The Descriptor Differential Scale (DDS) applies psychophysical principles to clinical pain assessment. It contains 12 descriptor items for each pain dimension assessed. For each item, subjects indicate if their pain either is equal in magnitude to that implied by the anchoring descriptor, or how much greater or lesser on a 10-point graphic scale. The method permits collection of multiple responses, reducing scaling error, and assess both pain magnitude and scaling consistency. Ninety-one patients completed the sensory intensity and unpleasantness forms of the DDS at both 1 and 2 h after surgical extraction of a lower third molar. Results show that the DDS satisfies standard psychometric criteria for reliability, objectivity and item homogeneity. The coefficients found satisfy standard psychometric criteria and improve after elimination of inconsistent profiles.
Professional psychologists are increasingly likely to encounter opportunities to work with patients and families facing end-of-life issues. Psychologists can provide psychological assessment, intervention for patients and families, consultation with and support of health care team members, grief therapy, and program development and evaluation. Psychological services are useful for healthy individuals who wish to make thoughtful plans about their own future care, patients with life-limiting illnesses, families stressed by providing end-of-life care, bereaved individuals, and health care providers who face issues of burnout and strain. Several challenges for psychologists working in end-of-life care are noted, including training, development of clear roles, and reimbursement. "My mother is dying from breast cancer. Her oncologist told me that she will probably only live a few more months no matter what he does, but she is continuing her radiation and chemotherapy anyway. I think they both want to keep her hopes up. It's so awkward not being able to talk with her realistically about her future. The stress of seeing her go through this and doing what I can to take care of her is so depressing. I wonder whether she would benefit from hospice care but I am afraid to raise the issue and don't want to seem like I am giving up. All of this makes me very scared about my own aging-I don't want to die in a hospital connected to a bunch of tubes and machines. What should I do?" Professional psychologists are increasingly likely to have such conversations with their patients. As psychology increasingly demonstrates its value beyond traditional mental health areas, in such diverse fields as primary care and health psychology (Brown et al.
The importance of interdisciplinary care for patients and families facing the end of life is examined. Descriptions of varying forms of team functioning are provided with an emphasis on the characteristics of high-functioning interdisciplinary teams. The value of empowering the patient and family to direct the care they receive from their team is emphasized. Interdisciplinary team interventions in end-of-life care focus on the biopsychosocial and spiritual dimensions of human experience and facilitate growth and development in the last phase of life. Despite its great promise for improving patient care, the interdisciplinary model is notwith the exception of hospice care-widely implemented in today's health care system. The contributions of interdisciplinary teams to end-of-life care can be enhanced through the development of interdisciplinary team training programs, the creation of payment structures that support the interdisciplinary team model, and continuing research assessing the dynamics of team functioning and the benefits that interdisciplinary team care provides to patients and families near the end of life.Interdisciplinary team care is in general not well represented in either the health care system or in the published literature that studies this system. However, interdisciplinary team care is a key ingredient in health care for patients with chronic or life-threatening illness because these patients present a range of problems that affect all dimensions of human experience and that require the expertise of many professional disciplines. How these disciplines work together 340
Research focused on the psychosocial aspects of the experience of persons with cancer and their family caregivers is hampered by the methodological challenges inherent in quality of life research. A data registry offers a potential solution to many of these problems in providing a large, comprehensive database, using standardized instruments. We report here our preliminary experience with establishing a Psychosocial Registry designed to advance research in the psychological, social, and spiritual aspects of quality of life of newly diagnosed cancer patients and their family caregivers. The first six months of enrollment demonstrated that the majority of newly diagnosed patients approached for consent (68%) and their primary family caregiver (92%) were willing to participate in the registry; of these, 80% also agreed to be contacted in the future for additional studies. Face-to-face interview was the preferred method of data collection. Our preliminary experience suggests that continuation of the registry with the current modest level of resources would generate a sample of approximately 1000 patients in three years. The long-range goal is to establish a national psychosocial data registry that will enroll patients at diagnosis and follow them through the entire cancer experience, including end of life or survivorship.
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