Adult siblings are potentially important sources of care, support, advocacy, and friendship for their brothers and sisters with intellectual and developmental disabilities (IDD). Drawing on data about 851 adult siblings who completed an online national survey, we examined predictors and potential key moderators of siblings’ mental distress, wellbeing, quality of life, and health outcomes. Moderated regression analyses indicated that siblings experiencing higher levels of subjective poverty; siblings with brothers and sisters with lower levels of independence; and siblings who are carers and also experiencing low levels of subjective poverty, had worse outcomes and may be in need of specific supports. Compared to normative samples, adult siblings of people with IDD had worse outcomes across the measures.

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Purpose The purpose of this paper is to provide a commentary on the article by Chase and McGill from the perspective of Sibs, the only UK-wide charity dedicated to supporting siblings of disabled children and adults. Design/methodology/approach This commentary explores the implication of Chase and McGill’s findings for sibling support. Findings The article highlights how siblings need greater support throughout their life and argues that their views must influence the provision and development of that support. Originality/value This viewpoint focuses on the needs of adult siblings, often a forgotten group facing unique challenges and shared experiences.