People with intellectual disability who possess expressive language are able to participate successfully in qualitative interviews, providing the facilitator pays close attention to their communication preferences. This article considers the successes and flaws in interviewing techniques utilised in a study that invited twelve men and 17 women to talk about sex, risk, social and leisure life. Questions were posed in plain language and accompanied by concrete reference tools, namely picture cards and photo-story vignettes. Adjusting the depth of questioning in line with what a respondent wants to or can offer enhanced the quality of data obtained. The discussion highlights that interviewer’s actions may contribute to errors, which have previously been described in individualising terms as acquiescence, recency and unresponsiveness. The overall message of this article is that a responsive approach to each participant’s particular communication style, combined with avoidance of inaccessible question formats, are key ingredients of a successful interview.
Accessible summary• Everyone has the right to privacy and relationships.• Some people who live in group homes are not allowed to be private with their partner. • We will explain how this makes us feel.• We will say what should change.• Parts written in 'bold' font are in plain English. Read them to find out more.
SummaryMany residential group settings for people with learning difficulties do not provide individuals with the private space in which they can explore their sexual relationships in a safe and dignified manner. Lack of agreed private spaces seriously infringes the individual's human rights. Many people with learning difficulties who lack privacy have no other option but to escape to isolated public or semi-private spaces to be sexually active. This places individuals at risk. It is suggested that self-advocacy driven policy guidance must be developed which must require residential services to review their practice to ensure that they accommodate residents' need for privacy, whilst supporting them to lead safe sexual relationships.
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