The growing numbers of individuals with intellectual disabilities affected by Alzheimer's disease and related dementias has raised new challenges for community care providers. This article examines means of providing community group home-based care in a sample of care providers in five different countries. The aim is to identify trends that have emerged. Two samples of group homes for adults with intellectual disabilities affected by dementia were studied to determine: (1) what are the physical characteristics of the homes;(2) what physical environmental adaptations have been made in response to behavioral deterioration expressed by residents with dementia; and (3) what are the demands on staff resulting from dementia care. The first sample of group homes in five countries provided comparative international data on home designs, staffing, costs, and residents. The second sample, drawn from homes in the USA and the UK, provided data on the impact of dementia. Findings revealed staffing and design of homes varied but generally abided by general practices of dementia care; homes relied on existing resources to manage changes posed by dementia care; programmatic and environmental adaptations were implemented to address progression of dementia; and residents with dementia presented more demands on staff time with respect to hygiene maintenance and behavior management when compared to other residents not affected by dementia. de men tia d e m e n t i a © 2005 sage publications www.sagepublications.com vol 4(3) 361-385
The authors studied a group of older carers of aging adults with Down syndrome (DS) to ascertain what effects such caregiving may have on them given the presence or possibility of age-associated decline or dementia. The study also examined the comparative levels of care provided, key signs noted when decline was beginning, the subjective burden experienced, and what were the key associated health factors when carers faced a changed level of care. The authors found that this group was made up of long-term, committed carers who have decided early on to look after their relative with DS over their lifetime. When faced with the onset and ongoing progression of dementia, their commitment was still evident as evidenced by adopting physical accommodations and finding ways to continue to provide care at home, while also seeking help from outside sources. Most saw a family or group home environment as the place of choice for their relative with DS when they decided they could no longer offer care. The study did not ascertain any burn-out or significant health related problems associated with their continued caregiving save for their concerns about day-to-day strain and what will happen in the future.
Objective: To summarize and describe the current US surveillance systems that assess physical activity (PA) for work and commuting. Methods: An expert group conducted an environmental scan, generating a list (n = 18) which was ultimately reduced to 12, based on the inclusion of PA and/or sedentary behavior data. Results: The 12 surveys or surveillance systems summarized provide nationally representative data on occupational-level PA or individual-level PA at work, data on active commuting, some are scorecards that summarize workplace health best practices and allow benchmarking, and one is a comprehensive nationally representative survey of employers assessing programs and practices in different worksites. Conclusions: The various surveillance systems and surveys/scorecards are disparate and need to be better analyzed and summarized to understand the impact of occupational-level PA and commuting on population health and well-being, life expectancy, and workforce productivity.
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