‘Your friends don’t understand’: Invisibility and unmet need in the lives of ‘young carers’

Thomas, Nigel; Stainton, Timothy; Jackson, Sonia; Cheung, Wai Yee; Doubtfire, Samantha; Webb, Amanda

doi:10.1046/j.1365-2206.2003.00266.x

Cited by 139 publications

(208 citation statements)

References 9 publications

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“…This silence often results from fear and stigma; fear that, for example, making contact with health professionals could result in them being separated from their families. The lack of support and help given to young carers by family, friends and neighbors is surprising (9,(15)(16) .…”

Section: Topic 2 -These Children's Characteristicsmentioning

confidence: 99%

“…-It brings the family together and reinforces the family's emotional ties (1,(5)(6)12,15,17) ; -It relieves the child's fears and anxiety about the state of the family member's condition (1,(5)(6)(14)(15)(16) ;…”

Section: Topic 5 -Consequences Of Providing Carementioning

confidence: 99%

“…These children's parents seem either to be uninformed about the problems related to care provision by the children, or may not want to admit that there may be problems (10,15) .…”

Section: Topic 5 -Consequences Of Providing Carementioning

confidence: 99%

“…-It develops in the children intelligence, perception, a feeling of responsibility, maturity, and personal and social skills (1,(5)(6)12,15,17) ;…”

Section: Topic 5 -Consequences Of Providing Carementioning

confidence: 99%

“…To this end a spreadsheet was created, using Microsoft (The Figure 2 continue (15) Qualitative study 27 young carers aged between 9 and 18 years old caring for parents who were ill, alcoholics or with mental disabilities, or for siblings with disabilities or behavioral problems.…”

Section: Procedures For Data Collection and The Critical Evaluation Omentioning

confidence: 99%

See 4 more Smart Citations

Children as carers: an integrative review

Marote¹,

Pinto²,

Vieira³

et al. 2012

Rev. Latino-Am. Enfermagem

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Objective: to undertake an integrative literature review on the issue of "Children as carers". This is an emerging topic in the provision of health care, but nevertheless has a low profile in the literature. Methodology: this study was based in a survey of nine databases of scientific articles, using as descriptor: child, young, caregivers, lay carer and nursing role, as well as the corresponding terms in Portuguese. 21 articles were analyzed. Results: these were organized into six categories -factors which motivate the child to take on the role of caregiver; these children's characteristics; tasks performed; time spent in caring; consequences of providing care and the role of the nurse in partnership with these children and their families. Conclusion: the children as carers are a focus of attention relevant to nursing practice, this issue representing an opportunity for investigation in Portuguese-speaking countries, as no article was found on the subject in Portuguese. In addition, with this first study in Portuguese, a work of the creation of a bibliography is begun, allowing an awareness of the issue and the identification of ways to respond to the families involved, in line with their needs. artigos. Resultados: foram organizados em seis categorias: fatores que motivam a criança a assumir o papel de cuidadora; caraterísticas dessas crianças; tarefas desempenhadas; tempo passado a cuidar; consequências da prestação de cuidados e papel do enfermeiro em relação a essas crianças e suas famílias. Conclusão: as crianças como cuidadoras são um foco de atenção relevante para a prática de enfermagem, representando esse tema uma oportunidade de investigação nos países de língua portuguesa, já que não foi encontrado qualquer artigo em português sobre o mesmo. Além disso, com este primeiro estudo em língua portuguesa, inicia-se um trabalho de criação bibliográfica que permita a sensibilização para o tema e a identificação das respostas a dar às famílias envolvidas, de acordo com as suas necessidades.Descritores: Crianças; Adolescentes; Cuidadores; Cuidados de Enfermagem. Niños como cuidadores: revisión integrativaObjetivo: realizar una revisión bibliográfica integrativa del tema "Niños como Cuidadores".Se Trata de un tema emergente en la prestación de atenciones de salud, que sin embargo se mantiene poco visible en la literatura. Metodología: se basó en una investigación sobre nueve bases de datos de artículos científicos, utilizándose como descriptores: child, young, caregivers, lay carer y nursing role, así como los correspondientes en portugués. Fueron analizados 21 artículos. Resultados: fueron organizados en seis categorías -factores que motivan el niño a asumir el papel de cuidador; características de esos niños; tareas desempeñadas; tiempo pasado a cuidar; consecuencias de la prestación de atenciones y papel del enfermero junto de esos niños y sus familias. Conclusión: los niños como cuidadores son un foco de atención relevante para la práctica de enfermería, representando ese tema una oportunidad de averiguació...

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Section: Topic 2 -These Children's Characteristicsmentioning

confidence: 99%

Section: Topic 5 -Consequences Of Providing Carementioning

confidence: 99%

“…These children's parents seem either to be uninformed about the problems related to care provision by the children, or may not want to admit that there may be problems (10,15) .…”

Section: Topic 5 -Consequences Of Providing Carementioning

confidence: 99%

“…-It develops in the children intelligence, perception, a feeling of responsibility, maturity, and personal and social skills (1,(5)(6)12,15,17) ;…”

Section: Topic 5 -Consequences Of Providing Carementioning

confidence: 99%

Section: Procedures For Data Collection and The Critical Evaluation Omentioning

confidence: 99%

See 3 more Smart Citations

Children as carers: an integrative review

Marote¹,

Pinto²,

Vieira³

et al. 2012

Rev. Latino-Am. Enfermagem

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‘My childhood life falling apart’: A retrospective study of young carers managing parental mental illness in Taiwan

Yuan,

2024

Child Abuse Review

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The population of young carers of parents with mental illness is more likely to be hidden in the community due to the family's concerns related to stigma. Many young carers struggle with caring difficulties with a lack of social support. The aim of this study was to gain insight into the difficulties of young carers managing parental mental illness in Taiwan from retrospective perspectives. Semi‐structured interviews were conducted with 19 participants who used to be young carers of parents with mental illness. Interviews were analysed using thematic analysis. Three themes emerged. First, participants experienced grief over the loss of their parent's normality and the disruption of the parent–child relationship. Having to deal with issues alone, they described their childhood lives as falling apart. Second, families tended to conceal mental illness by refusing to seek outside support, resulting in young carers struggling in vulnerable situations. Third, participants used coping strategies to find a balance between maintaining parental mental illness and reducing the impact on their well‐being. Most participants used solitary strategies to cope with their emotional distress. Some participants used destructive ways to suppress their pain and sorrow when there seemed no way to improve their family situation. The findings reflect on the vulnerabilities of young carers of parents with mental illness. Services and practitioners should work together to recognise young carers' identities and provide suitable resources to young carers to help them deal with life crises and meet their developmental needs.

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Change and Adaptation in Families with Young Carers

McDonald¹,

Dew²,

Cumming³

2010

Aust J Social Issues

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Using grounded theory methodology, members of nine families with 'young carers' were interviewed to explore their experiences of caring. A dynamic theory of change and adaptation emerged in relation to changes in who cares within families, in external support and in the attitudes of young carers towards caring. Adaptations included becoming used to the way life is, knowing how to care, balancing and trading off, rewarding care, and anticipating future adaptations. A model has been developed to offer an explanation of factors which influence young caring in families. These include family expectations about caring; who is available to care; the willingness and capability of young carers to help; and the degree of choice or obligation they experience. Formal and informal support services from outside the family, and environmental adaptations, can reduce the amount of family caregiving required, increase choice and contribute to balancing life for carers.

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‘Your friends don’t understand’: Invisibility and unmet need in the lives of ‘young carers’

Cited by 139 publications

References 9 publications

Children as carers: an integrative review

Children as carers: an integrative review

‘My childhood life falling apart’: A retrospective study of young carers managing parental mental illness in Taiwan

Change and Adaptation in Families with Young Carers

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