The educational system of Quebec is one of the distinctive features of the province. In its origins, its philosophy, and its legal and academic organization, it differs in striking fashion from the other North American systems. In no other province, of course, does one find the same differences of race, religion, and language: 82 per cent of the population is French-speaking, 88 per cent is Roman Catholic; the remainder is made up of English-speaking and Protestant elements. This demographic duality is reflected in the school system, the majority of the population having created educational institutions in conformity with its ideals, while leaving the minority entirely free to do the same.
Most Canadians with dementia die in long-term care (LTC) facilities. No data are routinely collected in Canada on the quality of end-of-life care provided to this vulnerable population, leading to significant knowledge gaps. The Quebec Observatory on End-of-Life Care for People with Dementia was created to address these gaps. The Observatory is a research infrastructure designed to support the collection of data needed to better understand, and subsequently enhance, care quality for residents dying with dementia. This article reports on the main steps involved in setting up the Observatory, as well as a pilot study that involved 172 residents with dementia who died between 2016 and 2018 in one of 13 participating facilities. It describes the data gathered, methodological changes that were made along the way, feedback from participating facilities, and future developments of the Observatory.
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