Utilização de medicamentos e alimentos e o risco de interações medicamentosas em idosos. The use of drugs and food and the risk of drug interactions in elderly.
Background The role caregivers of children with complex chronic disease play may be linked to important sleep disturbances, which may threaten the long-term quality care to their children.Aim Evaluation of the sleep quality of the caregivers of children with complex chronic disease under home mechanical ventilation.Design Observational and analytic study (October 2018 – January 2019).Setting/Participants We assessed 33 caregivers of patients with complex chronic disease under home mechanical ventilation for ≥3 months, followed in the Pneumology Clinic of a tertiary paediatric hospital. Evaluation instrument: Pittsburgh Sleep Quality Index (Portuguese version).Results Most of the caregivers were mothers (88%), median age of 40 years. Most of the children were male (70%), median age of 11 years. The main diagnostic group was genetic/polymorphic syndrome (46%); 52% belonged to group 2 (Association for Children with Life-Threatening or Terminal Conditions). There was a discrepancy between the subjective sleep quality ("Good" in 64%) and the Pittsburgh Sleep Quality Index score ("Poor" in 72%), with significant percentage of daytime sleepiness/dysfunction (75%). The increase in daily hours of ventilation seems to lead to a lower sleep quality (p = 0.669). Caregivers with sleep disorder had lower sleep quality values.Conclusions The sleep quality of the caregivers of children under home mechanical ventilation has similar values to specific groups described in literature, but lower than that of the healthy Portuguese population. It is essential to raise the professionals’ awareness for the evaluation of sleep quality of caregivers, since it may not be adequately perceived by them.
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