La présence d’une incapacité chez un enfant peut poser des défis importants à sa famille. Cet article traite de perceptions des parents concernant cette expérience ainsi que leurs besoins. Il s’agit d’une recherche de type qualitatif. Des entrevues individuelles semi-dirigées ont été réalisées auprès de 24 parents d’enfants présentant les incapacités suivantes : 1) incapacités intellectuelles, 2) problèmes de santé mentale, 3) incapacités visuelles, 4) incapacités auditives, 5) incapacités motrices et 6) traumatisme craniocérébral. Les entrevues ont été analysées à l’aide du logiciel Atlas.ti (Muhr, 1997). Les résultats traitent de leur appréciation des aides et services reçus et de leur expérience familiale.The presence of a child with a disability can pose important challenges within the family. This article concerns the parents’ perceptions of their life experience and their needs. This qualitative design research was realized with 24 parents of children with the following incapacities: 1) intellectual disabilities, 2) mental health problems, 3) visual impairment, 4) hearing impairment, 5) physical disabilities, and 6) traumatic brain injury. The semi-directed individual interviews were analyzed with the software ATLAS.ti (Muhr, 1997). The results present informations about their appreciation of the assistances and services they received and their family life experience
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