The COVID-19 epidemic has hit residents and staff of congregate long-term care communities particularly hard. In North Carolina, the site of this research, over half of registered mortality has been associated with congregate living communities. This article reports on phase one of a rapid qualitative assessment of long-term care professionals and regional aging staff navigating care during this epidemic. Our purpose is twofold. We demonstrate both the value of rapid qualitative appraisals to capture the perspectives and concerns of COVID-19’s long-term care workers and area aging staff, in this case, the staff and advocates that care for and protect the rights of long-term care community residents as well as present data collected in this phase. Key points raised focus on safety, including access and use of personal protective equipment, infection control, limited testing, and staffing issues. In addition, participants expressed concerns about the physical and mental health of residents because they have been isolated from family and friends since the executive order closed these communities to all non-essential people. We will utilize these data, in collaboration with staff and advocates, to inform policy and programming to better address the needs of both residents and staff of long-term care communities.
While applied anthropological research is sometimes envisioned as a linear process, we present an alternative view based on our research with frontline workers providing long‐term care (LTC) for older adults during COVID‐19. We completed a rapid qualitative assessment in central North Carolina from May to November 2020. We conducted data analysis as we continued to collect data and implemented activities and interventions along the way. We report emerging findings that included the deleterious effects of isolation on older adults in both congregate and community‐based LTC, the value of creatively using technology as an avenue for communication and engagement, the importance of leadership and flexibility, as well as an abundance of mental health struggles LTC workers faced in caring for older adults during COVID‐19. We present how we were able to address these in a variety of ways during the inductive research process because of iterative analysis that occurred alongside continued data collection.
Our study draws from the narratives of 30 staff caring for residents in congregate care communities in central North Carolina from June-September 2020. It is part of phase 2 of an on-going 3-phase rapid qualitative appraisal of workers providing longterm care to older adults with the purpose of disseminating findings to key stakeholders to inform policy, programming, and funding decisions. The 3-phase project involves semi-structured interviews with 60+ participants that were videorecorded using a web-based platform. We report on the emotional and visceral experiences of these direct care workers providing care during the pandemic. We organize the data into four affect categories: fear/anxiety, sadness/grief, anger/frustration, and trauma/stress. The 30 participants include nurses, activities staff, med techs, CNAs, housekeepers, dining staff, chaplains and administrators at nursing homes, assisted living communities, memory care units and continuing care retirement communities. We amplify the voices of these formal caregivers in order to demonstrate how their sensorial and emotive experiences can speak to the human suffering they bore witness to, the underlying ageism that permeates our culture, and the social hierarchy that devalues their labor and their worth as they serve on the frontlines during this unprecedented global pandemic.
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