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On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0–18 years with osteogenesis imperfecta.

Results of a study evaluating the success of transfers of adult retardates from state institutions to public and private nursing homes indicate that most of the retardates adjusted well to the change, responded to program activities available in the nursing homes and nearby communities, and were visited more often by friends and relatives. Operators of the nursing homes, their staffs, the retardates, their families, and the other residents and their families accepted the placement program. By supporting social functioning at a lesser level of intervention than state institutions, nursing homes allow for greater exercise of even limited independence.

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