Although claims to “give voice” to children through qualitative inquiry seem morally just and have been largely framed by good intentions, critical scholarship has called for reflexive reconsiderations of such claims. Re/presentations of voice permeate published accounts of qualitative research with children; similarly, voice is a term invoked frequently in qualitative research with informants of all ages. In this article, we follow Spyrou’s notion of “troubling” to review, critique, and synthesize key works by critical child-focused scholars who have reflexively queried and worked with the epistemological and methodological limits of “giving voice” to children through qualitative inquiry. Building on the reviewed literature, as well as poststructural approaches to framing voice in research more generally, we briefly discuss how we have built on these critiques in our own research. In so doing, we join ongoing dialogues aimed at generating alternative approaches to theorizing and re/presenting children’s perspectives in qualitative inquiry more justly.
Background The transition to parenting—that is, the journey from preconception through pregnancy and postpartum periods—is one of the most emotionally charged and information-intense times for individuals and families. While there is a developing body of literature on the use and impact of digital technology on the information behaviors of children, adolescents, and young adults, personal use of digital technology during the transition to parenting and in support of infants to 2 years of age is relatively understudied. Objective The purpose of this study was to enhance our understanding of the ways digital technologies contribute to the experience of the transition to parenting, particularly the role these technologies play in organizing and structuring emerging pregnancy and early parenting practices. Methods A qualitative descriptive study was conducted to understand new parents’ experiences with and uses of digital technology during 4 stages—prenatal, pregnancy, labor, and postpartum—of their transition to becoming a new parent. A purposive sampling strategy was implemented using snowball sampling techniques to recruit participants who had become a parent within the previous 24 months. Focus groups and follow-up interviews were conducted using semistructured interview guides that inquired about parents’ type and use of technologies for self and family health. Transcribed audio recordings were thematically analyzed. Results A total of 10 focus groups and 3 individual interviews were completed with 26 participants. While recruitment efforts targeted parents of all genders and sexual orientations, all participants identified as heterosexual women. Participants reported prolific use of digital technologies to direct fertility (eg, ovulation timing), for information seeking regarding development of their fetus, to prepare for labor and delivery, and in searching for a sense of community during postpartum. Participants expressed their need for these technologies to assist them in the day-to-day demands of preparing for and undertaking parenting, yet expressed concerns about their personal patterns of use and the potential negative impacts of their use. The 3 themes generated from the data included: “Is this normal; is this happening to you?!”, “Am I having a heart attack; what is this?”, and “Anyone can put anything on Wikipedia”: Managing the Negative Impacts of Digital Information. Conclusions Digital technologies were used by mothers to track menstrual cycles during preconception; monitor, document, and announce a pregnancy during the prenatal stage; prepare for delivery during labor/birth stage; and to help babies sleep, document/announce their birth, and connect to parenting resources during the postpartum stage. Mothers used digital technologies to reassure themselves that their experiences were normal or to seek help when they were abnormal. Digital technologies provided mothers with convenient means to access health information from a range of sources, yet mothers were apprehensive about the credibility and trustworthiness of the information they retrieved. Further research should seek to understand how men and fathers use digital technologies during their transition to parenting. Additionally, further research should critically examine how constant access to information affects mothers’ perceived need to self-monitor and further understand the unintended health consequences of constant surveillance on new parents.
This paper presents results of a qualitative descriptive study conducted to understand parents’ experiences with digital technologies during their transition to parenting (i.e. the period from pre-conception through postpartum). Individuals in southwest Ontario who had become a new parent within the previous 24 months were recruited to participate in a focus group or individual interview. Participants were asked to describe the type of technologies they/their partner used during their transition to parenthood, and how such technologies were used to support their own and their family's health. Focus group and interview transcripts were then subjected to thematic analysis using inductive coding. Ten focus groups and three individual interviews were conducted with 26 heterosexual female participants. Participants primarily used digital technologies to: (1) seek health information for a variety of reproductive health issues, and (2) establish social and emotional connections. The nature of such health information work was markedly gendered and was categorized by 2 dominant themes. First, “‘Let me know when I’m needed’”, characterizes fathers’ apparent avoidance of health information seeking and resultant creation of mothers as lay information mediaries. Second, “Information Curation”, captures participants’ belief that gender biases built-in to popular parenting apps and resources reified the gendered nature of health and health information work during the transition to parenting. Overall, findings indicate that digital technology tailored to new and expecting parents actively reinforced gender norms regarding health information seeking, which creates undue burden on new mothers to become the sole health information seeker and interpreter for their family.
While emerging digital health technologies offer researchers new avenues to collect realtime data, little is known about current ethical dimensions, considerations, and challenges that are associated with conducting digital data collection in research with minors. As such, this paper reports the findings of a scoping review which explored existing literature to canvass current ethical issues that arise when using digital data collection in research with minors. Scholarly literature was searched using electronic academic databases for articles that provided explicit ethical analysis or presented empirical research that directly addressed ethical issues related to digital data collection used in research with minors. After screening 1,156 titles and abstracts, and reviewing 73 full-text articles, 20 articles were included in this review. Themes which emerged across the reviewed literature included: consent, data handling, minors' data rights, observing behaviors that may result in risk of harm to participants or others, private versus public conceptualizations of data generated through social media, and gatekeeping. Our findings indicate a degree of uncertainty which invariably exists with regards to the ethics of research that involves minors and digital technology. The reviewed literature suggests that this uncertainty can often lead to the preclusion of minors from otherwise important lines of research inquiry. While uncertainty warrants ethical consideration, increased ethical scrutiny and restricting the conduct of such research raises its own ethical challenges. We conclude by discussing and recommending the ethical merits of co-producing ethical practice between researchers and minors as a mechanism to proceed with such research while addressing concerns around uncertainty.
The rapid rise and widespread integration of digital technologies (e.g., smartphones, personal computers) into the fabric of our society has birthed a modern means of delivering healthcare, known as digital health. Through leveraging the accessibility and ubiquity of digital technologies, digital health represents an unprecedented level of reach, impact, and scalability for healthcare interventions, known as digital behaviour change interventions (DBCIs). The potential benefits associated with employing DBCIs are of particular interest for populations that are disadvantaged to receiving traditional healthcare, such as rural populations. However, several factors should be considered before implementing a DBCI into a rural environment, notably, digital health literacy. Digital health literacy describes the skills necessary to successful navigate and utilize a digital health solution (e.g., DBCI). Given their limited access to high-speed internet, higher cost associated for similar services, and poorer development of information and communication technologies (ICTs), most rural populations likely report lower digital health literacy – specifically, computer literacy, the ability to utilize and leverage digital technologies to solve problems. Hence, DBCIs should address this ‘digital divide’ between urban and rural populations before implementation. Practical solutions could include evaluating rural communities’ access to ICTs, needs assessments with rural community members, as well as integrating rural community stakeholders into the design of digital literacy education and interventions.
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