The aim of this study was to characterize dependent elderly people and their main family caregivers and the association between functional capacity of the elderly and the burden of caregivers. This cross-sectional study was conducted with 112 elderly people and caregivers connected to a primary care service in Porto Alegre, Brazil. The applied instruments related to care and socioeconomic variables were Physical and Instrumental Activities of Daily Living (PADL and IADL) and the Burden Interview. The Spearman correlation coefficient was also used. Average age of the elderly individuals in this study was 81.41 years, while the average score for PADL was 10.36 and 6.25 for IADL. Of the 112 elderly individuals, 71.4% had severe dependence. Among caregivers, 75% were women, 61.6% were the sons or daughters with an average age of 57.98 and an average burden of 29.53, which is equivalent to moderate burden. Results revealed a significant correlation between functional capacity of the elderly and caregiver burden. It was verified that the higher the dependence of elderly people, the greater the burden of caregivers.

The purpose of this study is to evaluate the effect of home-care nursing intervention on the burden of family caregivers for older adults surviving a stroke. A randomised clinical trial blinded for outcome evaluation. Forty-eight family caregivers of older adults surviving a stroke took part in the study. The intervention group (IG) received three home visits by nurses in 1 month after hospital discharge for guidance on the disease and care activities for the elderly people. The control group (CG) relied on the service network that had access. The Caregiver Burden Scale was applied to assess the burden outcome 1 week, 60 days and 1 year after hospital discharge. The caregivers of the intervention and CGs had no difference regarding baseline data. There was an interaction effect between the CG and the IG in the isolation domain (p = 0.037) and in the emotional involvement domain (p = 0.003) over time. These findings provide support for strengthening a care line for the elderly people after a stroke, with adequate discharge planning, indicating the importance of integrating care network services such as primary care, home care and hospital care with a view to achieving an effective care transition. It is also necessary to construct a specific instrument to evaluate other outcomes, such as the knowledge and learning of caregivers in relation to the care activities taught. This study is registered in the Clinical Trials with name Nursing Home Care Intervention Post Stroke (SHARE) and under number NCT02807012.

Objective to construct and validate an educational manual for family caregivers of older adult dependent on care after a stroke. Method a methodological study with four stages: focus group with five family caregivers, to identify doubts and difficulties regarding home care for older adults with stroke; preparation of the manual by six researchers; content validation by 18 specialist nurses, and face validation by 12 family caregivers. For data analysis, thematic analysis was performed, the Content Validity Index (CVI) was calculated, and the consensus of the target population was verified. Results from the focus group, the experiences and challenges faced by the caregivers in caring for aged family members with a stroke were identified, which supported the elaboration of an educative manual, in the second stage. In the expert consensus, a global CVI of 0.97 was obtained and, in face validation, a consensus of 95.51% by the target population. Conclusion an educational manual for family caregivers of older adults after a stroke was built, which was validated in terms of content and appearance. In view of this, it can be used as complementary material to the guidelines of the professionals, enabling improvement of the care provided by family members to the older adult dependent on care after a stroke.

Resumo OBJETIVO Analisar as atitudes de responsabilidade filial sobre a institucionalização dos pais idosos. MÉTODOS Estudo qualitativo com amostra intencional de 100 filhos cuidadores de idosos de duas Unidades de Saúde de Porto Alegre/RS. As informações foram coletadas em 2014, por meio de entrevista semiestruturada. A análise baseou-se na análise temática. Foi utilizado o software NVIVO® versão 10. RESULTADOS Elaboraram-se duas categorias de acordo com as questões do protocolo: possibilidade de institucionalização dos pais idosos e expectativa de cuidado. CONSIDERAÇÕES FINAIS A maioria dos filhos cuidadores não considerou a institucionalização dos pais idosos, por julgarem ser um dever deles o cuidado aos pais, e considerarem a institucionalização como abandono. A maioria dos filhos cuidadores possuía expectativa de ser cuidada pelos filhos e percebeu a institucionalização como forma de receber este cuidado. Os resultados do estudo contribuem para o fortalecimento da rede formal e informal ao idoso e seu filho cuidador.