A very large grey area exists between translational stem cell research and applications that comply with the ideals of randomised control trials and good laboratory and clinical practice and what is often referred to as snake-oil trade. We identify a discrepancy between international research and ethics regulation and the ways in which regulatory instruments in the stem cell field are developed in practice. We examine this discrepancy using the notion of 'national home-keeping', referring to the way governments articulate international standards and regulation with conflicting demands on local players at home. Identifying particular dimensions of regulatory tools - authority, permissions, space and acceleration - as crucial to national home-keeping in Asia, Europe and the USA, we show how local regulation works to enable development of the field, notwithstanding international (i.e. principally 'western') regulation. Triangulating regulation with empirical data and archival research between 2012 and 2015 has helped us to shed light on how countries and organisations adapt and resist internationally dominant regulation through the manipulation of regulatory tools (contingent upon country size, the state's ability to accumulate resources, healthcare demands, established traditions of scientific governance, and economic and scientific ambitions).
Rights-based approaches have become prevalent in development rhetoric and programmes in countries such as India, yet little is known about their impact on development practice on the ground. There is limited understanding of how rights work is carried out in India, a country that has a long history of indigenous rights discourse and a strong tradition of civil society activism on rights issues. In this article, we examine the multiple ways in which members of civil society organizations (CSOs) working on rights issues in the state of Rajasthan understand and operationalize rights in their development programmes. As a result of diverse 'translations' of rights, local development actors are required to bridge the gaps between the rhetoric of policy and the reality of access to healthcare on the ground. This article illustrates that drawing on community-near traditions of activism and mobilization, such 'translation work' is most effective when it responds to local exigencies and needs in ways that the universal language of human rights and state development discourse leave unmet and unacknowledged. In the process, civil society actors use rights-based development frameworks instrumentally as well as normatively to deepen community awareness and participation on the one hand, and to fix the state in its role as duty bearer of health rights, on the other hand. In their engagement with rights, CSO members work to reinforce but also challenge neoliberal modes of health governance.
This article examines the changing dynamics of development in India, focusing on partnerships between civil society organisations (CSOs)1 and the state in the area of rural health. Drawing on ethnographic perspectives of CSO work, we examine the shifting meaning of these partnerships for the institutions involved and how they function given their differing institutional cultures and values. We argue that the adoption by the state of a global language of rights and its efforts to integrate civil society language, practices and representatives in the policy and implementation of health programmes point to collaborationist models which support the creation of an ‘activist’ state, as they simultaneously strengthen as well as weaken the role of CSOs as mediators in development.
This article engages with anthropological approaches to the study of global human rights discourses around reproductive and maternal health in India. Whether couched in the language of human rights or of other social justice frameworks, different forms of claims-making in India exist in tandem and correspond to particular traditions of activism and struggle. Universal reproductive rights language remains a discourse aimed at the state in India, where the primary purpose is to demand greater accountability in the domain of policy and governance. Outside of these spheres, other languages are strategically chosen by activists for their greater resonance in addressing individual cases of women claiming reproductive violence within the context of the family as well as localized histories of feminist struggle and social justice. In focusing on the work of legal activists and the discourses which inform their interventions, this article seeks to understand how the language of reproductive rights is used in the context of India, not as a 'Western import' which is adapted to local contexts, but rather as one of multiple frameworks of claims-making drawn upon by legal activists emerging from distinct histories of struggle for gender equality and social justice.
In this article, I examine the seeming paradox of Hindu–Muslim romantic affairs in the wider context of communalism in Gujarat in the wake of the 2002 anti-Muslim violence. At the outset, such affairs appear to embody the most extreme form of taboo, both in their defiance of conventional arranged marriage systems (where caste endogamy and shared religious affiliation play a paramount role) as well as in the wider socio-political context in which Hindus and Muslims are viewed as irreconcilable enemies, or at least oppositional in lifestyle, beliefs, and values. Yet, while media reports in recent years have highlighted similar cases of transgressive liaisons elsewhere in India which have been met with extreme violence, the couplings which I describe in this article, are in practice tolerated by kin and neighbours as an ‘open secret’ which, while public knowledge, has not incurred strong retribution. While love has often been presented as a force for emancipation from the constraints of social conventions and norms in the popular media, I argue that this ‘toleration’ of inter-religious liaisons in the cases I describe suggests the very opposite: namely, that they do not present a significant challenge to entrenched social divisions at the local level.
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