This article briefly discusses the long history of violence towards disabled people which sets the context for an analysis of the modern-day form of violence known as disability hate crime (DHC). People who look or behave differently to others often find themselves victims of violent crimes. The language used to describe disabled people contributes to their diminished position in society. A brief review of definitions of DHC and exploration of news media coverage of the Pilkington and Askew DHC cases are undertaken. Cultural scapegoating of disabled people is discussed. Disabled people are perceived as contributing to their own victimisation, the lack of support afforded to them by society and the failure of systems meant to protect them. As long as disabled people remain outside mainstream society, they are unlikely to achieve the same levels of respect and protection from crime that other groups in society are afforded.
The changes in the Special Educational Needs and Disability Code of Practice extends the provision for those people aged 0–25 years and focuses more on disabilities, such as hearing difficulties. There is a particular focus on anticipating needs rather than waiting for ‘special educational’ needs to develop. This paper considers the implications of these changes for educators in providing appropriate support for young people with glue ear. This common condition affects about 80% of children under 7 years of age when they are developing their social and language skills and can result in permanent hearing impairment. This paper draws upon research which adapted and combined the methodologies of Photovoice and Interpretative Phenomenological Analysis to encourage a small sample of young people, and their mothers, to reflect upon their experience of chronic glue ear. The participants in this research explained that there were few adaptations made in the classroom to help minimise the impact of their hearing loss. Educational professionals appear to have a low awareness about the social, behavioural and cognitive effects of the condition on pupils. This may indicate that they would benefit from training in the potential impacts of it for their pupils.
Introduction: The emotional impact of a diagnosis of breast cancer in women and listening to their affective needs is not widely reported in the literature. Recent policies globally emphasize the importance of incorporating patients’ views in treatment. The aim of the study was to provide insights for health care professionals and make recommendations based on patients’ experiences. Breast cancer survivorship is increasing, but the long-term support needs of such women are less understood. Method: This exploratory study asked 20 white women from 2 urban centers in the UK about their experience of diagnosis and treatment for breast cancer. It used an adaptation of the photovoice methodology to examine a health issue and identify issues of importance and relevance to patients. It recognizes their expertise in their situation. Results: The themes identified were: Fear/Shock; Waiting; Lack of Control; Communication/Practicalities; Body image changes; Specialist versus nonspecialist Centers/Staff; and Ongoing Support. Discussion: The women provided images, with a written summary of their meaning, and discussed them in groups. They identified good practice and suggestions for how to improve the experience of diagnosis and treatment of breast cancer. Conclusion: The photovoice methodology provides a low-cost, easy to implement a way for patients to provide insight into their experience and contribute their knowledge to improve clinical practice. Visual images and patients’ words allow clinicians to have greater insight into the environment and priorities of patients which could have implications for their response to treatment and long-term care.
This paper reflects on an Ethical Review Board’s (ERB) established structure of practice throughout a student-led project. We use the research project as a means of exploring the three questions set by the Editors, Fox and Busher, regarding the role of ERBs throughout the research process. We gained full university-level ethical approval in October 2020. This project initially focused on collecting data from students, from a UK university. The participatory way we collaborated with both undergraduates and postgraduates illuminated their individual unique perspectives and successfully facilitated their agentive contributions. This required on-going simultaneous negotiation of predetermined ethical procedures through the ERB. We termed this iterative process ‘circumnavigating the revolving door’ as it summarised revisiting ethical approval in the light of requests from our student participants. The participants were also invited to be part of the analysis and dissemination phase of this research. Original data collected related to personalised experiences of learning during the on-going global pandemic. The philosophical approach adopted was through an adaptation of Photovoice. That is, with limited direction by the researchers, the participants were invited to construct images (photos or hand drawn pictures), with captions (written text or voice), to explore their own educative circumstances. With this in mind, this paper explores the students’ participatory agency throughout this visual methods project through three lenses: namely, the appropriateness of ethical practices within a contextualised scenario (i.e., researching learning during lockdown in a higher educational institution); how the ethical process of an educational establishment supported the dynamic and iterative nature of participant-led research; and finally, how the original researchers’ experiences can inform ethical regulations and policy, both nationally and internationally. The circumnavigation of the revolving door of participatory ethics has proved invaluable during this research. This iterative cycle was necessary to incorporate the students (or co-researchers) suggested contributions. One example includes gaining the ERB’s approval, post full approval, for participants to audio record their own captions for a public facing website. From originally welcoming the students as participants, to facilitating them to become agentive co-researchers, it became increasingly important to provide them with opportunities to be actively involved in all parts of the research process. The reciprocal iterative relationship developed between co-researcher, researchers and the ERB served to strengthen the outcomes of the project.
Western society places high value on physical beauty and grace of movement, and tends to shun those who do not have these qualities. Disability hate crime highlights the modern form of this violence. This paper uses the high-profile case of Fiona Pilkington to examine how disability hate crime can be dismissed until it results in tragic consequences. Newspapers play a key part in shaping the public's interpretation of disability. An examination of the reports of the coroner's enquiry into the deaths of Fiona and Francesca Pilkington through a qualitative content analysis questions how much progress has been made in reducing the marginalisation of disabled people. IntroductionThe aim of this paper is to examine the historical evidence of violence towards disabled people and to compare this to current violence in the form of modern disability hate crime, as reported in English newspapers of the first highprofile hate crime in the UK. This paper begins with an outline of some of the historical, societal and cultural beliefs towards disabled people prevalent in Western Europe. Media reporting of the coroner's inquest into the deaths of Fiona and Francesca Pilkington provides an example of how newspapers portray this crime. Fiona Pilkington killed her daughter, Francesca, who had intellectual disabilities, before committing suicide. This happened after protracted abuse by local youths and a lack of action by the local police. A content analysis of media coverage of the case by five of the most read British newspapers provides an analysis of beliefs and cultural models about disability. The news frames that emerged from the analysis are discussed, and parallels are drawn between historical events and the modern offence of disability hate crime.
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