Co-production is commonly conceptualised as a more equal sharing of power and decision-making between a dichotomy of service user and service provider, each bringing valuable and different assets to the process. Experts by experience lie in the overlap between this conceptually created duality, providing the services they now do by virtue of having once used services themselves. Previous related studies suggest that their involvement in co-production could impact positively on their social capital, self-esteem, self-efficacy and life skills. However, no studies have been explicitly psychological or phenomenological in nature, and the theoretical basis for such outcomes remains under-developed. This phenomenological study explored the psychological impact of co-production for young people who were paid experts by experience for a young person's mental health charity in a large and diverse urban area in the UK, looking at the what of psychological impact, as well as the theoretical why and how. Semi-structured interviews were conducted with a convenience sample of five males, with a mean age of 25 years. Interpretative phenomenological analysis yielded three master themes: the co-production approach, I'm a professional and identities in transition. Participants valued a collegiate organisational approach that prioritised empowerment, agency and equality between experts by experience and 'experts by qualification', leading to a positive impact on their self-efficacy and self-esteem. Co-production impacted fundamentally on their identity structure, enabling them to explore a new identity as a 'professional'. The results are framed within identity process theory and point to the potential benefits of this model to co-production.
This qualitative study explored the views of family carers about the support that their adult children with an intellectual disability had received in relation to their behaviour that challenged. There was a particular focus on positive behavioural support (PBS), although some participants spoke more generally in terms of positive approaches.Semi-structured interviews with eight family carers were analysed using inductive thematic analysis. Four key themes were identified. Good support, of which PBS was an example, was seen as both having reduced behaviours that challenged and having a wider positive impact on the quality of life of the individual and their families. Key features highlighted were: technical knowledge and skill; a strong value base of warmth, acceptance and respect; a collaborative, consistent approach; open communication;and the extension of support to the family carer when needed. It was recognised that there is a need for broad systemic change and for the application of a workforce development model that takes account of the needs of staff, carers and those working in wider systems that have contact with people with an intellectual disability. K E Y W O R D Sadult learning disability services, behaviour change, carers, challenging behaviour | INTRODUCTIONBehaviours that challenge are thought to be prevalent among 10%- There is, however, to the authors' knowledge, no research which explores the views of family carers in relation to their adult family member receiving PBS. The present study aims to address this gap in the literature. Specifically, the study aimed to understand more about how family carers conceptualised PBS and how they had experienced this in relation to their family member. | METHODS | DesignThe study adopted a contextualist approach which gives weight to individuals' subjective experiences within the social context that shapes how they give meaning to them (Willig, 1999). Inductive thematic analysis was chosen because it is largely non-theoretical and is not underpinned by a particular epistemological stance (Braun & Clarke, 2006). The study received ethics approval from the first author's educational establishment. | ParticipantsParticipants were recruited using purposive sampling via support and advocacy organisations in the North of England which provide support to people with intellectual disability. Purposive sampling was chosen because we were interested in particular characteristics of the participants, i.e. their experiences of support that their family member had received. Three interviews and one focus group were conducted, based on the expressed preferences of the participants. Five of the participants (three interviewees and two focus group members) had adult children with intellectual disability and behaviour that challenged. The remaining three focus group members had experience of support for a family member with intellectual disability which was not specifically named as PBS, but was viewed as "positive" and contrasted with past experiences of unhelpfu...
Accessible Summary People with a learning disability do not always get good support We wanted to know what they thought about positive behavioural support They told us many important things about good and bad support Good support included being treated as a human being, having a good and full life and being helped with behaviour and skills. Abstract BackgroundThere is a growing evidence base about the effectiveness of positive behavioural support (PBS) in relation to behaviours that challenge (CB). There is, however, limited research from the perspective of individuals receiving this support. The objective of this qualitative study was to obtain the views of participants with an intellectual disability about what was important to them in relation to receiving PBS. Materials and methodsSeven participants with an intellectual disability, recruited via support organisations in the North East of England, gave their views about their support through interviews (n = 3) and a focus group (n = 4). Data were collected between April and June 2016 and were analysed using thematic analysis. ResultsFour themes were identified: the importance of being treated as a human being; the wider impact of PBS; the contrast of PBS with previous experiences of support; and the beneficial impact of positive support. PBS was valued for its wide impact on quality of life, with a reduction in CB being just one of many important aspects. ConclusionThis study highlights the importance of including service user perspectives and quality‐of‐life indicators in research which evaluates service provision and support.
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