Young women's experience of breast cancer: defining young and identifying concerns

Dunn, Jeff; Steginga, Suzanne K.

doi:10.1002/(sici)1099-1611(200003/04)9:2<137::aid-pon442>3.0.co;2-0

Cited by 190 publications

(191 citation statements)

References 18 publications

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“…This feeling of being 'out of sync' is in comparison with other young women without cancer and older breast cancer patients [24,29]. Feeling 'out of sync' connects to issues around reproduction (including pregnancy, fertility, contraception and menopause) [20][21][22][23][24][25][26][27][28][29][30]; altered body image (primarily relating not only to mastectomised bodies and breast reconstruction but also to more general feelings of being in an altered body and, therefore, changes in embodied subjectivity) [20,[25][26][27]34,[36][37][38][39]; decreased levels of and changes to sexual activities [25][26][27]34,36,38]; and fear (of cancer recurrence, of their own mortality and its potential impact on their families) [ …”

Section: Issuesmentioning

confidence: 87%

“…Documents were rated 5 if all questions were answered in the affirmative, 4 if only 4 questions were answered in the affirmative, and so on, with 0 indicating the weakest quality of paper based on these additional appraisal issues. [24] Y…”

Section: Description Of Studiesmentioning

confidence: 99%

“…Expectations of a woman's role, however, may vary within different cultures within a country [7,19]. Motherhood is a key social context for the experience of breast cancer for young women [20][21][22][23][24][25][26][27][28][29][30]. However, it has long been highlighted as a dominant ideology, which shapes the subjectivities of all women [31,32].…”

Section: Social Contextmentioning

confidence: 99%

“…Young women with breast cancer need support, especially peer support [24,26,37] and on-going support for life after treatment [22,26,40]. Single women need support, both in terms of dating and talking to new partners about the cancer [26,34].…”

Section: Needs and Concernsmentioning

confidence: 99%

“…There is a need for more education and support for current partners of young women with breast cancer and their family more generally [23,26,36,38]. An important area of need for women with young families is the provision of childcare facilities at hospitals and information on how to communicate the illness to children [20,22,[24][25][26]28]. There is a need for professional counselling [21,24,26] and spiritual support [26].…”

Section: Needs and Concernsmentioning

confidence: 99%

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The experiences, needs and concerns of younger women with breast cancer: a meta‐ethnography

et al. 2011

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Objective: This meta-ethnography synthesises the evidence on the experiences, needs and concerns of younger women with breast cancer.Methods: Using a method called 'reciprocal translation' we developed a conceptual model to reflect the local and social contexts, issues, processes, needs and concerns of importance in this literature.Findings: Key findings relate to the particular point in the life-course at which young women with breast cancer stand. Issues for these women relate to feeling different as a result of cancer, fear of recurrence, feeling 'out of sync' and altered embodied subjectivity. Young women with breast cancer use three processes to integrate the changes that cancer brings, namely, balancing, normalising and changing. Our conceptual model also highlights young women's needs, primarily for support, information, childcare, counselling and spiritual support. Areas of reproduction, fertility and sexuality were also of particular concern. The included papers have methodological limitations that impact on our findings, such as opportunistic data analyses, lack of theoretical frameworks and limited reference to socio-cultural factors.Conclusion: The conceptual model developed as a result of this meta-ethnography provides a basis for practitioners to address these young women's concerns more adequately and comprehensively.

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Section: Issuesmentioning

confidence: 87%

Section: Description Of Studiesmentioning

confidence: 99%

Section: Social Contextmentioning

confidence: 99%

Section: Needs and Concernsmentioning

confidence: 99%

Section: Needs and Concernsmentioning

confidence: 99%

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The experiences, needs and concerns of younger women with breast cancer: a meta‐ethnography

et al. 2011

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The young women's network: a case study in community development

Steginga

Dunn

2001

Community & Applied Soc Psy

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While young women have been found to be at additional risk for psychological morbidity after a breast cancer diagnosis, their speci®c needs in relation to support are not well described. A community development approach was utilized to develop the Young Women's Network, a peer support programme for young women who have been diagnosed with breast cancer that addresses their speci®c psychological and social needs. Central to this approach was the key role of the target group in both the de®nition of the problem and the generation of the solutions. This article describes the steps involved in developing this programme and guidelines for health professionals and community members who may wish to replicate either the Young Women's Network or this particular approach to programme development.

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Cancer in adolescents and young adults: Who remains at risk of poor social functioning over time?

Husson

Zebrack

Aguilar

et al. 2017

Cancer

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Although improved over time, social functioning still was found to be compromised 24 months after the primary diagnosis. Nearly one-third of these patients remain at risk of poor social functioning. Reducing physical symptoms and psychological distress and enhancing social support by interventions during the period after treatment may potentially help these young survivors to better reintegrate into society. Cancer 2017;123:2743-51. © 2017 American Cancer Society.

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Young women's experience of breast cancer: defining young and identifying concerns

Cited by 190 publications

References 18 publications

The experiences, needs and concerns of younger women with breast cancer: a meta‐ethnography

The experiences, needs and concerns of younger women with breast cancer: a meta‐ethnography

The young women's network: a case study in community development

Cancer in adolescents and young adults: Who remains at risk of poor social functioning over time?

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