The completion of the Human Genome Project occurred at a time of increasing public attention to health disparities. In 2004, Sankar and colleagues 1 suggested that this coincidental timing resulted in an inappropriate emphasis on the contribution of genomics to health disparities, conflating racial patterns of disease with genetic ancestry, and distracting attention from the large and compelling body of scientific evidence pointing to social determinants of health disparities. 2 For example, genomic research has emphasized discovery of genetic contributors to diabetes risk, but the recent increase in the prevalence of obesity and type 2 diabetes, which disproportionately affects minority populations, cannot be attributed to genetic changes and rather reflects social forces affecting diet, food access, and patterns in physical activity. The introduction of new genomic health technologies could also exacerbate disparities in access to high-quality health care, if specific genomic testing improved health and was only available to those who were affluent. Nonetheless, the claim persists that genomic research can reduce health disparities-if only participation by minority populations in genomic research could be increased. 3 The source of this claim is an idiosyncratic usage of the term health disparities that may result in missed opportunities for the nation's health research agenda. Health disparities are generally understood to refer to systematic differences in health effects resulting from social disadvantage, but the term is often used in genomics to refer to differing health outcomes associated with population genetic variation. This usage arguably stems from the US focus on the association of health disparities with race/ethnicity (vs socioeconomic status), together with a growing body of knowledge about population genetic variation. Compounding the problem is a tendency in the United States to conflate health disparities and health care disparities, perhaps based on the erroneous assumption that improved health care will resolve health disparities. 4 The misunderstanding about the causes of health disparities leads to confusion about fruitful lines of research and potential remedies.A causal association between social position and health is well established. 5 This association has been documented in both developed and developing countries and dates back to the earliest records, despite substantial change over time in the principal causes of disease. A broad array of health conditions across the lifespan follows a social gradient, wherein better health and longer lifespans track with increases in social advantage. This pattern holds whether measured by proxies of social class, such as education, income, and occupation, or by race/ethnicity. 5 In the United States, health disparities are significant and widening and have attracted
For over two decades, the "deliberative turn" has rooted itself in the fields of health policy and bioethics, producing a growing body of deliberation in action and associated academic scholarship. With this growing use and study of citizen deliberation processes in the health sector, we set out to map this dynamic field to highlight its diversity, interdisciplinarity, stated and implicit goals and early contributions. More specifically, we explored how public deliberation (PD) is being experimented with in real-world health settings, with a view to assessing how well it is meeting current definitions and common features of PD. Our review provides an informative and up-to-date set of reflections on the relatively short but rich history of public deliberation in the health sector. This emerging, interdisciplinary field is characterized by an active community of scholars and practitioners working diligently to address a range of bioethics and health policy challenges, guided by a common but loosely interpreted set of core features. Current definitions and conceptualizations of public deliberation's core features would benefit from expansion and refinement to both guide and respond to practice developments. Opportunities for more frequent cross-disciplinary and theory-practice exchange would also strengthen this field.
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