Background Social support groups are an important resource for people to cope with problems. Previous studies have reported the different types of support in these groups, but little is known about the type of reactions that sharing of personal experiences induce among members. It is important to know how and to what extent members of support groups influence each other regarding the consumption of medical care. We researched this in a web-based Facebook group of women sterilized with Essure. Essure was a device intended for permanent contraception. From 2015 onward, women treated with Essure for tubal occlusion raised safety concerns and numerous complaints. Objective This study aimed to evaluate the use of social support in a Facebook community named “Essure problemen Nederland” (EPN; in English, “Essure problems in the Netherlands”). Methods All posts in the closed Facebook group EPN between March 8 and May 8, 2018, were included. In total, 3491 Facebook posts were analyzed using a modified version of the Social Support Behavior Codes framework created by Cutrona and Suhr in 1992. Posts were abstracted and aggregated into a database. Two investigators evaluated the posts, developed a modified version of the Social Support Behavior Codes framework, and applied the codes to the collected data. Results We found that 92% of messages contained a form of social support. In 68.8% of posts, social support was provided, and in 31.2% of posts, social support was received. Informational and emotional support was the most frequently used form of provided social support (40.6% and 55.5%, respectively). The same distribution was seen with received social support: informational support in 81.5% and emotional support in 17.4% of cases. Our analysis showed a strong correlation between providing or receiving social support and the main form of social support (P<.001). In a total of only 74 (2.2%) cases, women advised each other to seek medical care. Conclusions The main purpose of women in the EPN Facebook group was to provide and receive informational or emotional support or both.
BACKGROUND Social support groups are an important resource for people to cope with problems. Previous studies have reported the different types of support in these groups, but little is known about the type of reactions that sharing of personal experiences induce among members. It is important to know how and to what extent members of support groups influence each other regarding the consumption of medical care. We researched this in a online Facebook group of women sterilized with Essure®. Essure® was a device for permanent contraception. From 2015 onwards, women treated with Essure® for tubal occlusion raised safety concerns and experience numerous of complaints. OBJECTIVE To evaluate the use of social support in a Facebook community of Essure® Problems Netherlands. METHODS All post in a closed online Facebook group named: Essure Problems Netherlands between March 8 and May 8 of 2018 were included. In total 3,491 Facebook posts were analysed using a modified version on the social support behaviour code created by Cutrona and Suhr (1992). Posts were abstracted and aggregated into a database. Two investigators evaluated the posts, developed a modified version on the social support behaviour code book, and applied codes to data. RESULTS Results show that 92% messages contained a form of social support. In 68,8% of posting social support was given and in 31,2% social support was received. Informational and emotional support are the most frequently used form of given social support (53.4 and 43.6%, respectively). The same distribution is seen with receiving social support: informational support in 81,5% and emotional in 17,4% of the cases. CONCLUSIONS The main purpose of women in the Essure® problems group was to give and receive informational and/or emotional support.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
customersupport@researchsolutions.com
10624 S. Eastern Ave., Ste. A-614
Henderson, NV 89052, USA
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Copyright © 2024 scite LLC. All rights reserved.
Made with 💙 for researchers
Part of the Research Solutions Family.