“…No relato parental não houve mudanças na QV dos pais quando comparados: respondentes e não-respondentes. A QVRS de crianças com apenas incontinência foi maior do que a QVRS de crianças com DVI ou FI antes do tratamento, mas nenhuma diferença significativa apareceu após três meses de tratamento.Entretanto, não foi encontrada diferença significativa na QV dos pais entre qualquer subtipo de EN isolada versus subtipos combinados, ou apenas incontinência versus DVI ou IF.Com relação aos outros estudos(AKBAL et al, 2005;AKIL et al, 2014; BOWWER, 2008;BROWNRIGG et al, 2015;EQUIT et al, 2014a;SANDERS;BRAY, 2013; VIJVERBERG et al, 2011), não foi possível fazer tal comparação porque diferentemente do artigo 3(BACHMANN et al, 2009) que usou auto-relato e relato parental e do artigo 7 (EQUIT et al, 2014b) que usou auto-relato das crianças e relato dos pais, esses artigos fizeram uso somente do auto-relato ou do relato parental, não possibilitando, portanto, comparação entre os relatos.5.4.Pediatric Incontinence Questionnaire (PinQ), a saber: "Eu deixo de estar com os amigos por causa do meu problema de bexiga? ; Eu me sinto infeliz por causa do meu problema de bexiga?…”