Young People’s Sense of Agency and Responsibility towards Mental Health in Brazil: A Reflexive Thematic Analysis

Mendes, Josimar Antônio Alcântara; Murta, Sheila Giardini; Siston, Felipe Rodrigues; Cunha, Rafaela Oliveira da; Seabra, Brenda Thallys Rocha; Ferreira, Julyana Alves; Souza, Rafael Ribeiro Alves; Santos, Victor Hugo Lima; Singh, Ilina; Pavarini, Gabriela

doi:10.21203/rs.3.rs-2952376/v1

Cited by 1 publication

(1 citation statement)

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“…The first stage launched the co-production process between adult and young researchers. Our first goal was to conduct a qualitative mapping of Brazilian young people’s perceptions of barriers to and enablers of good mental health as well as strategies they used to enact peer support and promote mental well-being 41. The results were used to guide the design of the digital tool Cadê o Kauê?…”

Section: Resultsmentioning

confidence: 99%

A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil

Siston,

Murta,

Mendes

et al. 2023

BMJ Glob Health

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IntroductionCoproduction of mental health research and interventions involving researchers and young people is increasingly common. However, this model raises challenges, related, for instance, to communication, power and control. This paper narrates—from a collective first-person perspective—the lived experience of coproduction of a digital intervention by institutional researchers and young citizen researchers in Brazil.MethodThis study employed a collaborative autoethnographic methodology, utilising autobiographical data such as meeting recordings, individual notes and collective guided reflections on the coproduction process. Our analysis focused on challenges and solutions that arose during the process.ResultsThroughout the project, we created formal and informal mechanisms for accountability, transparency and fair inclusion of multiple voices. We engaged in mutual capacity-building, invested in building interpersonal knowledge, and implemented practices to reduce overload and promote equitable participation. Through ongoing reflection and readjustment in response to challenges, we progressively embraced more democratic and egalitarian values. The collective care invested in the process fostered synergy, trust, and intergroup friendship.ConclusionOur experience points to the value of creating a space for multiple research identities: the citizen young person and the institutional researcher, both of whom critically reflect on their roles in the research process. Our focus on coproduced care calls into question participation metaphors that represent the process via a single axis—young people—who linearly progress from minimal participation to full autonomy. Instead, our analysis highlights the importance of a social and caring bond that supports the radical co-production of innovative health solutions in contexts of vulnerability.

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Section: Resultsmentioning

confidence: 99%