NPs need to evaluate written educational materials that are used as part of a multifaceted approach to the care of children with chronic illnesses. A planned systematic evaluation provides the NP with information about the efficacy and usefulness of the written educational materials. These materials may help empower children and caregivers to manage their long-term illnesses.
While the majority of EMS providers have responded to patients enrolled in hospice care, few providers received formal training on how to care for this population. EMS providers have expressed a need for a formal curriculum on the care of the patient receiving hospice.
Appreciate the opportunity for early palliative care intervention in ambulatory patients with Glioblastoma multiforme (GBM). Aim. Glioblastoma Multiforme (GBM) is a relatively rapid and uniformly fatal illness. Standard treatment with radiation therapy and chemotherapy, following biopsy or resection, unquestionably, but modestly, improves survival. The presenting neurologic deficits and inexorable eventual decline herald a need for palliative care (PC) at some point in the course of this illness. In an attempt to quantitate the PC needs of such patients at baseline, we assessed the symptom burden and frequency of advanced care planning in GBM patients treated at an urban outpatient Cancer Center. Methods. The Maimonides Cancer Center (MCC) Registry was queried to identify patients seen from 2008-2012 with a diagnosis of GBM. IRB approval was obtained to identify symptom burden and the presence or absence of a healthcare proxy (HCP) and advance directives (AD) following diagnosis, but before non-surgical treatment.
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