Purpose The purpose of this study was to calibrate the items for the Communicative Participation Item Bank (CPIB) using Item Response Theory (IRT). One overriding objective was to examine if the IRT item parameters would be consistent across different diagnostic groups, thereby allowing creation of a disorder-generic instrument. The intended outcomes were the final item bank and a short form ready for clinical and research applications. Methods Self-report data were collected from 701 individuals representing four diagnoses: multiple sclerosis, Parkinson’s disease, amyotrophic lateral sclerosis and head and neck cancer. Participants completed the CPIB and additional self-report questionnaires. CPIB data were analyzed using the IRT Graded Response Model (GRM). Results The initial set of 94 candidate CPIB items were reduced to an item bank of 46 items demonstrating unidimensionality, local independence, good item fit, and good measurement precision. Differential item function (DIF) analyses detected no meaningful differences across diagnostic groups. A 10-item, disorder-generic short form was generated. Conclusions The CPIB provides speech-language pathologists with a unidimensional, self-report outcomes measurement instrument dedicated to the construct of communicative participation. This instrument may be useful to clinicians and researchers wanting to implement measures of communicative participation in their work.

Purpose-To assess the adequacy of self-report instruments in speech-language pathology for measuring a construct called communicative participation.Method-Six instruments were evaluated relative to (a) the construct measured, (b) the relevance of individual items to communicative participation, and (c) their psychometric properties.Results-No instrument exclusively measured communicative participation. Twenty-six percent (n = 34) of all items (N = 132) across the reviewed instruments were consistent with communicative participation. The majority (76%) of the 34 items were associated with general communication, while the remaining 24% of the items were associated with communication at work, during leisure, or for establishing relationships. Instruments varied relative to psychometric properties.Conclusions-No existing self-report instruments in speech-language pathology were found to be solely dedicated to measuring communicative participation. Developing an instrument for measuring communicative participation is essential for meeting the requirements of our scope of practice. WHO, 2001). The purpose of the ICF is to offer clinical providers a common language for describing human functioning and disability, as well as to provide a conceptual framework for gathering data and measuring clinical outcomes. The ICF framework also is useful for speech-language pathologists (SLPs) for describing the consequences of communication disorders at several levels, including communication in social settings. 1 NIH-PA Author Manuscript NIH-PA Author Manuscript NIH-PA Author ManuscriptThe ICF defines a person's functioning and disability in relation to health condition and contextual factors. It has three levels: (a) "Body Functions and Structures," which include the physiological functions of body systems or anatomical elements such as organs, limbs, and their components; (b) "Activities," which are the execution of specific actions; and (c) "Participation," which encompasses involvement in life situations (WHO, 2001). It is well recognized that difficulties in body functions and structures ("Impairments") are the most studied outcomes in communication disorders (Eadie, 2001;Threats, 2000). Impairment measures of speech, language, voice, and fluency include measures of articulatory accuracy, grammatical complexity of language, physiological functioning of the vocal folds, and number of disfluencies, to name but a few. Although many instruments exist at the level of body functions and structures, there is a paucity of instruments as performance challenges become less "biomedical" in nature (Eadie, 2001;Simmons-Mackie, Threats, & Kagan, 2005). This is related to the nature of the problem. That is, it is easier to measure the regularity of vocal fold movement, the accuracy of naming objects, or the percentage of words understood by a listener than it is to measure an individual's ability to participate in valued activities or situations such as negotiating a medical plan with a physician, applying for a job, or persuad...

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Purpose To explore the similarities and differences in self-reported restrictions in communicative participation across different communication disorders in community-dwelling adults. Methods Interviews were conducted with 44 adults representing seven different medical conditions: spasmodic dysphonia, multiple sclerosis, stroke, stuttering, Parkinson’s disease, amyotrophic lateral sclerosis, and laryngectomy. This paper represents a secondary analysis of qualitative data collected in cognitive interviews during development of the Communicative Participation Item Bank. The data were analyzed to identify themes in participants’ experiences related to communicative participation. Results Participants described many situations in which they experienced interference in communicative participation. Two themes emerged from the data. The first theme was Interference is both “functional” and “emotional” in which participants defined interference as limitations in accomplishing tasks and emotional consequences. The second theme was “It depends” - Sources of interference in which participants described many variables that contribute to interference in participation. Participants had limited control of some variables such as symptoms and environmental contexts, but personal decisions and priorities also influenced participation. Conclusions Despite different impairments and activity limitations, participants described similar communicative participation restrictions. These similarities may have theoretical and clinical implications in terms of how we assess, treat and study the participation restrictions associated with communication disorders.

Study design: Scoping review. Objectives: To gain a better understanding of the prevalence, course and association with age of secondary health conditions in individuals with spinal cord injury (SCI). Setting: Seattle, Washington, USA. Methods: We performed searches of electronic databases for studies published from 1986-2011 that provided information regarding the prevalence, course or associations with age and duration of secondary health conditions in individuals with SCI. Results: Ninety-two studies were included. The findings indicate that: (1) individuals with SCI experience a number of secondary health conditions, many of which occur at a higher rate in those with SCI than the normative population; (2) the most common conditions or symptoms are pain, bowel and bladder regulation problems, muscle spasms, fatigue, esophageal symptom and osteoporosis; (3) a number of conditions, including cardiovascular disease, diabetes, bone mineral density loss, fatigue and respiratory complications or infections, occur with higher frequency in older individuals or those with longer SCI duration, relative to younger individuals or those with shorter SCI duration; and (4) there is a marked lack of longitudinal research examining the natural course of health conditions in individuals aging with SCI. Conclusions: The findings support the conclusion that individuals with SCI show signs of 'premature aging' in different organ systems. Longitudinal research is needed to understand when problems are most likely to emerge, and to develop and test the efficacy of interventions to prevent these health conditions and their negative impact.