Background: Treatment for pediatric cancer generates costs that place sizeable demands on family finances relative to household income. Little is known about whether children sense that their cancer has created financial problems for the family. The study purpose was to describe parents' perceptions about whether their child sensed that pediatric cancer created financial problems for their family.Procedure: Family Communications Theory informed our study. We used descriptive statistics and content analysis to examine parents' (n = 417) responses to questions about the child's sense of pediatric cancer-related financial problems from a larger survey study.Results: Approximately 56.2% of parents indicated that their child had no sense of the pediatric cancer-related financial problems and 44.1% indicated their child had some. Proportions of children perceived to sense these financial problems steadily increased with age grouping, while proportions perceived to have none declined. With content analysis, we identified cognitive capacity as the key child factor influencing children's sense of these problems. Influential context factors included social norms, observed changes in family routines and spending patterns, and overheard conversations between adults. Child psychological outcomes included guilt, anxiety about money, and feelings of being a burden. Conclusion:Pediatric oncology professionals and staff should be mindful of parent preferences about burdening children with sensitive financial information, and modify their behaviors and processes accordingly. They can also provide anticipatory guidance and psycho-education about psychological responses related to the effects of pediatric cancer on family finances and the role of cognitive development in the evolution of children's awareness of those effects.
Objective This study examined the perspectives on the use of data visualizations and identified key features seriously ill children, their parents, and clinicians prefer to see when visualizing symptom data obtained from mobile health technologies (an Apple Watch and smartphone symptom app). Materials and Methods Children with serious illness and their parents were enrolled into a symptom monitoring study then a subset was interviewed for this study. A study team member created symptom data visualizations using the pediatric participant’s mobile technology data. Semi-structured interviews were conducted with a convenience sample of participants (n = 14 children; n = 14 parents). In addition, a convenience sample of clinicians (n = 30) completed surveys. Pediatric and parent participants shared their preferences and perspectives on the symptom visualizations. Results We identified 3 themes from the pediatric and parent participant interviews: increased symptom awareness, communication, and interpretability of the symptom visualizations. Clinicians preferred pie charts and simple bar charts for their ease of interpretation and ability to be used as communication tools. Most clinicians would prefer to see symptom visualizations in the electronic health record. Discussion Mobile health tools offer a unique opportunity to obtain patient-generated health data. Effective, concise symptom visualizations can be used to synthesize key clinical information to inform clinical decisions and promote patient-clinician communication to enhance symptom management. Conclusions Effectively visualizing complex mobile health data can enhance understanding of symptom dynamics and promote patient-clinician communication, leading to tailored personalized symptom management strategies.
This study aimed to validate a translated and culturally adapted version of the Infant Feeding Intentions (IFI) Scale for use in Thailand. Prenatal breastfeeding intention is a strong indicator of breastfeeding initiation. The stronger the intention to breastfeed among pregnant women, the more likely breastfeeding will be initiated after childbirth and continue for an extended period. There are currently no IFI scales that have been validated for use in Thailand. The translation of the IFI scale from English to Thai was conducted through a six-stage approach that included initial translation, synthesis of translations, back-translation, expert committee review for content validity, reliability testing, and submission of the translated IFI to notify the scale developers. Both Item and Scale Content Validity Indices equaled 1, scored by five experts, who also validated the content for cross-cultural adaptation. The final Thai IFI (T-IFI) scale demonstrated high content validity. A total of 30 Thai pregnant women participated in the reliability testing. The Cronbach’s alpha of the 5-item T-IFI scale was 0.857, which indicated satisfactory internal consistency. The T-IFI scale demonstrated high content validity and was culturally appropriate for use in a Thai-speaking population. It has potential to strengthen assessments of prenatal infant feeding intention among pregnant women in Thailand.
Cancer is a major illness for adolescents globally. In Thailand, for the 2010-2012 period, the rate of cancer diagnosed in adolescents aged between 10 and 14 years was 10.2 per 100,000 for males and 9.4 per 100,000 for females. Among teenagers aged between 15 and 19 years, the incidence rate was found to be 12 per 100,000 for males and 14.6 per 100,000 for females. 1 Statistical reports from Ramathibodi Hospital in Thailand showed that the number of adolescents aged between 10 and 15 years who were diagnosed with cancer was equal to 30 and 29 in 2015 and 2016, respectively. 2,3 This study focused specifically on adolescents aged between 10 and 15 years, because adolescents older than 15 are admitted to adult treatment facilities and are treated by non-pediatric physicians. Therefore, they are likely to receive different treatment protocols, which in turn would affect their symptom experiences and QOL.Adolescents can be treated with various regimens that are usually used for both children and adults. They generally receive more intense, longer treatments, and may encounter adverse outcomes when compared to other age groups. 4 These cancer treatments can cause a major disruption to adolescents' achievement of developmental tasks. Adolescents with cancer cannot perform usual activities and tend to depend on their parents, may drop out of school, and this can eventually impact their relationship with friends. This disruption to major developmental milestones leads to poor QOL. [5][6][7][8] Health-related QOL is described as "an overall sense of well-being based on being able to participate in usual activities, to interact with others and feel cared about; to cope with uncomfortable physical, emotional and cognitive Abstract OBJECTIVES: This descriptive correlational study aimed to explore symptom experiences, quality of life (QOL), and the relationship between these variables in adolescents with cancer receiving treatments. MATERIAL AND METHODS: 25 adolescents, recruited from a university hospital, Thailand, diagnosed with various types of cancer; age 10-15 years; having received at least one cycle of chemotherapy. The participants reported their symptom experiences, using MSAS (10-18) and their QOL, using the pediatrics quality of life (PedsQL) 4.0. Descriptive statistics and Pearson's product-moment correlational coefficient were used to describe the results. RESULT: Most of the participants were male (68%), with a mean age of 12.74 ± 20.44 years, and were diagnosed with hematological cancers (56%). They experienced a mean of 11.80 ± 5.61 symptoms. Dry mouth was found to be the most common and frequent symptom; swelling at arms or legs was rated as the most severe, and changes in the way food tastes was the most distressing symptom. All dimensions of symptom experiences had significant negative correlations with overall QOL (p < 0.05). CONCLUSION: Symptom experiences and QOL among adolescent cancer patients after chemotherapy showed specific differences. Therefore, nurses should assess every aspect for both inpat...
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