Having the means to share research data openly is essential to modern science. For human research, a key aspect in this endeavor is obtaining consent from participants, not just to take part in a study, which is a basic ethical principle, but also to share their data with the scientific community. To ensure that the participants' privacy is respected, national and/or supranational regulations and laws are in place. It is, however, not always clear to researchers what the implications of those are, nor how to comply with them. The Open Brain Consent (https://open-brain-consent.readthedocs.io/en/stable/) is an international initiative that aims to provide researchers in the brain imaging community with information about data sharing options and tools. We present here a short history of this project and its latest developments, and share pointers to consent forms, including a template consent form that is compliant with the EU general data protection regulation. We also share pointers to an associated data user agreement that is not only useful in the EU context, but also for any researchers dealing with personal (clinical) data elsewhere.
Magnetic resonance imaging has achieved an increasingly important role in the clinical workup of renal diseases such chronic kidney disease (CKD). A large panel of parameters have been proposed to diagnose CKD among them total kidney volume (TKV) which recently qualified as biomarker. Volume estimation in renal MRI is based on image segmentation of the kidney and/or its compartments. Beyond volume estimation renal segmentation supports also the quantification of other MR based parameters such as perfusion or filtration. The aim of the present article is to discuss the recent existing literature on renal image segmentation techniques and show today's limitations of the proposed techniques that might hinder clinical translation. We also provide pointers to open source software related to renal image segmentation.
Having the means to share research data openly is essential to modern science. For human research, a key aspect in this endeavour is obtaining consent from participants, not just to take part in a study, which is a basic ethical principle, but also to share their data with the scientific community. To ensure that the participants’ privacy is respected, national and/or supranational regulations and laws are in place. It is, however, not always clear to researchers what the implications of those are, nor how to comply with them. The Open Brain Consent (https://open-brain-consent.readthedocs.io) is an international initiative that aims to provide researchers in the brain imaging community with information about data sharing options and tools. We present here a short history of this project and its latest developments, and share pointers to consent forms, including a template consent form that is compliant with the EU General Data Protection Regulation. We also share pointers to an associated data user agreement that is not only useful in the EU context, but also for any researchers dealing with personal (clinical) data elsewhere.
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