IntroductionOnline communities contain a wealth of information containing unsolicited patient experiences that may go beyond what is captured by guided surveys or patient-reported outcome (PRO) instruments used in clinical settings. This study described patient experiences reported online to better understand the day-to-day disease burden of ankylosing spondylitis (AS).MethodsUnguided, English-language patient narratives reported between January 2010 and May 2016 were collected from 52 online sources (e.g., general/health social networking sites, patient–physician Q&A sites, AS forums). Using natural language processing combined with manual curation, patient-reported experiences within narratives were evaluated and categorized into social, physical, emotional, cognitive, and role activity (SPEC-R) concepts to assess functional impairment. The same SPEC-R categorization was applied to 5 AS-specific PRO instruments to evaluate their coverage of concepts extracted from patient narratives.ResultsA total of 34,780 narratives from 3449 patients with AS were included. Physical aspects of AS (e.g., pain and mobility) were most commonly reported by patients (86.7%), followed by emotional (32.5%), cognitive (23.6%), role activity (8.7%) and social (5.1%). Some frequently discussed subconcepts were effectively captured by ≥ 2 PRO instruments, such as pain (65.3%), asthenia (19.9%), musculoskeletal impairment (19.9%), depression (9.9%), and anger/frustration (5.4%); others [e.g., anxiety (19.1%), mental impairment (3.2%), impulsivity (2.9%)] were not addressed by any of the PRO instruments.ConclusionThese findings highlight the importance of analyzing patient experiences beyond clinical trial settings and physician reports; continuous assessment of existing PRO instruments in collaboration with patients may increase their utility in real-world settings.FundingNovartis Pharmaceuticals Corporation.Electronic supplementary materialThe online version of this article (10.1007/s12325-018-0669-1) contains supplementary material, which is available to authorized users.
This research aimed to interpret motivations of tourists for agritourism in Fiji. Data was collected through a paper-based face to face survey. Structured questionnaires were administered to a convenience sample of tourists at the two international airports. Descriptive and factorial statistics reveal seven principal factors that motivate and influence visitor preferences for agritourism venues. Most tourists seemed interested in agritourism but presently were unaware of the existence of such venues in Fiji. Findings also suggest that tourists preferred a short stay at working farms offering value for money experience. In terms of importance, hospitality followed by entertainment, were the two main desired services for an agritourism venue. This research offers insights for dynamic product development for the Fijian and Pan-Pacific agritourism industry.
Tourism is a global phenomenon yet non-Western travel and tourism mobilities are under-researched and lack theoretical development. In the South Pacific, a region which is increasingly receiving geopolitical attention, there is substantial knowledge of inbound tourism but outbound and domestic forms of travel are less known. To understand the travel and tourism mobilities of Samoans, a concurrent mixed methods design of surveys supplemented by interviews with both urban and rural Samoans was employed. Samoan understandings of travel and tourism are expressed via the concept of malaga, which has a range of meanings including 'migration', 'movement' or 'travel back and forth'. For Samoans, travel was for cultural and familial purposes, including the maintenance of cultural bonds through fa'alavelave (traditional obligations) and visiting friends and relatives (VFR). The migration of Samoans to various Pacific countries such as Australia, New Zealand and the USA has generated more need for travel and has helped to make mobility a routine aspect of Samoan social life. The travel mobilities of both urban and rural Samoans were influenced by a mix of cultural and familial obligations, leisure and tourism goals, and work-related purposes, blurring the lines between tourism and other forms of mobility. This paper advances knowledge of Samoan forms of travel and tourism mobility, providing important insights into the travel practices of a Pacific Islander people at a time when the South Pacific is becoming a site of intensifying geopolitical competition. 摘要 旅游是一种全球性的现象, 而非西方的旅行和旅游移动性却缺乏 足够的研究和理论发展。在日益受到地缘政治关注的南太平洋 地区, 学术界对该地区入境旅游了解较为深入, 但对该地区的出 境和国内旅游形式了解较少。为了了解南太平洋居民的旅游移 动性, 本文采用了共时性的混合方法研究设计, 并辅以对萨摩亚 群岛城市和农村居民的访谈。萨摩亚人对旅游的理解是通过马 拉加(malaga)的概念来表达的, 马拉加有一系列的含义, 包括 "迁移"、"移动"或"反复地出行"。对萨摩亚人来说, 旅行是为了文 化和家庭目的, 包括通过传统义务和探亲访友来维持文化联系。 萨摩亚人向澳大利亚、新西兰和美国等太平洋国家的迁移产生 了更多的旅行需求, 并有助于使其移动性成为萨摩亚日常的社会 生活的一个方面。城市和农村萨摩亚人的旅游活动受到文化和 家庭义务、休闲和旅游目标以及与工作有关的目的等多种因素 ARTICLE HISTORY
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