Similar to many communities around the United States in the late 1990s, Muncie, Indiana, and the surrounding county created a year 2000 committee, called, "You and Year 2000, Inc.: The Muncie and Delaware County Millennium Project" to sponsor, plan, and conduct activities to celebrate the new millennium and ponder the community's past, present, and path to the future. Part of the Committee's planning was to create a legacy of the year-long celebration that would attack a community problem. Partnering with the local hospital, the Committee decided to attack the problem of cancer through a fund-raising campaign to build a cancer center and cancer education/screening program. The purpose of this article is to describe the application of a community organizing/building model used to create a community-wide cancer education/screening program and share the lessons learned (or relearned). The planning process used to develop the education/screening program is one that could be duplicated elsewhere.
While the information infrastructure to support public health and health research has been dramatically improving, comprehensive, nation-wide, longitudinal, person-centered information has been generally nonexistent. Yet, having such information for large populations is essential to public health and health research. The coupling of internet access, information standards and emerging electronic health records is beginning to provide an enabling infrastructure for population-wide health information capture and transfer. However, the essential infrastructure component that is still missing is effective health information exchange (HIE) that has specific public health and health research-supporting functionality at nation-wide, state-wide and community-wide levels.To better understand the requirements for HIE at a community-wide level, our exploratory research investigated needs and attitudes of over 1200 stakeholders including members of public health, health research and consumer sectors. This paper reports on the study's finding including the functional and infrastructure recommendations of public health and health research stakeholders, and the resultant design attributes for a consumer-centric community HIE which could be linked into a nation-wide HIE network for purposes of improving care, decreasing health related costs and supporting research.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.