YouTube as a Tool for Pain Management With Informal Caregivers of Cancer Patients: A Systematic Review

Abstract

Context Cancer caregivers have information and support needs, especially about cancer pain management. With high Internet use reported among caregivers, YouTube may be an accessible option when looking for information on cancer pain management. Objectives The purpose of this study was to explore the availability and characteristics of instructional cancer pain management videos on YouTube and determine to what extent these videos addressed the role of informal caregivers in cancer pain management. Methods A systematic review of videos on YouTube resulting from search terms “pain and cancer,” “pain and hospice,” and “pain and palliative care” was conducted in May 2013. If the video addressed pain management, was in English, and was instructional, it was coded for the scope and design of instructional content that included caregivers. Results The search terms yielded 1118 unique videos and 43 videos met the inclusion criteria. Overall, 63% of videos were viewed 500 times or less and half of the videos received “like” ratings by viewers. Video instruction was primarily talk without any onscreen action (65%), user-generated amateur video (79%), and had poor quality sources of information. Videos were mainly clinician-centered (77%). Although the majority of videos addressed the need for caregiver pain assessment (35%) and caregiver education (23%), few actually addressed specific caregiver pain management barriers. Conclusion The majority of videos were primarily directed toward a clinical audience. Future research is necessary to determine if the platform is feasible and beneficial as a support tool for oncology caregivers.

Peer Review #1 of "Pain neuroscience education on YouTube (v0.1)"

“…Previous studies have reviewed videos with information about myocardial infarction (Pant et al, 2012), dental education (Knosel, 2011), and smoking cessation (Backinger et al, 2011). There are also a small number of published studies specifically reviewing pain-related information on YouTube, including a review of videos on pain management practices during infant immunization (Harrison et al, 2014), newborn blood tests , and caregiver cancer pain management (Wittenberg-Lyles et al, 2014), as well as videos providing broader information about painful disorders such as arthritis (Singh, Singh & Singh, 2012). There is also a larger literature reviewing Internet-based resources, including websites and apps (Corcoran et al, 2009;Rosser & Eccleston, 2011;Bailey et al, 2013;De La Vega & Miró, 2014;Lalloo et al, 2015;Smith et al, 2015), for their usefulness and appropriateness for people with pain.…”

Pain neuroscience education on YouTube: a systematic review

“…Previous studies have reviewed videos with information about myocardial infarction (Pant et al, 2012), dental education (Knosel, 2011), and smoking cessation (Backinger et al, 2011). There are also a small number of published studies specifically reviewing pain-related information on YouTube, including a review of videos on pain management practices during infant immunization (Harrison et al, 2014), newborn blood tests (Harrison et al, 2018), and caregiver cancer pain management (Wittenberg-Lyles et al, 2014), as well as videos providing broader information about painful disorders such as arthritis (Singh, Singh & Singh, 2012). There is also a larger literature reviewing Internet-based resources, including websites and apps (Corcoran et al, 2009;Rosser & Eccleston, 2011;Bailey et al, 2013;De La Vega & Miró, 2014;Lalloo et al, 2015;Smith et al, 2015), for their usefulness and appropriateness for people with pain.…”

YouTube como fuente de información sanitaria y divulgación del conocimiento sobre Cuidados Paliativos en el domicilio

“…Estos resultados con respecto a la temática a estudio, ponen de manifiesto, en la misma línea de trabajos anteriores (12,24), que son necesarios futuros estudios para entender si esta herramienta, así como qué características de los vídeos pueden 'enganchar' a pacientes, y al público en general, con este problema de salud pública (25), a la vez que suponen un reto para los profesionales de este campo.…”