Parents felt that their child had learned to live with significant levels of chronic and acute pain. Assessment of pain was an uncertain and complex process requiring parents to draw on skills and knowledge developed over a number of years. Parents used different strategies for both the assessment and management of pain based on an intimate knowledge of their child's usual nonpain state. Even with a limited repertoire of behaviours available to them, children were able to express pain. Parents often felt isolated in relation to pain management and under-used as a resource by health professionals.

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Pain assessment is essential for effective pain management. Development of structured pain assessment and documentation of the child's pain history is vital. Involving the child and family in pain assessment is crucial for effective pain management. Pain management requires multiprofessional commitment and involvement. The role of the acute pain service is a vital element within a Children's Trust.

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