Cerebral visual impairment (CVI) is defined as vision loss that results from damage to the postgeniculate visual pathways. 1 More recently, it has been defined as a confirmable visual dysfunction that cannot be attributed to disorders of the anterior visual pathways or any potentially co-occurring ocular impairment. 2 CVI is the leading cause of visual impairment in children aged 0 to 3 years in the USA. 3 A recent prevalence study estimated that 31.5% of mainstreamed students had one CVI-related vision problem whereas 10.5% of students had multiple issues. 4 Comorbid diagnoses commonly coexist with CVI, including cerebral palsy (CP), preterm birth, periventricular leukomalacia, and optic nerve atrophy. [5][6][7] The complexities and deficits associated with CVI warrant a comprehensive evaluation and treatment approach provided by a multidisciplinary team consisting of ophthalmologists, neurologists, optometrists, occupational therapists, and teachers of students with visual impairments, among others. 5 Visual impairment can negatively impact all aspects of life, including learning and development. However, children with CVI may benefit from interventions to improve functional limitations and overall participation in valued activities. Current practice standards recommend
The purpose of this pilot study was to report initial findings about developmental concerns expressed by caregivers of children with prenatal opioid exposure using the Shared Decision-Making Tool, and to assess provider acceptability of incorporating the tool into their workflow. Data were collected from 83 caregivers and five providers from a medical clinic and an early intervention service center. Communication was the most frequently cited concern in four consecutive age categories. Inattention/impulsivity was the second most frequently cited concern in three consecutive age categories. Problem behavior was the third most frequently cited concern in three age categories. All providers ‘strongly agreed’ or ‘agreed’ with all statements on the provider feedback survey, except two instances. Data from this pilot study will guide our next research steps, focusing on psychometric testing and usability feedback from caregivers, before expanding trials of the Shared Decision-Making Tool to a wider geographic area. Findings from this pilot study will also inform the development of caregiver resources for managing areas identified as top concerns through the first five years of childhood.
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