Objective To understand how the narrative and conversational experience of arterial hypertension is configured in the relationships established among patients, family members, physicians and researchers-auditors, placing the illness in a care context to facilitate the dissemination of wellbeing narratives. Method Qualitative research with reflective and contextual conversational-narrative design, which involveda patient diagnosed with hypertension, his family and two doctors. The methods of constructing information was semi structured interviews, reflective observation and literature review. The systematization of information was carried out using frameworks designed for that purpose. For the interpretation of results, narrative and conversational analyses were used. Results In the process of constructing the experience of hypertension by family members or the physician, important aspects are not taken into account such as: the listening request, a demand for bonding, the experience of illness and in this case, the daily experience of old age. In this context, these kinds of relationships can lead to discomfort and suffering in the patient's experience of the illness. The conversation generated by all stakeholders enables the construction of dialogic-reflexive spaces that provide an opportunity to reshape relationships and experience of illness Conclusions The construction of contexts of care where one can talk and hear about issues without families and doctors facilitates the reconfiguration of the experience of illness, allowing for the inclusion of family and physicians in the generation of conversational-narrative positions. This implies personal and collective agency in order to mobilize and organize the resources they have, consistent with the patient's age and diagnosis.
Informed consent is a legal document signed by an individual who will undergo an intervention in the health area, or in the research field. This informed consent reflects the individual wellbeing and autonomy and his / her capacity, once he or she has been illustrated in detail about the intervention, to understand its main results and its potential risks of said intervention and his / her willingness to assume it without external pressure. Although this seems trivial, history shows that wellbeing and autonomy have not been considered values in the health area and lesser in research, intentionally or by omission. For the present review, a bibliographic search was carried out in PubMed, Medline, Scielo and Google Scholar databases. The following descriptors were used: history of research, ethics, informed consent, research, nursing and comprehension. We found 2800 articles, in English, Portuguese and Spanish, without time limit. Then after reading abstract of the Articles it was selected 80 articles that were close to the subject and there were used. As a result of the analysis of the information, some guidelines were generated aimed to improve the informed consent process through techniques that improve the explanation by the health professional and the understanding of the participant or patient.
Esta investigación pretende comprender cómo se configuran y reconfiguran en el relato los órdenes de sentido y acción para la emergencia del bienestar. Esto, mediante diálogos generativos en la relación que establecen pacientes con enfermedades crónicas en diferentes etapas de ciclo vital, su familia y profesionales de la salud. Se realizó esta investigación cualitativa, con diseño narrativo-conversacional. La experiencia de enfermedad crónica se organiza en historias centradas en problemas, con cristalización del sí mismo en la relación cuidador-paciente. Esto implica la construcción de identidad centrada en la imposibilidad de cuidar en un sentido totalizante que desdibuja la diversidad del sí mismo. En el contexto conversacional surgen nuevos sentidos de la enfermedad crónica, emergente en las diferentes formas de acción y de relación; lo que implica coevolución hacia formas de organización y afrontamiento generativo con nuevos posicionamientos del sí mismo centrado en la recuperación del poder que tienen las personas y las familias para decidir dentro de opciones posibles.
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